World Lung Cancer Day…August 1, 2016. Four years ago was the very first World Lung Cancer Day. It isn’t a fun day like Grandparents Day or a birthday. It isn’t a silly day like National Pizza Day or Hammock Day…There are 365 days each year, and we celebrate birthdays and anniversaries, graduations, and weddings. World Lung Cancer Day isn’t there to celebrate—just the opposite. We are trying to raise awareness for the deadliest of all cancers—worldwide! In 2012, there were 14.1 million new cases of lung cancer with 8.2 million deaths. That’s not cause for celebrating. It’s ironic that the...

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Late last month, Vice President Joe Biden held a Cancer Moonshot Summit at the White House, the intent of which was to vastly accelerate the “…understanding, prevention, diagnosis, treatment and care of cancer…” This summit had over 350 guests including Andrew and Esther Schorr, as well as 6,000 others participating throughout the United States. I became aware of this initiative when Tom Brokaw interviewed Vice President Biden on national TV just days ahead of the summit. Mr. Brokaw has been with NBC News since 1966 and was network news anchor for over 20 years. During the interview, Mr. Brokaw talked...

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In my last blog, I had an aha moment where I realized that I am becoming an advocate. I have had many titles over the years: daughter, sister, wife, mother, military spouse and volunteer. In all of those titles, I also realized that I tend to be a little controlling and driven. But never once did I associate the title “advocate” with who I was. Today, I’m learning what that new title means as I try to figure out how it is that I evolved into this new role. Being an advocate is sort of like being a mom. One...

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I have to begin this blog on a sad note. There have been personal and national tragedies that occurred since I agreed to write a blog about hope and optimism. I lost three friends to cancer in a week's time ... and last night, my city lost five police officers who were gunned down in cold blood while doing their job of overseeing a peaceful protest march. Sometimes, events make it hard to see joy and optimism, but it's still there. We just have to look a little harder. Even though I will miss my friends badly, they each outlived...

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Patient Power Europe ha ganado el Communiqué Award 2016 en la categoría Excelencia en Comunicación Digital - Productos de prescripción / Salud del Paciente. La ceremonia tuvo lugar en Londres el 7 de julio y reunió a centenares de profesionales de la comunicación del sector salud. Los jueces destacaron que Patient Power es un "proyecto enfocado a los pacientes" y "un recurso valioso de gran credibilidad". Los Communiqué Awards están diseñados para "reconocer y elogiar las mejores prácticas en comunicación de salud a nivel local, europeo e internacional." El equipo de Patient Power Europe está muy feliz por este reconocimiento y agradece a...

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Patient Power Europe won the Communiqué Awards 2016 in the category Excellence in Digital Communications - Prescription Products / Patient Health. The ceremony was held in London the 7th of July and gathered hundreds of professionals in the field of healthcare communications. The judges highlighted that Patient Power is a "patient-focused project" and "a valuable and nicely designed resource for patients that clearly conveys its credibility." The Communiqué Awards programme is specifically "designed to recognise and commend excellence and best practice in local, European and international healthcare communications." The Patient Power Europe team is very happy for this achievement and thanks...

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Some 5 years ago I heaved my reluctant frame (generous..) onto a bike ride from London to Brussels.  I swore I would never do it again. And my trusty steed grew dust, and rust, and flat tyres in the barn. Worringly, I now find myself signed up to an even longer ride from London to Paris, egged on by a super fit 21 year old daughter Lily who is riding with me (well, she's racing). Nearly 500 kilometres. I've signed up to all this to raise as much money and awareness as I can for two great cancer causes. Macmillan...

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El director de Patient Power Europe Charlie Grieve partirá el 14 de julio de Londres en bicicleta para llegar a París una semana más tarde con el objetivo de obtener fondos para ayudar a las personas afectadas por cáncer. Concretamente, los fondos irán a la ONG británica Macmillan Cancer Support, que apoya a pacientes y a sus familias, y a programas educativos para pacientes de cáncer en Patient Power Europe. El recorrido son unos 500 kilómetros durante cuatro  días y finaliza en los Campos Elíseos. La iniciativa se enmarca en los recorridos solidarios en bicicleta que organizan varias ONG para recoger...

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As we are at the mid-2016 mark, it’s probably appropriate that I update you on a behind-the-scenes look at Patient Power. Perhaps, like you, each year we do some goal setting, and we have a planning retreat near Seattle in August to start. Remember, Patient Power really has no “office,” as the team works virtually around the world. It’s much cheaper, and we get to wear our fuzzy slippers while we work. :) Last August, we set goals to expand…more visitors and members, more content distribution channels, more partners, more languages, covering more countries and a wider group of cancers....

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For those of us who are struggling with this beast called cancer, I hope this helps in your search for financial assistance. I have found this disease to be very emotional for me and, as such, looking and asking for a handout is very hard to do, not due to pride (okay, maybe a bit). As you read this blog and use the suggested sites at the end of the blog, please update me on the information you find, which may be different. My financial assistance list was accurate up to the day I either made the phone calls to...

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