Making the Right Choices: Understanding Your Options to Get the Best MPN Care

A Town Meeting for MPN Patients and Care Partners

October 07, 2017



An audience of MPN patients and their caregivers joined us at a recent town meeting along with The University of Texas MD Anderson Cancer Center to hear the latest treatment and research news, inspiring stories of people living well with MPNs, tips for effective communication with a healthcare team and more.

We are also planning events in other cities. If you haven’t already, please sign up for email updates so we can alert you when important and inspiring videos become available and when upcoming town meetings are scheduled.

Special thanks to MPN Research Foundation for their continued partnership. 

 

Patient Folder

 


How Do I Know If My MPN Treatment Has Stopped Working?

Our expert panel shares signs to look for when an MPN treatment has stopped working and how to stay on track with your care.

Published:

Andrea’s Story: The Fight to Live Well, Not Just Live Longer With Myelofibrosis

Why should you remain hopeful on your MPN journey? Andrea, patient advocate and 19-year MPN survivor, shares her inspiring story as a proactive patient.

Published:

What Is a Clinical Trial? MPN Experts Explain

How exactly do clinical trials work? Tune in to find out about how patients can join trials, procedures for participating and therapies in development.

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Seeking a Second Opinion? Here’s How to Prepare and What to Expect

MPN patients may want a second opinion to bring to light all treatment choices available or confirm their diagnosis. Dr. Yacoub and Dr. Verstovsek share how to make the most of the appointment.

Published:

Samantha’s MPN Story: Dealing With a Diagnosis in Your 20s and Beyond

What’s it like to be diagnosed with MPN as a young adult? Watch now to hear Samantha walk us through her experience after being diagnosed with ET at only age 26.

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Making the Right Choices: Understanding Your Options to Get the Best MPN Care – Session 2

Our recent town meeting featured renowned MPN experts and clinicians and a well-informed patient panel sharing the latest information about MPNs. Tune in to hear tips and advice for diet, exercise and general wellness.

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Making the Right Choices: Understanding Your Options to Get the Best MPN Care – Session 1

Our recent town meeting featured renowned MPN experts and clinicians discussing the importance of staying informed and educating yourself about the latest advances in the field to get the best care.

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Host & Guests
Host

Patient Advocate and Host


Guests

This town meeting was sponsored by Incyte Corporation. It is produced by Patient Power in partnership with The University of Texas MD Anderson Cancer Center and MPN Research Foundation.


 

 

 

 

 

The University of Texas MD Anderson Cancer Center
Patient Power
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Page last updated on February 14, 2018