Patient Stories

Choosing to Stay Together Despite a Chronic Condition: Sandra and Casey’s Cancer Love Story

Meet MPN survivor Sandra Dillon, as she shares her experience participating in a clinical trial and successful response with fedratinib. Watch now to hear her story.

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Woman With Myelofibrosis Gets Unapproved Drug With Help of Care Team

How can you advocate for yourself with a clinical trial drug if it’s later taken away? Watch as Sandra Dillon shares her story of her fedratinib trial.

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How Can Humor Help When Living With a Serious Illness?

How can having a laugh help patients cope? Watch now as Summer Golden and Jeff Bushnell share their story as a couple.

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MPN Therapy: Advice and Guidance for Making Treatment Decisions

How is treatment chosen and monitored for MPNs? Tune in to hear expert and patient views on treatment decisions, assessing treatment response and more.

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What Are the Key Steps to Early Cancer Detection?

How can people be better about identifying cancer in early stages? Tune in to hear Tricia Laursen share a three-step process for diagnosing cancer as early as possible.

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Making a Difference: Leaders in Advocacy From the MPN Alliance Australia Share Their Story

Joining Patient Power from Melbourne, Australia, MPN patients Nathalie Cook and Ken Young share their stories of advocating for approval of medications and forming the MPN Alliance Australia.

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From Holistic Health Guru to Patient Advocate: The Importance of Respecting Evidence-Based Medicine

Myeloma patient and author Cherie Rineker shares how her perspective shifted from holistic care to becoming a myeloma treatment research advocate. Watch to learn why.

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How Do You Know When It’s Time to Switch MPN Therapies?

What physical symptoms indicate a necessary change in the course of MPN therapy? What factors do medical experts consider before making a switch? Watch now to find out.

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How Getting to the Right MPN Specialist Turned One Man’s Life (and Prognosis) Around

A 71-year-old MPN patient Nelson Patz was initially treated for Lyme disease and experienced painful, severe side effects but today he feels stronger than ever. How did he get to the care he needed? Watch now as he walks us through the twists and turns of his treatment journey.

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Page last updated on November 7, 2013