Edmund .


Patient Advocate

Edmund was diagnosed with polycythemia vera (PV) in the late 1990s after a routine physical showed his blood counts to be way off. At the time, his symptoms were fatigue and itching. Edmund was referred to a hematologist at Stanford Cancer Institute, and he was treated with regular phlebotomies and hydroxyurea for a long period of time. Around five years ago, his condition progressed to myelofibrosis (MF). Edmund has been in a clinical trial for the past three years and has limited symptoms of fatigue and headaches. Today he is doing well and is closely monitored by Dr. Jason Gotlib. Edmund is in his mid-50s and is married with two children.