Please note: While our archived programs have great information, they are in an area we are no longer actively maintaining. Since medical progress marches ahead, please see your own doctor and other resources for the latest medical information that’s right for you.
When Michelle Hays' daughter was nearly one year old, she received surprising news: Katy had PKU. She shares her story about how the standard newborn screening test had been overlooked and the diagnosis forever changed their lives.
Dr. Michael Gibson, Professor and Chair of The Clinical Pharmacology Unit at Washington State University, explains his novel research effort trying to understand ways to block the transport of the amino acid, Phenylalanine, that has a negative impact on Phenylketonuria (PKU) brain function.
Kevin Alexander, PKU advocate and contributor to Patient Power, shares an update on his recent trip to Curitiba, Brazil to speak at a newborn screening symposium sponsored and share his film, ‘My PKU Life’, with Portuguese subtitles.
December 3, 2012 is National PKU Awareness Day. There are a number of ways you can raise awareness about Phenylketonuria (PKU) in your community. Take a moment to review this Patient Power video and get involved!
By Esther Schorr