Each year, more than 40,000 Americans are diagnosed with pancreatic cancer and 95 percent die within 12 months. Many victims have been celebrities such as Steve Jobs, Patrick Swayze, Jack Benny and Michael Landon. Because survival is limited, and treatment options are few and often ineffective, patients and their families often regard pancreatic cancer as a death sentence. Too often the disease also brings hopelessness and despair. I am a two-time survivor of pancreatic adenocarcinoma. Surviving a second bout is rare, and no statistics are kept. I have ridden the emotional rollercoaster frequently encountered over the long course of treatments...

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                Andrew, on location at MD Anderson Cancer Center in Houston, Texas, takes a few minutes to discuss his ongoing battle with both CLL and MF, and explains how participation in clinical trials has educated him—as well as others—on these two cancers.  That education has given him a sense of control and hope for his future. Please remember the opinions expressed on Patient Power are not necessarily the views of our sponsors, contributors, partners or Patient Power. Our discussions are not a substitute for seeking medical advice or care from your own doctor....

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[Editor’s note: In this blog, Denise Rodgers shares the lifestyle approaches that have helped her feel her best. Patient Power recommends that readers please consult first with their doctor before incorporating any lifestyle changes.] My name is Denise Rodgers, and I was diagnosed with CLL in July 2001. I had my personal disaster just a little more than two months prior to the infamous September 11. And for a while I took my personal news just as hard. I felt doomed, certain I was not to live a normal life span at best; worried that my end was near and...

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Doctors 2.0 & You, one of the greatest digital health events in Europe, is organising a tweetchat on patient empowerment around the world with Andrew Schorr (@AndrewSchorr), 2 times cancer survivor (CLL and myelofibrosis) and founder of Patient Power and the Patient Empowerment Network (PEF). The tweetchat will be led by Andrew and Denise Silber (@Health20Paris), digital health pioneer and founder of Doctors 2.0. Denise is one of the board members of PEF and she has shared with our community her thoughts about the digitalisation of healthcare (see her interviews in English and French). Andrew, who last June spoke at...

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My name is Ruth Schorr, and my parents, Andrew and Esther Schorr, are the founders of Patient Power. I have grown up around Patient Power and its amazing team, and I have also grown up with cancer as a prevalent part of my life. Growing up with a parent who has been diagnosed with cancer isn’t easy. You are affected by the situation directly, although you are not always old enough or emotionally ready to process the situation at hand. In my case, my father was diagnosed with chronic lymphocytic leukemia (CLL) when I was only 4 years old. At that...

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¿Habéis probado alguna aplicación móbil de salud? Son apps destinadas a mejorar nuestra salud de varias formas: motivándonos a hacer ejercicio o a mejorar nuestra dieta o bien ayudándonos a controlar y hacer un seguiminento de multitud de enfermedades, como pueden ser la diabetes, la hipertensión arterial, la depresión... También existen apps enfocadas al diagnóstico, como las dermatológicas. Pues bien, existen miles de apps en el mercado, pero no todas son de fiar. Las hay que tienen intereses claramente comerciales y que no aportan beneficios al usuario, mientras que otras pueden incluso poner en riesgo la salud del usuario. Imaginaros...

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When setting out on any new adventure, part of the fun is not knowing what you will find around the next corner. Will it be a postcard picture perfect breathtaking cliff top vista? Or will it be just another turn on an otherwise twisty and ongoing road? Will the people you meet be kind and welcoming along the way? Or will they make you want to pick up and move on? TV shows like “Route 66” and “Star Trek” come to mind when contemplating this. In the former, two guys drive a really cool corvette to some new destination along...

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What is it about lung cancer? I know it’s that elephant in the room again, still. From time to time, I get that knot in my stomach when I think about Jillian, especially now, when there is so much going on in this lung cancer community. And it hits me…with that OMG feeling that punches you in the stomach. Jillian was diagnosed at one cancer center but chose to receive treatment elsewhere. So many times I found myself questioning the testing process, the diagnosis and the prognosis. Should I have been like a CSI investigator and watch the chain of...

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We’ve just recorded Patient Café discussion #6 for people living with CLL. Even before all the discussions have been posted, the content has been viewed more than 6,000 times as people “drop in” for a cup of education, empowerment and community. I am so gratified we came up with this innovative and convenient way for patients to connect and sound off and kudos to discussion leader Carol Preston, a CLL patient herself, and the Patient Empowerment Network for acquiring funding. I hope we can produce many more in CLL and then other conditions we cover. I envision many cafés humming...

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It took me a long time to admit to others and myself that I was a cancer patient. But after that, it took an even longer time to see myself as anything else. I'm trying to transition back into normality. Just a couple years back, I was enjoying the prime life: attending college, living on my own, paying my own bills for the first time, and in charge of my own life. I was in a constant high state with all the freedom I had—and loving the responsibilities. January 2014, my senior year and last semester, I was diagnosed with...

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Page last updated on March 7, 2017