I didn’t know Elizabeth Edwards when we were both students at The University of North Carolina at Chapel Hill. But I certainly got to know her from a distance years later as she campaigned for her husband, John, and then publically spoke about her fight against advanced breast cancer that had spread. As she told an interviewer in 2007: "When I was first diagnosed, I was going to beat this. I was going to be the champion of cancer. And I don't have that feeling now. The cancer will eventually kill me. It's going to win this fight.” As you...

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Exciting Time with World Renowned Experts from Patient Power® on Vimeo.

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I am really excited about serving as the emcee for next week’s Personalized Medicine World Conference in Mountain View, California near San Francisco. I also will be the moderator of a panel discussion on patient empowerment. As I prepare, I am interviewing the panelists and their stories are very inspiring. One panelist is Bonnie Addario. Bonnie had been an oil company executive in the Bay Area. She began having chest pain. Was it her heart? No. Was it a nerve problem? No. Doctors were stumped. Bonnie was frustrated, but she was also a woman of action – a “powerful patient.”...

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You are an individual right? To your mom and dad you are/were like no other. Hopefully your family and friends continue to see you as one-of-a-kind. Had you considered your doctor should see you that way too? Not as yet another one with diabetes, or heart disease, or cancer, but as a singular human being with biology that may be different from even the next person through the door with the same diagnosis. This is the age of “personalized medicine” and it will accelerate in 2011. It is our responsibility as patients to ensure the power of this concept is...

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Without having one myself, I am pretty familiar with bone marrow transplant as a potential curative and lifesaving approach. After all, it was invented in my hometown of Seattle and I’ve met Dr. Donall Thomas who won a Nobel prize for developing the approach. I have met people who have been given a new lease on life because of transplant, I’ve known people who have died when transplant did not work for them or complications overwhelmed them, and I know many doctors who are transplant experts. I know how finding a perfect match can be hard – especially when the...

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The Bottomline at ASH for Patients from Patient Power® on Vimeo.

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Developments from the American Society of Hematology meeting in Orlando, Florida. A Brighter Path for Treating Patients

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Treating Cancer Better with Reduced Side Effects from Patient Power® on Vimeo.

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Andrew blogs from the first day of the American Society of Hematology's 52nd Annual Meeting in Orlando, Florida, highlighting the day's discussions. Promising Lymphoma News from Patient Power® on Vimeo.

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There’s some confusion out there in the media that “Patient Power” is only about patients “holding hands” and providing emotional support to one another. It’s the warm and fuzzy side of medicine, like sitting at someone’s bedside. That support is terrific. But these days the leadership role of a well intentioned and well informed patient doesn’t stop there. The role includes gathering and disseminating leading-edge, accurate medical information to help others make decisions. Many would argue that is the doctor’s role. And it is. But not exclusively. Today smarter patients are becoming full partners in discussions about their diagnosis, treatment...

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