Ask the Expert "Live" | MPNs

October 30, 2018

An audience of MPN patients and their caregivers joined us online as MPN expert Dr. Josepha Scandura of Weill Cornell Medicine answered audience questions.

We are also planning events in other cities. If you haven’t already, please sign up for email updates, so we can alert you when important and inspiring videos become available and when upcoming webinars and town meetings are scheduled.

What Does “Thick Blood” Mean? Mitigating Risk for Stroke and Clots in PV Patients

What does it mean that my blood is too thick? MPN expert Dr. Joseph Scandura describes how patients’ blood vessels are impacted, short- and long-term risks, and available treatments.


What Is the Significance of an Allele Burden? An Expert Explains Abnormal Genes

Why is understanding an MPN patient’s allele burden important? How is it assessed? Tune in to hear MPN expert Dr. Joseph Scandura explain.


What Do Mutations Indicate About Disease Behavior in MPNs?

Can genetic mutations can predict how aggressive MPNs will be or indicate a poor treatment response? Tune in to hear MPN expert Dr. Joseph Scandura explain mutational status.


Managing MPN Symptoms: What Can Be Done to Help With Bone Pain?

MPN expert Dr. Joseph Scandura explains causes of bone pain in MPN patients and shares strategies to help alleviate the symptom. Watch now to find out more.


How Do Stem Cell Transplants Work to Treat Myelofibrosis?

How does a stem cell transplant cure myelofibrosis? Watch as MPN expert Dr. Joseph Scandura explains transplant effects level and potential treatment side effects.


What Is the Impact of Iron Deficiency on MPN Patients?

As part of our Ask the Expert series, MPN expert Dr. Joseph Scandura from Weill Cornell Medicine responds to questions about anemia as it relates to polycythemia vera.


Understanding MPN Treatment Goals: What Is the Purpose of Phlebotomy?

Watch as Dr. Joseph Scandura responds to the questions, “What are the goals of phlebotomy, and when do you know it’s time to switch from phlebotomy to medication?”


Can Mutations Change Over Time in MPN Patients?

A Patient Power community member wants to know, “Is it common for mutations to change and what does it mean?” Tune in to hear expert Dr. Joseph Scandura provide an explanation as to why tests may result in JAK2V617F and later CALR.


Host & Guests

Host, Patient Power Co-Founder, Two-Time Cancer Survivor and MPN Patient Advocate


Physician Scientist and Associate Professor of Medicine, Scientific Director of the Richard T. Silver, M.D. Myeloproliferative Neoplasms Center

Weill Cornell Medicine

Ask the Expert “Live” | MPNs is a Patient Empowerment Network program produced by Patient Power. We thank Incyte Corporation for their support.

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Page last updated on August 27, 2019