Our Systemic Mastocytosis: Katy’s Story

In this three-part series, systemic mastocytosis patient Katy Groene tells her story. We hear her explain how a constellation of seemingly unrelated symptoms coalesced into a diagnosis of systemic mastocytosis. We learn about the evolution of her understanding of the disease. Finally, we follow her as she expands her care team beyond a local oncologist in Nebraska to include a specialist in New York.

Systemic Mastocytosis

Our SM: The Long and Winding Road to Diagnosis

Systemic mastocytosis patient Katy Groene explains how a number of puzzling symptoms ultimately led to her diagnosis.

Systemic Mastocytosis

Our SM: The Long and Winding Road to Diagnosis

Systemic mastocytosis patient Katy Groene explains how a number of puzzling symptoms ultimately led to her diagnosis.

Systemic Mastocytosis

Friendship Is a Lifeline for Systemic Mastocytosis Patient

Systemic mastocytosis patient Katy Groene meets with a longtime friend to discuss how friendship helped her through the time of diagnosis.

Systemic Mastocytosis

Friendship Is a Lifeline for Systemic Mastocytosis Patient

Systemic mastocytosis patient Katy Groene meets with a longtime friend to discuss how friendship helped her through the time of diagnosis.

Systemic Mastocytosis

The Ongoing Challenge of Finding Specialist Care for Systemic Mastocytosis

Systemic mastocytosis patient Katy Groene explains the ongoing challenge of finding a specialist that understands her rare disease.

Systemic Mastocytosis

The Ongoing Challenge of Finding Specialist Care for Systemic Mastocytosis

Systemic mastocytosis patient Katy Groene explains the ongoing challenge of finding a specialist that understands her rare disease.