There was a period of about two years that my husband and I were focused almost solely on starting our family. Twenty-two months after our son was born, I was pregnant with our second child. Two pregnancies in less than two years meant a lot of doctor appointments—prenatal checkups, followed by sick and well-visit appointments for my newborn, followed by another round of prenatal appointments. At times, it felt like I was either at a doctor’s appointment or scheduling the next one. Thankfully, both pregnancies were successful, and both of our babies were healthy. A few months after bringing home...

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Springtime makes me think of renewal—not just of the seasons—but of all things. It is difficult to be fully present in the springtime without breathing in the feeling that something wonderful is about to happen: as the dull of winter turns over to a beautiful hue of green with bursts of color and the sky shines with extended excitement and light, the reverie of this new season sneaks up upon us and allows us to begin again. It gives us a choice, to come out of the dark of winter and face the light of spring. This is how it...

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Hello, my name is Elizabeth, and at age 40 I was diagnosed with essential thrombocytosis (ET). I’ve been asked by Patient Power to guest post on my ET frustrations. We hope this will help you deal with frustrations that you may also be feeling, or help you better understand something that someone you love is dealing with. Frustrations with ET, for me, have been in a lot of areas. What I feel is the most frustrating is the fact that ET, and MPNs (myeloproliferative neoplasms) in general, aren’t understood very well, even by the experts. On my illness journey, this...

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For anyone who lives a fast-paced life, it is easy to sometimes forget our need to take care of ourselves and to listen to our bodies. It is easy to get distracted from the importance of a healthy lifestyle when it seems there is so much to be done. But it isn’t always so easy to keep moving. The number one thing that can affect one’s ability to continue on is their health. A health battle can range from something as simple as a common cold keeping you from a weekend getaway to an injury that makes travel more difficult,...

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"Study nature. Love nature. Stay close to nature. It will never fail you." --Frank Lloyd Wright Since I have been surviving cancer, I have really, really enjoyed visiting the gardens at the Dallas Arboretum. Whether I go with friends or by myself, I am filled with gratitude and peace while I am there. I consider my enjoyment of the gardens as one of the blessings of having cancer, because unfortunately, before being diagnosed with cancer, I never took the time to go. In Dallas, we don’t have many lovely natural streams where a person can go sit and listen to...

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Empoderar a las personas con enfermedades crónicas, con especial acento en el cáncer, es el objetivo de la Patient Empowerment Foundation, nueva fundación europea creada por Patient Power con el objetivo de hacer llegar el conocimiento sobre su enfermedad a los pacientes europeos, principalmente de cáncer, aunque también de otras condiciones de tipo crónico. Aunque la Fundación es de nueva creación, Patient Power lleva años trabajando en el empoderamiento de los pacientes usando principalmente herramientas digitales. En Estados Unidos aglutina una comunidad de miles de pacientes por su trabajo realizado desde hace años, mientras que Patient Power Europe –que difunde...

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"Estoy haciendo muchas cosas que no haría si no tuviera cáncer, como viajar a países lejanos. Algunos dicen que me tomo la enfermedad demasiado a la ligera, pero me considero afortunada de tener este tipo de cáncer. La leucemia linfática crónica es muy manejable y con los nuevos fármacos que vienen será muy controlable. No creo que me vaya a morir de la enfermedad". Esta mujer tan positiva y luminosa es Núria Marin, que fue diagnosticada hace tres años con este tipo de leucemia en un análisis de sangre para determinar la causa de unas diarreas que tenía desde hacía tiempo....

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We all have our stories, our “How did I end up here?” Mine began in June 2007 when I had an odd-looking mole surgically removed from my right shoulder. The pathology report came back citing stage IA melanoma with a recommendation for a wider margin excision. Before the original stitches had healed, I was under the knife again. Caught early. Whew! 97 percent cure rate. My cancer worries were relegated to the cobweb-laden corners of my mind. Sure, yes, I was diligent about seeing my doctor every six months for a skin and general wellness check. In the meantime, I...

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There is never an easy way to find out you have cancer. No matter how you prepare yourself in the days or weeks or months that lead up to your diagnosis, the words cut to the core of everything you have ever known and leave a raw-edged wound you believe, with all of your new-found fear and uncertainty, will never heal. It was on a day exactly like this, when the words from my doctor’s mouth morphed into the walls around me, and my ability to hear and listen and understand was paralyzed by my fear. I was terrified of...

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I am an animal lover. I always have been. When I was a little girl, my mother would let us have cats but not dogs. I remember frequently hugging a stuffed poodle and praying that God would turn it into a real dog. As soon as I was on my own, I got a dog or two or three! I’ve had at least one my entire adult life. Usually, I have had two or more. They complete me. I suspect many of you know exactly what I mean. I currently have two dogs: Cotton, an American Eskimo dog (Eskie), and...

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Page last updated on March 7, 2017