[Editor’s Note: This blog was reprinted with permission by the author]. Yesterday was a traditional day of celebration as it was my birthday. But in my eyes, the importance of my birthday has now been superseded by today’s anniversary. Three years ago today, the day after my birthday, I was diagnosed with cancer. While my birthday measures the days since I came into this world, I now feel a greater sense of celebration when this new milestone of survival passes by. Three years ago, my life, as I knew it, spun off on a terrible tangent. I was thrust into...

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Sin duda, el cáncer es una enfermedad que conlleva un importante estigma. Para luchar contra él, hemos organizado un Tweetchat (debate en Twitter) junto con nuestra amigas de Asaco (Asociación de Afectadas por el Cáncer de Ovario). Hablaremos del por qué de la estigmatización del cáncer y cómo podemos ayudar a normalizar esta enfermedad para que los pacientes no se sientan mal. Será el próximo jueves 26 de mayo a las 18h y contaremos con la oncóloga Diana Alonso, autora del libro "Nosotras lo valemos". El hashtag será ?#?CáncerSinEstigma? . Para participar sólo tenéis que conectaros a Twitter a la hora indicada y poner...

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A new friend of mine from online calls herself “Pain Warrior’s Code” (or @PainWarriorCode on Twitter). Her bio reads: “A pain warrior who had hit rock bottom, got up & decided to give hope to other pain warriors. I’ll fight beside you.” I remembered those words one day as I was struggling to write this article on ET Frustrations about “support.” Stopping to take a break, I went on her Twitter page, and she’d just posted this tweet: “Anyone ever have those moments when family members say something really inconsiderate regarding your illness? How do you cope?” Seeing that stopped...

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Entrepreneurs, investors, healthcare professionals, e-Patients… Over 500 professionals involved in digital health gathered last week in Barcelona to attend Health 2.0 Europe, on the second year of the event held in Barcelona. Local entities like Mobile World Capital, Biocat and AQUAS were involved in the organisation of the event and held parallel educational tracks. Innovative surgeon Rafael Grossmann highlighted the spirit of the congress: “We have the responsibility to use technology to deliver a better care”. Rafael Grossmann during his keynote at Health 2.0 Europe. Grossman, acknowledged for being the first surgeon to use Google glass in the operating room,...

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Emprendedores, inversores, profesionales sanitarios, e-Pacientes… Unos 500 representantes de la salud digital en Europa se juntaron durante tres días en Barcelona en el congreso Health 2.0 Europe, organizado por la compañía del mismo nombre en colaboración con las organizaciones locales Fundación Mobile World Capital, Biocat y AQUAS. La frase del cirujano Rafael Grossmann, uno de los ponentes destacados del congreso, resume bien el espíritu de la reunión: “Tenemos la responsabilidad de usar la tecnología para mejorar la atención sanitaria.” Rafael Grossman durante su charla en Health 2.0 Europe. Grossman –reconocido por ser el primer cirujano en usar las Google Glass-...

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[Editor's Note: Over the years Patient Power has heard from many patients and care partners. With our ongoing “Where are they now” campaign, we get an opportunity to check in and hear updates from Patient Power's amazing community members. Meredith shares with us her latest news. For previous conversations and blogs with Meredith, click the link(s) below.]  The Emotional Toll of a Hodgkin Lymphoma Diagnosis How to Cope Emotionally With Relapsed/Refractory Hodgkin Lymphoma How to Cope With Second-Line Hodgkin Lymphoma Treatments How to Talk About It When Hodgkin Lymphoma Comes Back Money Matters: Paying for Treatment When Hodgkin Lymphoma Returns Advice for Coping...

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May is National Lung Cancer HOPE month. Today, there is a lot more HOPE. I have become more hopeful.  I spent the last weekend at the National ??Hope Summit, with LUNGevity, one of the most well-known lung cancer organizations. I was given the opportunity to tell my story, Jillian's story, to a group of over 100 advocates who are survivors, caregivers, or like me, the voice of a loved one. I was going to start off with who I am: wife, mother, military spouse, volunteer and ending up with who I’ve become—advocate. I thought that with my “Google MD,” “Band-Aids,”...

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My financial advisor and friend, Jeff Ross, has been talking to me about a dessert company in Seattle, our old hometown, where they urge customers to “eat dessert first.” Now, at 65, but still working vigorously, and—as you know—living with two cancers, CLL and myelofibrosis, I’ve been making this my golden rule. We recently moved to San Diego by choice. We’re back from three years in Barcelona, Spain and wanted to be close to aging family members in Southern California and grown children on the West Coast. It’s expensive here! Rents are soaring, and home purchase prices are sky-high. But,...

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I was just looking at my Facebook memories. I love those! I find myself posting things I want to remember to Facebook now so that they will show up in my memories in the future. Am I the only person who does that? Today, in my memories, was a quote from Abe Lincoln. It stirred me enough to consider using it as a topic for my blog entry. Ol’ Abe is credited with saying, “I have found that most people are about as happy as they make their minds up to be.” What do you think? Do you agree? I...

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[Editor's Note: Over the years Patient Power has heard from many patients and care partners. With our ongoing “Where are they now” campaign, we get an opportunity to check in and hear updates from Patient Power's amazing community members. Jamie shares with us her latest news. For previous conversations and blogs with Jamie, click the link(s) below.]  Jamie Pires: Living Well With CML After 11 Years Every morning, my alarm goes off earlier than I need to get up so I can get to the kitchen, plug in my electro-perk pot, slip back into bed, and reset the alarm for 30 minutes...

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