Myeloma Patient Café®

From Our Partner, the Patient Empowerment Network 

 

 

 

 

 

Patient-to-Patient Advice: Finding Support During the Clinical Trial Process

For people considering next steps on their treatment journey, it may be beneficial to hear from others who have ventured down a similar path. Watch now to hear a panel of multiple myeloma patients share tips for participating in a clinical trial and what they have found to be helpful.

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Myeloma Patient Perspective: Making the Decision to Join a Clinical Trial

Although a clinical trial may be recommended by a healthcare team, enrollment is ultimately a voluntary decision made by the patient. Watch now to hear from a patient panel things to consider before joining a clinical trial and reasons why they chose to participate.

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What's a Myeloma Clinical Trial Like? Patients Share Their Experiences

What is clinical trial participation really like for patients? During this Myeloma Patient Café, hear from four different patients living with multiple myeloma as they walk through their treatment path, what led to a clinical trial, their unique view of following trial protocol and trial results.

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Myeloma Patient Café®: Do Myeloma Patients Worry About Life Expectancy?

How does prognosis affect a patient’s mental health and well-being? Watch as myeloma patients discuss the anxiety and worry that comes with a looming life expectancy.

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Myeloma Patient Cafe®: How Do I Balance Life and Family After a Myeloma Diagnosis?

Patients living with myeloma often wonder how to keep a balance between doctors’ appointments and raising children. Cynthia and Kathy discuss how to maintain a healthy family life while undergoing treatment.

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Myeloma Patient Cafe®: What Does Normal Mean When Living With Myeloma?

Cancer survivors living with multiple myeloma discuss the impact of diagnosis on day-to-day life and how to find balance and normalcy in the midst of doctors’ appointments.

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Myeloma Patient Café: Self-Education and Empowerment Tips From Long-Term Survivors

Cynthia Chmielewski, a patient advocate and mentor who is living with multiple myeloma, speaks with other patient advocates about self-education and self-empowerment.

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Myeloma Patient Café: What's Life Like With Myeloma?

In this Myeloma Patient Café®, six myeloma patients discuss their lives with myeloma amongst each other and explain what living well with myeloma means to them.

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Why Do Some Myeloma Patients Avoid Clinical Trials?

Four patient advocates with a large stake in the multiple myeloma world discuss clinical trials: Jenny Ahlstrom, Cindy Chmielewski, Jack Aiello and Brian McMahon.

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Showing 9 of 18 programs

This content was selected by the Patient Power editorial team and was created by a partner, the Patient Empowerment Network, which received educational grants from AbbVie, Inc., Amgen and Takeda Oncology. The content is subject to Patient Power’s editorial standards and policies.

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Page last updated on August 15, 2018