I was just looking at my Facebook memories. I love those! I find myself posting things I want to remember to Facebook now so that they will show up in my memories in the future. Am I the only person who does that? Today, in my memories, was a quote from Abe Lincoln. It stirred me enough to consider using it as a topic for my blog entry. Ol’ Abe is credited with saying, “I have found that most people are about as happy as they make their minds up to be.” What do you think? Do you agree? I...

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[Editor's Note: Over the years Patient Power has heard from many patients and care partners. With our ongoing “Where are they now” campaign, we get an opportunity to check in and hear updates from Patient Power's amazing community members. Jamie shares with us her latest news. For previous conversations and blogs with Jamie, click the link(s) below.]  Jamie Pires: Living Well With CML After 11 Years Every morning, my alarm goes off earlier than I need to get up so I can get to the kitchen, plug in my electro-perk pot, slip back into bed, and reset the alarm for 30 minutes...

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“I have some strange symptoms. I am itching all over, and it is uncomfortable when I urinate.” It was November of 2011, and I was out of town in Missouri when my husband Robert called and told me this. I told him to go to the doctor right away. I had never heard of such symptoms, but my guess was that he had a urinary tract infection and needed antibiotics right away. Robert went to our internist in Plano, Texas and, fearing he had a gall stone, he ordered blood tests and a sonogram. Robert called me to tell me...

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After a long day of work, it was well after 5 PM, and I needed to be at my regular training session by 6:30. I started shuffling around the house getting ready including gathering the water bottles, hydration drinks, energy bars, and all the other required gear together. By 5:30, the car is packed, bike is strapped on, and I am winding my way through traffic. I turned on the radio and listened to a few songs. When I got close to the training studio, Bob Dylan’s “Shelter from the Storm” started playing. “...I was burned out from exhaustion, ….Come...

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"Ser donante de médula te hace muy especial, con tu donación puedes dar vida a otra persona". Así nos lo explicaba Marteen Weijden, que superó una leucemia aguda con un trasplante de médula ósea gracias a que alguien, algún día, decidió ser donante de médula. También salvó su vida Pilar, valenciana, gracias a que una madre italiana decidió donar el cordón umbilical de su recién nacido. Las células madre de la sangre de cordón hicieron posible la curación de Pilar. Ahora ella tiene dos hijos: "El gesto de esa madre permitió abrió la vida a tres personas", explica. Estas y otras...

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The other evening, Esther and I had a chat with a friend who is a leading researcher in a neuroscience field. I started asking him about the business side of trials and the relationship between sponsors (usually drug companies), investigators (prominent physicians) and patients. There are some behind-the-scenes issues that are important for you to think about when and if you consider participating in a clinical trial. Note: I am a big fan of patients considering trials as I believe the two that I have participated in have greatly lengthened my life. Okay, let’s get into the nitty gritty: No...

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There was a period of about two years that my husband and I were focused almost solely on starting our family. Twenty-two months after our son was born, I was pregnant with our second child. Two pregnancies in less than two years meant a lot of doctor appointments—prenatal checkups, followed by sick and well-visit appointments for my newborn, followed by another round of prenatal appointments. At times, it felt like I was either at a doctor’s appointment or scheduling the next one. Thankfully, both pregnancies were successful, and both of our babies were healthy. A few months after bringing home...

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Springtime makes me think of renewal—not just of the seasons—but of all things. It is difficult to be fully present in the springtime without breathing in the feeling that something wonderful is about to happen: as the dull of winter turns over to a beautiful hue of green with bursts of color and the sky shines with extended excitement and light, the reverie of this new season sneaks up upon us and allows us to begin again. It gives us a choice, to come out of the dark of winter and face the light of spring. This is how it...

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Hello, my name is Elizabeth, and at age 40 I was diagnosed with essential thrombocytosis (ET). I’ve been asked by Patient Power to guest post on my ET frustrations. We hope this will help you deal with frustrations that you may also be feeling, or help you better understand something that someone you love is dealing with. Frustrations with ET, for me, have been in a lot of areas. What I feel is the most frustrating is the fact that ET, and MPNs (myeloproliferative neoplasms) in general, aren’t understood very well, even by the experts. On my illness journey, this...

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For anyone who lives a fast-paced life, it is easy to sometimes forget our need to take care of ourselves and to listen to our bodies. It is easy to get distracted from the importance of a healthy lifestyle when it seems there is so much to be done. But it isn’t always so easy to keep moving. The number one thing that can affect one’s ability to continue on is their health. A health battle can range from something as simple as a common cold keeping you from a weekend getaway to an injury that makes travel more difficult,...

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