Making the Right Choices: Understanding Your Options to Get the Best MPN Care

A Town Meeting for MPN Patients and Care Partners

October 07, 2017

An audience of MPN patients and their caregivers joined us at a recent town meeting along with The University of Texas MD Anderson Cancer Center to hear the latest treatment and research news, inspiring stories of people living well with MPNs, tips for effective communication with a healthcare team and more.

We are also planning events in other cities. If you haven’t already, please sign up for email updates so we can alert you when important and inspiring videos become available and when upcoming town meetings are scheduled.

Special thanks to MPN Research Foundation for their continued partnership. 


Patient Folder


Patient-to-Patient Advice: Staying Informed With an MPN

How can you take a more active role in your health care? MPN Patient advocates, Samantha Trahan and Andrea Spica, share tips for becoming an empowered patient on your treatment journey.


Approaches for Coping Day-to-Day With an MPN

Our panel of experts discuss the impact of a rare cancer on daily life and share tips and strategies to live well with an MPN. Watch now to learn ways to live your best life with an MPN.


Guidance for Newly Diagnosed MPN Patients

MPN experts Dr. Srdan Verstovsek and Dr. Abdulraheem Yacoub provide advice for newly diagnosed MPN patients to prepare for their journey ahead. Watch now to learn what patients can expect going forward.


MPN Symptoms: Why Does Bone Pain Occur?

What factors influence bone pain in patients with MPNs? Dr. Abdulraheem Yacoub from University of Kansas Medical Center explains the root of the symptom and how to manage it.


The Pros and Cons of Interferon As an MPN Treatment

MPN expert Dr. Abdulraheem Yacoub explains how interferon therapy works, potential side effects, and typical responses from patients. Watch now to find out if interferon could be right for you.


How Does the JAK2 Mutation Impact Prognosis in MPNs?

MPN experts Dr. Abdulraheem Yacoub and Dr. Srdan Verstovsek help patients understand the JAK2 mutation and the risk and prognostic significance it has for MPNs.


How Do I Know If My MPN Treatment Has Stopped Working?

Our expert panel shares signs to look for when an MPN treatment has stopped working and how to stay on track with your care.


Andrea’s Story: The Fight to Live Well, Not Just Live Longer With Myelofibrosis

Why should you remain hopeful on your MPN journey? Andrea, patient advocate and 19-year MPN survivor, shares her inspiring story as a proactive patient.


What Is a Clinical Trial? MPN Experts Explain

How exactly do clinical trials work? Tune in to find out about how patients can join trials, procedures for participating and therapies in development.


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Host & Guests

Patient Advocate and Host


This town meeting was sponsored by Incyte Corporation. It is produced by Patient Power in partnership with The University of Texas MD Anderson Cancer Center and MPN Research Foundation.






The University of Texas MD Anderson Cancer Center
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Page last updated on May 9, 2018