¿Se puede ser madre tras un cáncer de mama? La activista Teresa Ferreiro quiere ayudar a las mujeres que han padecido la enfermedad a cumplir este sueño a través de su organización Baby Beatles.  Con 36 años le diagnosticaron cáncer de mama, justo cuando estaba pensando quedarse embarazada. A pesar de las dificultades (la quimioterapia reduce de forma drástica la capacidad reproductiva de la mujer), Ferreiro luchó por hacer realidad su deseo de tener un hijo una vez recuperada. Cinco años después, tras un largo camino, nació su hijo. “Esta experiencia me hizo comprender los obstáculos con que se encuentran mujeres...

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Successfully living with a chronic disease like CLL requires waging the fight at a lot of different levels.  Organizations such as Patient Power, CLLPAG, LLS and others provide information, resources and other support.  Medical, nutritional and therapeutic aspects are addressed by our healthcare teams.  I am also fortunate to train under a former Olympic cyclist turned sports physiologist who keeps me physically fit. However, these are only part of the community network needed to contend with chronic disease.  With the holiday season right around the corner, many of us will be spending time with friends and family in the upcoming...

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I always knew there were patients and caregivers from outside the U.S. who took a look at our programs on Patient Power. But it’s only been recently that I’ve fully understood what a difference we are making worldwide, and it’s thrilling! Patient Power now has members of our communities from almost every country. That, quite frankly, blew me away, and it underscores how vital it is to bring patients the latest news for their condition—wherever they are. A couple of weeks ago, I actually got to meet folks like this, far from where I live in California, who depend upon...

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Guilt is defined by Webster's Dictionary as a feeling of responsibility or remorse for some offense, crime, wrong, etc., whether real or imagined. Guilt is a very powerful emotion. It can destroy your spirit, and it can destroy your soul. It eats away at you like a cancer itself, causing you to get physically and/or emotionally sick. It doesn't matter if the guilt is real or imagined. The results are the same. And they are rarely positive. There are several reasons for guilt: something you did wrong; something you should've done but didn't; something you didn’t do, but want to;...

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When we hear the dreaded words “You have cancer,” life seems to fall apart. It is one of the toughest and scariest diagnoses to hear. Despite the advancement in medicine, it feels like you were given a death sentence. Hearing you have cancer does not only affect the patient, it is a blow to the spouse, the children and the rest of the family as well. How people handle this very serious and difficult diagnosis is as unique as the patient and their families are themselves. Remember when you promised each other all those years ago, to be there both...

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Among the 20.000 participants attending the European Society of Medical Oncology Congress are the Patient Advocates. In Copenhagen we had the pleasure to meet two wonderful women –we already knew them in Twitter:  Jo Taylor (@abcdiagnosis) and Christine Bienvenu (@SuissePatiente), breast cancer advocates that are making a difference for women with the disease. Jo lives in a town close to Manchester and was diagnosed ten years ago with HER2+ breast cancer. She was 38 at the time and a busy mum of a little boy and a five months old baby. When her cancer journey started Jo realised that some...

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When someone you love is hurting and you can’t protect them from the pain It tears your heart out, causing much grief, that is a normal refrain. While the best interests of the patient is everyone’s intention That doesn’t stop the agony amidst the intervention. For when you truly love another, and watch what they go through It touches something deep inside, forever changing you. It isn’t easy to sit and see what they endure At times you feel like running right out the door. But staying put and advocating is what you need to do For that patient who’s...

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Rebecca recently interviewed her doctor, leading breast cancer expert Dr. Julie Gralow, about the BRCA gene mutation genes and emerging research that is providing hope for more effective treatment options. I wear a pink ribbon on my foot. It’s a tattoo actually. I have a total of three (tattoos)—one on my foot and two on my breast from where my nipples used to be. When I was younger and wanted to get a tattoo like a lot of people, I had one rule. The tattoo had to be something that I stood for, something about who I was, a symbol...

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Being a care partner is one of the most physically, emotionally and spiritually draining roles you will ever play. It is a 24/7 job that is oftentimes thankless and without much external reward. You have to dig really deep into your soul to be able to face the challenges, day after day. It seems like there is no respite, no fun, no escape. But it doesn’t have to be that way. It is vital for you to create and maintain boundaries. This is not only acceptable and reasonable, but it will help you cope and survive over the weeks, months...

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[Editor’s Note: Cherie Rineker is the author of A Pilgrimage Without End, How Cancer Healed My Broken Heart. Cherie has pledged $1,000,000 to multiple myeloma research when 1,000,000 copies of her book have sold. To purchase a signed copy, visit http://www.cherierineker.com.] Cancer gave me the gift of realizing how precious and wonderful this life is, with all its lessons and perceived “challenges.” It has given me the chance to prepare for the end, whether it arrives tomorrow or in a few decades. I appreciate every day in all its wonder and glory, and I don’t take much of what happens in...

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