When Should CLL Patients Call the Doctor? | Transcript | Chronic Lymphocytic Leukemia | Patient Power


When Should CLL Patients Call the Doctor?

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

Hello and welcome to Patient Power. I'm Andrew Schorr. Well, as you take a powerful CLL medicine or combination medicines, you worry about side effects. When are the side effects serious enough to call the clinic? Well, we got some guidance on that from a member of the CLL team at the Moffitt Cancer Center in Tampa, and that's advanced nurse practitioner Lisa Nodzen.

Lisa Nodzon:

So what we tell patients is so whether they’re on therapy or not on therapy, the number one thing we want to know is are you having a fever. We think all CLL patients should have a thermometer with them, especially those that are on therapy. We ask them even if you’re going to mall, please bring the thermometer with you. So any fever of 100.5, we want to know about it. And we tell our patients don’t take Tylenol, don’t take anything until you call us first. And then we also tell patients if you’re have any other really concerning symptoms, such as respiratory or you’re having any active bleeding when to call in. That’s when it’s important to call us.

Right.  So we say anything that's a life-threatening emergency, so if a patient that's neutropenic, their neutrophil counts are low, they're on therapy, and they spike a fever, we want them to go to their nearest emergency room.  Any patient that's having active bleeding, same scenario, nearest emergency room.  If a patient that they're not on therapy but they're experiencing other symptoms such as perhaps a chest cold or respiratory in that regard, a cough, go ahead and give us a call.  We can help direct them at that time.

Andrew Schorr: 

Thanks to Lisa for that great guidance. Remember to be sure to be signed up for alerts on our website so you will know whenever we post something new. I'm Andrew Schorr. Remember, knowledge can be the best medicine of all.

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

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Page last updated on June 4, 2014