How Do Scientists Use Lung Cancer Patient Perspectives to Make Advances?

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Topics include: Emerging Research

A dynamic panel, including renowned lung cancer expert Dr. Lecia Sequist, patient advocate Janet Freeman-Daily and care partner Jessica Wittebort, discuss the value of the patient’s point of view in developing treatment and contributing to the research process. The panel shares their experiences at educational and news conferences and explains why two-way communication between researchers and patients is vital to improving lung cancer care. 

The Living Well With Lung Cancer series is a Patient Empowerment Network program produced by Patient Power. We thank Celgene Corporation, Genentech, Helsinn and Novartis for their support.

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Transcript

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

But I would say Janet and I have been running into each other at the hallways of medical conferences for many years, and it is always really interesting to get the patient perspective about a big result that was just presented maybe an hour earlier.  And I love running into people at meetings and talking to them about it.  It really helps inform our research.   

And there is nothing more informative than finding out what really is important to patients, especially when you're developing a new treatment, hearing from them about what they value, what they—you know, someone who is not living with it may think that a certain side effect is a big deal. Yet someone who is taking the medicine will say, you know, actually that's—I can deal with that if it's going to help me live longer.  And finding out where that balance lies is really important and not something you can just guess if you're not in the shoes of a patient.  

I think a little bit that gets lost in translation sometimes when you can get swallowed by the information that comes out of a conference if you're not carefully, right, so learning how to translate that information into something tangible and consumable and being able to respond back to your healthcare professionals I think is just that bridge that's essential to moving things forward.  

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

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Page last updated on June 26, 2019