Where Can AML Patients Find Support for Treatment Costs?

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Topics include: Living With Acute Myeloid Leukemia

What resources canhelp people cope with cancer-related expenses? Amanda Fowler joined Patient Power to share ways The Leukemia & Lymphoma Society (LLS) can provide financial support to patients and families living with acute myeloid leukemia (AML). Watch now to find out more.

This is a Patient Empowerment Network program in partnership with The Leukemia & Lymphoma Society produced by Patient Power. We thank Celgene, Daiichi Sankyo, Jazz Pharmaceuticals and Novartis for their support. These organizations have no editorial control. It is produced solely by Patient Power.

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Transcript

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

Andrew Schorr:

So, Amanda, let me go to you. So The Leukemia & Lymphoma Society has lots of services.  Some of it—and your cat's going to help us too, there—is first of all getting information. Where can I or mom or dad or grandma or grandpa, Uncle Charlie get the right care, okay, state?of?the?art care? But also then as we get to some of these treatments then they say, oh, my god.  There's all this medical care and medicines coming in, and there's expense. So you all help people with that, too, right?  

Amanda Fowler:

Yes, absolutely.  We hear all the time how expensive treatment can be, and these new drugs are amazing but they do come at a cost.  So we have various different options to help patients through a program like copayment assistance that's available most of the time but is subject to availability.  So we encourage people to call us.  And if there's something that we don't have we will work with the patient to find other options.  

It is a big burden to people, and it's certainly one of the things that people worry about the most. And this does often come from the caregiver because, like we said, the patient may be feeling pretty ill or be in the hospital, so we just encourage you to call and see what's available.  

Andrew Schorr:

Okay.  Yes, I know.  I take an oral therapy for another leukemia, chronic leukemia, and I'm on Medicare, and I have Medicare Part D and I have a substantial co?pay.  Now there are foundations, the Leukemia Society, that depending upon your need can help.  And if you're on commercial insurance and you're younger and not on Medicare there are other programs that come into play, right, Amanda?  

Amanda Fowler:

Yeah.  We will talk to patients, whether it's through a nonprofit like us or through the pharmaceutical company directly.  And I certainly encourage people when they're making that transition to Medicare, which often they know about in advance, to call us and we can help talk to you about ways to make that transition a little bit easier because you do find that the cost out of pocket to the patient can sometimes go up when they make that transition.  

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

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Page last updated on July 23, 2019