I don’t mean to be short with people but I try to be very efficient with my time. Too often I do not get to smell the roses or just have an idle chat with a friend because there’s so much to do and so little time. Part of it is having three young children, part of it is having a demanding career. But what takes a lot of time are doctors, medical details, getting prescriptions, making appointments, dealing with symptoms, and trying to get medical bills paid correctly.
A few years ago these were my own worries with my diagnosis of CLL. That’s in a deep remission now and is less of a concern. But in the past couple of years it has hit me hard with the demands of my daughter’s fairly rare stomach inflammation problem and the psychological overlay that can go with a nagging chronic illness.

When a kid has a health problem, time flies by as you:

  • Try to comfort the child and get them the care they need
  • Communicate with their school
  • Get them extra school resources and maybe a tutor to keep up
  • Communicate with family and friends
  • Get the right medicines and research other treatments that might be better
  • Plan what to do next
  • Find an activity to lower your own stress level so you can go on
I know there’s even more to it, but this is a start of a list that could be much longer.

The point is, when you or a loved one has a serious health concern you have so little time for the things other people get to do. When things are critical at my house I get angry about it. I want to curl up with a book instead of collapsing at the end of the day. I want to hang out at the neighborhood coffee shop instead of passing through like a tornado. I want to just walk in the woods instead of having a run timed by my stopwatch to make sure I am back in time.

I know I am not alone and I will get over being angry. I also think there’s a good chance my health will stay stable and not steal time, and my daughter’s health will continue to improve. So brighter skies are ahead. But when it’s bad, it’s bad and the clock seems to be my enemy.

–Andrew