[ Inglés] Beatrice’s Story: Why It’s Important to Pay Attention to Your Body

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Topics include: Patient Stories

While positive thinking and physical activity are important, how can tuning into your symptoms help increase quality of life? Are you ignoring messages from your body? Patient Power host and advocate Jeff Folloder is joined by chronic lymphocytic leukemia (CLL) patient Beatrice Meyer to share advice to help others enjoy life with cancer, discuss the importance of exercise despite fatigue and explain why it’s critical for patients to acknowledge symptoms and side effects.

This town meeting was produced in partnership with Winship Cancer Institute of Emory University and sponsored by AbbVie, Inc., Pharmacyclics, LLC and TG Therapeutics. 

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Produced in association with Winship Cancer Institute

Transcript

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

Jeff Folloder:

What advice would you give these folks? If you could tell them one or two or three things to help them lead a better life, what would it be from the patient’s perspective?

Beatrice:                      

I think surround yourselves with people who want to move on in life. Find a passion, something you just love and do it; you can either do it or not do it. And just live every day; we have a choice, we can get up and even if we’re feeling pretty lousy we can get going. It’s hard for me in the morning, I think, because of my age, and a bit of arthritis to just get out and walk. But once I’m two, or three, or four minutes into walking it’s so much easier, things just start to flow and move together. I don’t know if that’s what you’re looking for.

Jeff Folloder:               

I think that’s very much part of it, it seems counterintuitive to most of the people in the room and most of the people online, we’re tired all the time, go exercise, that just doesn’t connect. Wait a minute now, I’m dragging right now and you want me to go walk two or three miles, and the answer is what?

Beatrice:                      

If you can, do it. Yes. 

Jeff Folloder:               

I ignored my exercise regimen, I had a little medical issue back in December where I had to get, you play tennis, I had a tennis elbow issue and I don’t even play tennis. Right? So, I used that as an excuse to not to powerwalk because I couldn’t swing my arm for a while. And then after I was all completely healed I wasn’t back to powerwalking, I was back to eating very well, and sitting on the couch a lot. And I gained a bunch of weight while I was in the process of relapsing. Well, I have officially relapsed, and guess what? I’m powerwalking every morning again, I’m doing it again. I love seeing your smile, I love seeing you nod up and down, we both agreed you get to choose what to do with your energy.

You’re going to be tired, might as well have accomplished something, right? Is that something that most people can relate to? Not everybody can get out and walk 10, 15 miles or ever four-and-a-half, or even one, but we can all get up and do something and move around. Beatrice, thank you for chatting with us for a little bit, it’s wonderful to have a patient up here. We’re gonna introduce our patient panel, but first help you? 

Beatrice:                      

Could I say just one more thing? 

Jeff Folloder:               

Sure!

Beatrice:                      

And that is, even though it’s important to be so positive we must listen to our bodies, and there are times when we’re exhausted and you probably found this to be true, and I’m sorry to go on like this, we just have to listen and sometimes just sit on the sofa and just say okay you’re tired today, just sit. And recognize the fact I don’t have to feel guilty if I just sit and read, or if I put something on Netflix. I think that’s important. Excuse me for going on about that.

Jeff Folloder:               

Oh, no. No. That is great advice because a lot of us, especially the gentlemen in the room have a tendency to discount what’s going on and discount the symptoms that we have, so that is excellent advice. Pay attention to what’s going on in your body, acknowledge it, don’t feel guilty about it and let your doctor know about it, right?

Beatrice:                      

Correct. Yes. Thank you. 

Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor. That’s how you’ll get care that’s most appropriate for you.

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Page last updated on November 20, 2018