The television commercials are captivating: How ordinary people - many of them "Real Americans" in Sarah Palin's terms – find themselves with insufficient insurance coverage or no insurance to cover a medical event. There are more than 40 million Americans like this, and it is a situation we have to solve in the near-term. So we at Patient Power have wanted to do our part to promote a dialogue about this in much greater depth than the TV spots. After all, Michael Moore goes on "The Larry King Show," and the AMA has a project "Voices for the Uninsured," and...

Read Blog

When I was diagnosed with leukemia in 1996 I knew nothing about the disease except that it was deadly. I also didn't know anyone with the condition, chronic lymphocytic leukemia. So, with help from a neighbor, I went on the Internet, found the right listerv on www.acor.org, and started corresponding with people with my condition around the country. A couple of times I spoke on the phone with some of them and that was great. Before long, a group of us posted photos so we could get a handle on what we all looked like and admire each other's families....

Read Blog

It started on the flight from Seattle to Santa Barbara, California the other morning. The woman sitting next to me shared that she was flying down to visit her ailing 88-year-old father who was being admitted to hospice. Up until recently, she explained, he was a very vibrant senior – a former IRS accounting expert who "retired" only to teach college and also to celebrate health every morning with his buddies at the gym. Then came early stage colon cancer and agreement he'd have minimally invasive surgery to get rid of it. That's when things turned "south." From a casual...

Read Blog

Let me start by saying a diagnosis of breast cancer can be terrifying. But so is a diagnosis of lung cancer, or leukemia, or multiple sclerosis. So here we are in October again – Breast Cancer Awareness Month – and the world is turning pink. Pink ribbons, pink yogurt, and this summer we had pink baseball bats. I am not critical of the power of breast cancer awareness nor the marketing pile-on by corporate America. But I grieve that most other conditions are left in the dust. As I was reminded in our webcast last week on advanced lung cancer,...

Read Blog

Swirling around the great debates about our economy, and real worries and financial turmoil, are the very basic issues of individuals in America getting the healthcare they need – and deserve. This was brought home to me yet again this past Saturday evening when, as a local board member of the Leukemia and Lymphoma Society, I attended their "Light the Night" walk in Tacoma, Washington. That's where I met 30-year-old Jamie Johnston. Jamie is a mother of a second-grade girl and a stay-at-home mom. She is also a 2-year AML leukemia survivor who had no health insurance. It all started...

Read Blog

70,000 American young adults are diagnosed with cancer each year. For many, it took them quite awhile to get an accurate diagnosis since the first doctor they saw pooh-poohed the idea that a young adult could even have cancer. Too often they were told it was a sports injury…or the flu…or a nerve problem..or a worry that was "in their head." Possible, even likely, many times, but in their case not at all true. And the delay in diagnosis can be life-threatening. To add insult to injury, many young adults, when offered treatment do not hear about all the issues...

Read Blog

Read Blog

The phone rang this morning on our new Patient Power Hotline (877-232-5445). On the line was a worried woman from Lawton, Oklahoma. She'd been diagnosed with malignant melanoma that had spread to her lymph nodes. She was waiting for more test results to learn how far the spread had gone. She had listened to our recent webcast with Dr. Patrick Hwu from M. D. Anderson Cancer Center in Houston and had made some calls to get to us, the producers. First I told the woman I was not a physician but rather a patient. My advice was do not proceed...

Read Blog

Most doctors are well meaning. They do not deliberately make mistakes or have their patients suffer. But within the past 11 days I suffered when two internists "got it wrong." It took a third doctor, a cancer specialist, to get it right and ease my pain. The story has lessons for you. It begins with a flight from Seattle to Detroit about 10 days ago. Toward the end of the long journey I had a slight sore throat on the right side. No big deal. Over the next two days, as I helped my oldest child, son Ari, get settled...

Read Blog

I am writing this as the calm of the Labor Day holiday is about to fade in the rear view mirror. All too soon we will be sprinting into Fall with no respite until Thanksgiving. After a refreshing summer, it is time to get down to business. Later this week I will be in Houston for the annual meeting of M.D. Anderson's "Anderson Network" of survivors. I am honored they have asked me to participate in several events. I am eager to meet in person some of the inspiring patient-guests who have joined me on M.D. Anderson webcasts. Thinking about...

Read Blog
October 2008
S M T W T F S
< Sep   Nov
  1 2 3 4
5 6 7 8 9 10 11
12 13 14 15 16 17 18
19 20 21 22 23 24 25
26 27 28 29 30 31  

Archive

more reset

Page last updated on March 7, 2017