For those of us who are struggling with this beast called cancer, I hope this helps in your search for financial assistance. I have found this disease to be very emotional for me and, as such, looking and asking for a handout is very hard to do, not due to pride (okay, maybe a bit). As you read this blog and use the suggested sites at the end of the blog, please update me on the information you find, which may be different. My financial assistance list was accurate up to the day I either made the phone calls to...

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Patient Power founder Andrew Schorr will be participating in Vice President Joe Biden’s National Cancer Moonshot Summit -- the White House’s latest step in its efforts to speed the pace of cancer research. Vice President Biden invited Andrew and his wife Esther as care partner to join a wide variety of leaders to share ideas and launch new collaborations to drive progress toward the Moonshot goal of bringing about a decade’s worth of advances in cancer treatment, prevention, and screening in five years.  The Summit will be held on Wednesday, June 29, at Howard University, in Washington, DC. “I am...

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Welcome to ASCO—The American Society of Clinical Oncology, and its annual conference.  I covered this onsite two years ago, learning some rookie lessons about comfortable footwear and conserving energy.  Here, at the world’s biggest cancer conference, is often where major clinical trial findings are presented. One significant study result presented on Saturday had the biggest breakthrough in oncology treatment taking on the biggest cancer head-on.  Lung cancer kills over 158,000 people a year—as much as the next five cancers combined.  That’s someone every three and a half minutes.  That's a lot of lives. Bristol-Myer Squibb’s anti-PD-1 immunotherapy Opdivo (nivolumab) first...

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Andrew Schorr, fundador y director de Patient Power, es una de las personalidades invitadas a la cumbre -Cancer Moonshot Summit- que tiene lugar en Washington el miércoles 29 de junio. El evento reunirá a líderes de varios sectores en el campo del cáncer -médicos, científicos, pacientes...-con el objetivo de hacer avanzar los objetivos del Cancer Moonshot, la apuesta del Gobierno norteamericano liderada por el vicepresidente Joe Biden para acelerar el camino hacia la cura del cáncer. Paralelamente, se celebrarán varias reuniones en todo el país con el mismo objetivo. Biden -cuyo hijo murió de un tumor cerebral en 2015- trabaja con...

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[Editor’s Note: Because Richard was diagnosed so late in life, the focus of his blog and subsequent research topics does not include information on stem cell transplantation. Instead, Richard focuses his well-honed research skills on therapies that are more closely associated with age-related risk factors and subsequent treatments.] I thought I had an active healthy life, and I was surprised and shocked when I was diagnosed with multiple myeloma. My entire career was spent in advertising and marketing, mostly as an executive and an owner of my own advertising agency. I suppose, inevitably, I developed skills in research and communications....

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Después del éxito de la jornada Music 4 Cancer Tribute, organizada en Barcelona para recoger fondos para la app Xemio, la Fundación ISYS sigue trabajando para avanzar en la construcción de la aplicación. Se trata de una app para el móvil o la tableta para acompañar a las mujeres con cáncer de mama durante la quimioterapia. La app, en proceso de construcción, incluirá la descripción de decenas de efectos secundarios que pueden afectar a las pacientes e informará de si sus síntomas son "normales", es decir, habituales en las pacientes que reciben tratamiento, o si por el contrario es recomendable acudir al médico. "La...

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The development of new drugs is essential in the battle against cancer. With new drugs we have been able to beat certain cancers if diagnosed at an early stage. But it's not just about new medicines. The quality of life of patients living  cancer it's as important. Of course patients want to be cured, but living with a good quality of life is essential. Supportive care in cancer is the prevention and management of the adverse effects of cancer and its treatment across the cancer continuum. This includes management of physical and psychological symptoms and side effects from diagnosis through treatment...

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People often see the birth of a child, marriages, graduations and other life events as milestones and points of reflection. For those of us who have cancer, the day we received our diagnosis with the big “C” is likely one of those. In that context, my CLL was discovered about 40 months ago and confirmed almost three years ago to the day. Nobody wants or wishes to have cancer. But to give away the punch line of this blog, living with CLL under watch and wait has only reinforced that I am the luckiest guy around. Yeah, Pollyannaish, but the...

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[Editor’s note: This blog was written by Patient Power staff member, Sheryl McIntire, on behalf of the Kearney Family]. Which is more difficult, being diagnosed with cancer or being told your child has cancer? This was the question I mulled over on my drive to visit the Kearney family at Seattle Children’s Hospital. I had plenty of time to consider my answer since a 55-minute drive stretched out into 2 hours due to a 6-mile backup on the interstate. I drive a Saturn Sky turbo deuce coup, so I’m not complaining. But alone with my thoughts, I tried to recall...

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[Editor's Note: Over the years Patient Power has heard from many patients and care partners. With our ongoing “Where are they now” campaign, we get an opportunity to check in and hear updates from Patient Power's amazing community members. Suzanne shares with us her latest news. For previous conversations and blogs with Suzanne, click the link(s) below.]  The Emotional Toll of a Hodgkin Lymphoma Diagnosis How to Cope Emotionally With Relapsed/Refractory Hodgkin Lymphoma How to Cope With Second-Line Hodgkin Lymphoma Treatments How to Talk About It When Hodgkin Lymphoma Comes Back Money Matters: Paying for Treatment When Hodgkin Lymphoma Returns Advice for Coping...

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