I have now been in two clinical trials. The first was for chronic lymphocytic leukemia (CLL) in 2000 and 2001. The second has been since August 2011 for blood clots in my legs or “deep vein thrombosis.” I wanted to share my experiences with you in the hope more people will consider entering a clinical trial. The CLL trial was a phase II trial. It was only at one medical center, MD Anderson Cancer Center in Houston. The researchers were trying to figure out the best dose and schedule as they combined a new targeted therapy with established chemotherapy drugs....

Read Blog

It’s often said that most men will die with prostate cancer rather than from it. Autopsies of older men show it’s there even though it never created a problem. But when men are younger prostate cancer is cause for concern. And debate about the prostate-specific antigen (PSA) test has not helped. The test’s validity as a screening tool has been widely challenged as has the rush to surgery for many men. That’s why several leading medical centers are urging many men to have “active surveillance” and, even if prostate cancer cells have been identified in the prostate gland, nothing is...

Read Blog

This month I was honored to be the master of ceremonies at the Personalized Medicine World Conference in Silicon Valley, California. for the second time. About 850 scientists, venture capitalists and physicians attended and most all of them, have many more letters after their name for advanced degrees than I have! These smart folks have been building the technology and processes to enable all of us to receive preventive medicine and treatments that, when needed, are an exact match for our individual biology. Yes, we humans are largely the same, genetically speaking, but those subtle differences can make all the...

Read Blog

It’s been six months since a warm, swollen right calf sent me to the emergency room at midnight. Ultrasound showed I had a blog clot in my right leg and an asymptomatic one above the knee in my left. Everyone said it was a good thing I sought care because the complication of a pulmonary embolism – when the clot moves “north,” is a really bad – even fatal – event. The whole experience of having a clot and then being hospitalized for a day and a half was surreal for me. Later, I found out it wasn’t just that...

Read Blog

We talk a lot about cancer on Patient Power. There’s plenty to talk about. But millions more people have a totally different health problem - they have a sick heart. Beyond helping a damaged heart muscle pump as well as it can, even at a diminished level, what if the cells of the beating heart could be repaired? What if healthy tissue could be regrown either in a lab or in a patient’s body so that the squeezing ability of the heart could get back to 100 percent? It sounds like science fiction, right? Maybe not. I love talking to...

Read Blog

  I have just returned from a terrific family trip to Spain and Portugal. Coming from Seattle, where it can be stormy in winter, I am happy to tell you we had sunny weather throughout. As a cancer survivor who tends to worry about the late effects of treatment from years ago or being diagnosed with another cancer, each new day was a reminder to make every day special. And they were.  At this time of year so many people reflect on the past year and the coming one. I marvel at the past year here. We published The Web-Savvy...

Read Blog

As Patient Power and others continue to publish news from the American Society of Hematology conference last week, what news should patients be excited about? What was the atmosphere like? Are the experts studying these diseases optimistic? Here's my take...

Read Blog

Many of you know about, or have read, the highly recommended book, Tuesdays With Morrie. I am reading it now with my 14-year-old son, Eitan, as part of an assignment for his ninth grade English class. Morrie, a college professor in Boston, was dying, withering away with ALS. Each Tuesday he would have a visit from one of his favorite former students, Mitch, a journalist from Detroit. Morrie, a man in his 70’s, mused about many things including the meaning of life and the inevitability of death. He was prepared for his end. The other day I spoke about that...

Read Blog

Go south from the “O.C.” – Orange County, California, where the sun shines on the beaches and girls in bikinis play volleyball, and you find yourself in San Diego, land of the surfers in the shadow of a large U.S. Navy base. It’s also home to a large convention center right by the Pacific. And that’s where 30,000 blood doctors and researchers from around the world are about to converge for the annual American Society of Hematology (ASH) annual meeting. Beginning December 10, they’ll absorb study data for blood related cancers like leukemia and lymphoma and blood conditions like sickle...

Read Blog

First, to our U.S. visitors - Happy Thanksgiving! To our friends around the world, we send all the best to you too! This tends to be a time of reflection so I am heavy into that right now. First, as a 15-year-leukemia survivor, I am thankful every day I can live a full life. And, as the founder of Patient Power, I am thankful to you for visiting our site, listening to and watching our programs, and for telling us that, for the most part, we are making a positive difference in your life or that of a loved one...

Read Blog
February 2012
S M T W T F S
< Jan   Mar
  1 2 3 4
5 6 7 8 9 10 11
12 13 14 15 16 17 18
19 20 21 22 23 24 25
26 27 28 29  

Archive

more reset

Page last updated on March 7, 2017