Being a care partner is one of the most physically, emotionally and spiritually draining roles you will ever play. It is a 24/7 job that is oftentimes thankless and without much external reward. You have to dig really deep into your soul to be able to face the challenges, day after day. It seems like there is no respite, no fun, no escape. But it doesn’t have to be that way. It is vital for you to create and maintain boundaries. This is not only acceptable and reasonable, but it will help you cope and survive over the weeks, months...

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[Editor’s Note: Cherie Rineker is the author of A Pilgrimage Without End, How Cancer Healed My Broken Heart. Cherie has pledged $1,000,000 to multiple myeloma research when 1,000,000 copies of her book have sold. To purchase a signed copy, visit http://www.cherierineker.com.] Cancer gave me the gift of realizing how precious and wonderful this life is, with all its lessons and perceived “challenges.” It has given me the chance to prepare for the end, whether it arrives tomorrow or in a few decades. I appreciate every day in all its wonder and glory, and I don’t take much of what happens in...

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Entre los 20.000 asistentes al congreso de ESMO están los Patient Advocates, activistas por los derechos de los pacientes. En Copenhaguen hemos tenido el placer de conocer personalmente (ya habíamos hablado con ellas por Twitter) a Jo Taylor (@abcdiagnosis) y...

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“Choice” was one of the most powerful words coming out from the Patient Advocacy Track at the European Society of Medical Oncology (ESMO) congress. The event took place in Copenhagen from the 7th to the 11th of October with the participation of over 20,000 medical oncologists, patient advocates, pharma professionals and journalists. Patient advocates are demanding more power in all phases of the medical treatment and clinical management process: clinical research, treatment strategy and medical care techniques. An example of the increasing role of the patient is the fact that ESMO has announced that it recognizes patient advocates as healthcare professionals...

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[Editor’s Note: Cherie Rineker is the author of A Pilgrimage Without End, How Cancer Healed My Broken Heart. Cherie has pledged $1,000,000 to multiple myeloma research when one million copies of her book have sold. To purchase a signed copy, visit http://www.cherierineker.com.] Allow me to explain why I believe my story stands out from other stories about multiple myeloma. First of all, this is not a story just about cancer. I am neither cured, nor am I off chemotherapy. I have had to learn to live with cancer as well as with the continuous treatment, and I learned to do so...

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“Choice”- la capacidad de escoger- es una de las palabras más repetidas en las sesiones dedicadas a pacientes (Patient Advocacy Track) del congreso de la Sociedad Europea de Oncología Médica (ESMO) que tiene lugar en Copenhaguen hasta el 11 de...

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Have you ever considered participating in a clinical trial? If you haven’t, you are in the majority. In fact, according to Patient Advocate Foundation,“ less than 5 percent of adults diagnosed with cancer each year will get treated through enrollment in a clinical trial.” I find this stat extremely sad for two reasons. The first is that without participants clinical trials cannot be conducted. If treatments cannot be tested in trials, they will never be approved by the FDA, so they will not be available to cancer patients. A study by Fred Hutchinson Cancer Research Center and the University of...

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Hace unos meses mi esposa Esther y yo nos mudamos a nuestro nuevo hogar, en Carlsbad, California. La casa está al lado del Pacífico y de un bonito camino alrededor de la playa. Casi cada día paseo con mis perros...

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Spoiler note - this blog is a call for action. Read on only if you are going to act! Life is filled with serendipity. Paraphrasing Forrest Gump “…It is a box of chocolates; you never know what you are going to get…..” Along those lines, I was most fortunate to fall into an irreverent, eclectic group of people when taking the scary step of moving to Pittsburgh to attend, and subsequently work at, Carnegie Mellon University. Our collective predilection was to roll up our sleeves, work ridiculously hard, and then play even harder. During that time, I developed a lifelong...

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Those of us who have loved ones who have dealt with a cancer journey are always "along for the ride.”  The emotional and physical roller coaster is never exactly the same for any two people, but the road is always bumpy, often filled with great challenges, fear, tears…the works…But those who travel it together most often find their inner strength together and reaffirm their deep love for each other along the way.  And if a care partner (or caregiver) is a medical professional, the process of giving of their expertise and compassion is given selflessly and is priceless.  In some...

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