Check out this really powerful and well-made video from the CanCertainty team out in Canada campaigning  for fair and equal cancer treatments for Canadians. They’re saying that cancer patients should not be systematically discriminated against simply because the cancer medicine that is right for them, and that they urgently need, goes in the mouth as an oral drug instead of the arm intravenously. “Universal funding of oral drugs is the right thing to do.”  Just so!  

Read Blog

Over the next couple of weeks I will be traveling thousands of miles on long-distance flights to connect with other patients, in person. It can be exhausting but it’s energizing too. Like any of us with a compromised immune system (I keep getting chest or sinus infections!) there can be a price to pay for hours in a transatlantic or transcontinental jet, but I continue to think it’s worth it. My personal mission is to help give voice to patients and facilitate the dialogue between patients and medical experts. “Experts” come in many types and their personal stories can be...

Read Blog

I am writing this from a conference of pharmaceutical executives meeting in my hometown of Barcelona, Spain. I was a speaker here at the Eye for Pharma conference trying to drive home the point that the pharmaceutical industry (“pharma”) needs to support, without control, ongoing education programs for patients. I hope the message begins to sink in. For many years “pharma” has spent billions on educating top physicians and researchers, people they call “key opinion leaders” or “KOLs.” These are the people other doctors listen to for guidance. Now it’s time to recognize an increasing number of patients are leaders...

Read Blog

I have written here many times of my excitement about progress in treating blood-related cancers, so called “liquid tumors.” And. like me, many of our visitors have one of them. But many men also worries about prostate cancer. I am happy to report that here, too, there’s a lot of progress in an unfolding story. As any doctor will tell you, most men will die WITH prostate cancer rather than FROM it. Autopsies show it in many older men. But, of course, some men get news that their PSA is elevated or the doctor feels something on a physical exam. What can follow is now,...

Read Blog

More than 800 people from around Europe who work with pharmaceutical companies gather in Barcelona March 18 and 19. Among the speakers is Patient Power founder and two-time cancer survivor Andrew Schorr, who makes his home in Barcelona. Andrew’s message to pharma: Patients today are increasingly online and searching weekly – even daily – for credible, expert information about their condition and for tools to help them have em powered discussions with their doctor. Andrew’s prescription to pharma: spend less on projects and web sites you control, that may have limited credibility, and provide more support to independent channels of...

Read Blog

I have always admired ESPN sports anchor Stuart Scott, 48, of West Hartford, Connecticut. Maybe it’s because he’s originally from North Carolina, where I lived for 12 years. Maybe it’s because we both attended and graduated from UNC Chapel Hill. Or maybe it’s because both of our broadcasting careers got a start at the student radio station on campus. Lately, we’ve had something else in common: recurring bouts of cancer. As I have mentioned here, I was diagnosed with CLL leukemia in 1996 and have had a long remission. In 2011 a second cancer, myelofibrosis was diagnosed. I am doing...

Read Blog

I have always admired ESPN sports anchor Stuart Scott, 48, of West Hartford, Connecticut. Maybe it’s because he’s originally from North Carolina, where I lived for 12 years. Maybe it’s because we both attended and graduated from UNC Chapel Hill. Or maybe it’s because both of our broadcasting careers got a start at the student radio station on campus. Lately, we’ve had something else in common: recurring bouts of cancer. As I have mentioned here, I was diagnosed with CLL leukemia in 1996 and have had a long remission. In 2011 a second cancer, myelofibrosis was diagnosed. I am doing...

Read Blog

I have written here many times of my excitement about progress in treating blood-related cancers, so called “liquid tumors.” And. like me, many of our visitors have one of them. But many men also worries about prostate cancer. I am happy to report that here, too, there’s a lot of progress in an unfolding story. As any doctor will tell you, most men will die WITH prostate cancer rather than FROM it. Autopsies show it in many older men. But, of course, some men get news that their PSA is elevated or the doctor feels something on a physical exam. What can follow is now,...

Read Blog

Dear Tom (I am calling you that instead of “Mr. Brokaw" because, like millions of Americans, I feel like I know you personally), I read that you have announced you have cancer, multiple myeloma, and that you and your doctors are optimistic. At 74, no one knows how much time they have left, but I am writing to tell you as a two-time cancer survivor myself, and a medical journalist who covers myeloma, that this is truly a “good time” to have this cancer. It was a lot tougher for your peer, Peter Jennings of ABC, who died of lung...

Read Blog

Dear Tom (I am calling you that instead of “Mr. Brokaw” because, like millions of Americans, I feel like I know you personally), I read that you have announced you have cancer, multiple myeloma, and that you and your doctors are optimistic. At 74, no one knows how much time they have left, but I am writing to tell you as a two-time cancer survivor myself, and a medical journalist who covers myeloma, that this is truly a “good time” to have this cancer. It was a lot tougher for your peer, Peter Jennings of ABC, who died of lung...

Read Blog
April 2014
S M T W T F S
< Mar   May
  1 2 3 4 5
6 7 8 9 10 11 12
13 14 15 16 17 18 19
20 21 22 23 24 25 26
27 28 29 30  

Archive

more reset

Page last updated on March 7, 2017