Understanding MPNs: Accessing the Best Care & Treatment Options

A Town Meeting for Patients, Care Partners and Families

May 05, 2018



An audience of MPN patients and their caregivers joined us at a recent town meeting along with the University of Colorado Anschutz Medical Campus to hear the latest treatment and research news, inspiring stories of people living well with MPNs, tips for effective communication with a healthcare team and more.

We are also planning events in other cities. If you haven’t already, please sign up for email updates so we can alert you when important and inspiring videos become available and when upcoming town meetings are scheduled.

 

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Special thanks to our promotional partners, MPN Research Foundation, The Leukemia & Lymphoma Society (LLS), Canadian Myeloproliferative Neoplasm Network, PV Reporter, MPN Alliance Australia, MPN Advocacy & Education International and MPN Cancer Connection for their help with this program. The logos for each of these organizations, linked to their individual websites, can be found below.


Are There Treatment Options for Transfusion-Dependent MPN Patients?

What therapies are available to patients with low hemoglobin levels? Can the need for transfusions be reduced? Watch now to hear a panel of experts discuss treatment options for MPN-related anemia.

Published:

Prognosis, Progression and Survival: Advice on Interpreting MPN Statistics

MPN experts Dr. Naval Daver and Dr. Brandon McMahon help patients put survivorship statistics into perspective. How can patients discern which numbers and figures are applicable to them? Watch now to find out more.

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Depression After MPN Diagnosis: What Are Strategies for Coping Emotionally?

The unique challenges patients face from an MPN diagnosis can trigger feelings of fear, anxiety and depression. How can MPN-related depression be treated? Watch now to learn more from a panel of experts.

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Financial Toxicity: How Can I Minimize the Cost of My MPN Care?

High cost of modern medicines can weigh heavily on patients and make treatment inaccessible to some. Where can people go for financial assistance? Watch now to hear a panel of experts discuss ways to help patients lift the financial burden of MPN care.

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How Getting to the Right MPN Specialist Turned One Man’s Life (and Prognosis) Around

A 71-year-old MPN patient Nelson Patz was initially treated for Lyme disease and experienced painful, severe side effects but today he feels stronger than ever. How did he get to the care he needed? Watch now as he walks us through the twists and turns of his treatment journey.

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Are Supplements Safe for MPN Patients?

Are supplements helpful or harmful to MPN patients? Can they interfere with treatment? Watch now to hear from a panel of experts the safest way for the body to absorb vital nutrients.

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Cognitive Issues: Managing Common MPN Symptoms

Difficulty concentrating, fatigue, night sweats, blurred vision. Are these caused by MPNs? Watch now to hear a panel of experts explain MPN symptoms from “head to toe.”

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Understanding the Physical and Emotional Impact of Diet in MPNs: An Expert Explains

What are the dos and don’ts of an MPN diet? Can healthy eating help the body tolerate treatment? Watch now to hear oncology dietician, Sommer Gaughan share diet and nutritional guidelines for patients.

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Experts Explain: Tools for Determining Prognosis With Myelofibrosis

Many MPN patients want to know how their disease will change over time and what factors indicate progression. What risk assessment tools are used by the experts? Watch now to find out.

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Host & Guests
Host

Host, Patient Power Co-Founder, Two-Time Cancer Survivor and MPN Patient Advocate


Guests

This town meeting was sponsored by Incyte Corporation. It was produced by Patient Power in partnership with the University of Colorado Anschutz Medical Campus.


 

 

 

 

 

Patient Power
University of Colorado Anschutz Medical Campus
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Page last updated on November 14, 2018