Cinco años después de la creación de ASACO, la Asociación de Afectados por el Cáncer de Ovario, la presidenta de la organización, Charo Hierro, nos explica el trabajo que llevan a cabo y los retos y objetivos que les esperan.

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Dear Patient Power friends and members, Esther and I are really excited about 2017 as we are making great efforts to improve what we do, with several partners, to help people with illness live better and live longer. And, as you know, we often report upbeat news that gives us hope. But sadly, too often we lose people we care about despite the best efforts of dedicated doctors and nurses and scientists who develop new medicines. Recently, we lost Voncile “Peppe” Fryou to myelofibrosis. Peppe, 60, from Louisiana was a bright light connecting with others online and sharing real hope...

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Regardless of political perspective, geographic place, cultural or religious persuasion—this year has been, in a word, tumultuous.  Overlaid on the ups and downs of any place on the cancer experience continuum…well, it definitely makes me excited to usher in a new year! Personally—for Andrew and I—we have been fortunate to have a medical year of few surprises.  I am thankful that despite Andrew's double diagnosis of CLL (in remission) and myelofibrosis (being treated with a JAK-2 inhibitor), we are exercising together every day; running Patient Power together with the amazing support of a dedicated global staff; we saw our eldest...

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  There you are—stuck in the house caring for your loved one. You may have not yet figured out how to set boundaries and how to make time for yourself, but that will come. Read my October blog "Boundaries" to learn how to establish and maintain boundaries. Be patient with yourself. You will figure it out...or you will succumb to the physical, emotional and spiritual demands of being a care partner. For most happy relationship couples, finding oneself in a care partner role is often a labor of love. For others, however, it can be obligatory or at the very...

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My life before Friday, May 13, 2011: I had recently remarried and was settling down to a nice life with everything to look forward to. I was working in sales & marketing management and really enjoying my life.  Married with two step-children and two from my previous marriage -  children are everything as they keep you grounded.  My dreams for the future were to build to a happy retirement and enjoy life to the fullest. How one word can change your life! “Cancer.” Friday, May 13, 2011 at 11am, I was diagnosed with throat cancer, and my world fell apart....

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Lung Cancer Awareness Month is over. Or is it…? It’s been some time now since I had that ah-ha moment where I realized I was indeed an advocate. And to be honest, it’s been a hard road.  When I first started writing, it was all about me, my family and how at times, things were just unfair. No one saw Jillian as the face of lung cancer. In part because there were and are so many like her—how do you decide on whose face is THE face? I wanted to tell people that to judge her by her diagnosis was...

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¿Se puede ser madre tras un cáncer de mama? La activista Teresa Ferreiro quiere ayudar a las mujeres que han padecido la enfermedad a cumplir este sueño a través de su organización Baby Beatles.

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Successfully living with a chronic disease like CLL requires waging the fight at a lot of different levels.  Organizations such as Patient Power, CLLPAG, LLS and others provide information, resources and other support.  Medical, nutritional and therapeutic aspects are addressed by our healthcare teams.  I am also fortunate to train under a former Olympic cyclist turned sports physiologist who keeps me physically fit. However, these are only part of the community network needed to contend with chronic disease.  With the holiday season right around the corner, many of us will be spending time with friends and family in the upcoming...

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I always knew there were patients and caregivers from outside the U.S. who took a look at our programs on Patient Power. But it’s only been recently that I’ve fully understood what a difference we are making worldwide, and it’s thrilling! Patient Power now has members of our communities from almost every country. That, quite frankly, blew me away, and it underscores how vital it is to bring patients the latest news for their condition—wherever they are. A couple of weeks ago, I actually got to meet folks like this, far from where I live in California, who depend upon...

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Guilt is defined by Webster's Dictionary as a feeling of responsibility or remorse for some offense, crime, wrong, etc., whether real or imagined. Guilt is a very powerful emotion. It can destroy your spirit, and it can destroy your soul. It eats away at you like a cancer itself, causing you to get physically and/or emotionally sick. It doesn't matter if the guilt is real or imagined. The results are the same. And they are rarely positive. There are several reasons for guilt: something you did wrong; something you should've done but didn't; something you didn’t do, but want to;...

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Page last updated on March 7, 2017