When someone you know is diagnosed with acute lymphoblastic leukemia, the barrage of treatment—chemotherapy, radiation or bone marrow transplants—can convince most people to burrow down and “just get through it.” In 2020, acute lymphoblastic leukemia, or ALL, has a survival rate of 85 percent and rising, so fortunately more and more patients are facing the question: I survived ALL, now what?
We assembled a global panel of survivors to share their stories beyond diagnosis and treatment to help answer that very question. Zoey in Spokane, Washington, and Fabian in Stockholm, Sweden, both found ways to give back to the medical community that supported them through treatment. Dr. Debra Friedman, a pediatric hematology-oncology expert from Nashville, Tennessee, added clarifying insight for families navigating multiple treatment options and shared updates on latest treatments in clinical trials. One of Dr. Friedman’s early patients, and current Patient Power employee, Aaron Poor, hosted the conversation sharing his complications long after treatment ended.
In all of their stories, we hear resilience, tactics for managing uncertainty and loyalty to a thriving community. An ALL diagnosis is serious, as our patients and doctor share in [this video], but there are more resources today and less-intensive therapies on the horizon. As we say at Patient Power, sometimes knowledge is the best medicine. Watch your next dose below.
I Survived Acute Lymphoblastic Leukemia: Now What?
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