Sue’s Story: How Getting a Second Opinion Changed the Course of Care | Transcript | Chronic Lymphocytic Leukemia | Patient Power


Sue’s Story: How Getting a Second Opinion Changed the Course of Care

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Carol Preston:

Sue, could you share with us how you got—how you got into this coffee clatch with this morning, this afternoon?  

So he referred me to a local oncologist, and they started monitoring me.  And during this time I was really quite ill, and it was progressing very, very rapidly, the white blood counts, everything.  And this was from February until the first of June, and I went to see the oncologist, and he said we need to start treatment right away. We're going to put you on FCR.   

And I for some reason decided, I said, would you please give me a couple of extra slides of my blood work. And he did.  He said, yeah, I'd be happy to.  What are you going to do with them?  And I said I'm going to send them to a friend of mine who is a CLL research—he's a blood cancer researcher at the Huntsman Institute in Salt Lake City. And I sent them to him.  

He immediately wrote back and said, do not start treatment.  Get a second opinion.  He said you are—I don't know if you can get in to see Dr. Kipps, but he's the best one close to you.  So I cancelled my appointment to start treatment.  I called down to the UC San Diego in La Jolla.  I said they want to start treatment, and they said, send us all of your paperwork.  I sent a fax, and within 45 minutes after I sent the fax I got a call, and they said, the doctor wants to see you next week.   

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Page last updated on July 3, 2019