Life As A Mom with Mastocytosis

Life As A Mom with Mastocytosis

What Is It Like to Live With Systemic Mastocytosis?

Systemic mastocytosis is a rare disease that can affect a person’s skin, brain, GI tract and immune system. It increases the risk of life-threatening reactions to everyday stimuli like common medications. What is it like to live with such an all-encompassing chronic illness? It took more than 10 years for Katie Preston-Toefer to get a diagnosis of systemic mastocytosis (SM). In this two-part series, Katie will reflect on her diagnostic and treatment journey and how she became an advocate for SM.

How Escalating Symptoms Pushed One Patient Toward a Diagnosis of Stytemic Mastocytosis
Systemic Mastocytosis

How Escalating Symptoms Pushed One Patient Toward a Diagnosis of Systemic Mastocytosis

A systemic mastocytosis (SM) patient describes her diagnosis journey, from her early twenties through undergoing the protocol for a pregnant SM patient when she had her daughter.

How Escalating Symptoms Pushed One Patient Toward a Diagnosis of Stytemic Mastocytosis
Systemic Mastocytosis

How Escalating Symptoms Pushed One Patient Toward a Diagnosis of Systemic Mastocytosis

A systemic mastocytosis (SM) patient describes her diagnosis journey, from her early twenties through undergoing the protocol for a pregnant SM patient when she had her daughter.

Katie Preston-Toepfer
Systemic Mastocytosis

Systemic Mastocytosis and Mental Health

Katie Preston-Toepfer describes the path to her systemic mastocytosis diagnosis and how the condition entwines with her mental health.

Katie Preston-Toepfer
Systemic Mastocytosis

Systemic Mastocytosis and Mental Health

Katie Preston-Toepfer describes the path to her systemic mastocytosis diagnosis and how the condition entwines with her mental health.