Patients as Partners in Personalized Medicine
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Take Our SurveyJamie Heywood, chairman and co-founder of PatientsLikeMe, is a pioneer in online health information. He has invited thousands of patients to answer questions online about their personal health knowing the data is aggregated for drug companies and researchers. Their hope is the knowledge of what patients are really living with, and how medicine affects them, will ensure safer medicines and better support new ones for a new era of personalized medicine. In this thoughtful interview with Andrew Schorr, produced in advance of Jamie’s speech at the 2012 Personalized Medicine World Conference in January, Heywood describes his vision of how collaboration between willing patients and their volunteered data and the latest genomic science can lead to better medicine.
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Jamie Heywood,
Co-founder, PatientsLikeMe
After finding out that his brother, Stephen, had the terminal illness ALS, Jamie Heywood founded the ALS Therapy Development Institute in 1999. ALS TDI is the world’s first non-profit biotechnology company and accelerated research on the disease by hiring scientists to develop treatments outside of academia and for-profit corporations. They were the first to publish research on the safety of using stem...
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