Our Systemic Mastocytosis: Katy’s Story

In this three-part series, systemic mastocytosis patient Katy Groene tells her story. We hear her explain how a constellation of seemingly unrelated symptoms coalesced into a diagnosis of systemic mastocytosis. We learn about the evolution of her understanding of the disease. Finally, we follow her as she expands her care team beyond a local oncologist in Nebraska to include a specialist in New York.

Support for this series has been provided by Blueprint Medicines. Patient Power maintains complete editorial control and is solely responsible for program content.