Patient Power® Radio interviews with Medical Experts hosted by Andrew Schorr, America's most empowering patient
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Special Edition

July 15, 2008

Sexuality and the Cancer Patient

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Webcast Webcast

Special Edition Series: Living with PKU

Living Better with PKU

Sponsored through an educational grant from BIOMARIN

Special Edition

Access to Care: Insurance and Reimbursement Support Programs for New PKU Treatments.

Hear the Replay!

Medication for PKU is costly, but there are resources available to help you work with your insurer as well as assistance programs. Find out where to get the financial support you need. Ask questions of experts who counsel families and meet someone they've helped. Click here for replays of the most recent PKU programs.

Guests:
Maria Hardin, Vice President, Patient Services, National Organization for Rare Disorders
Tony Wicks, BioMarin Patient and Physician Support (BPPS) program expert
AnneMarie DiGeorgio, President, Inherited Metabolic Disorders Support Group of Suffolk County

Belkys Prado, R.D., C.S.P., L.D., Metabolic Nutritionist, St. Joseph Children's Hospital of Tampa

Maria Hardin

Maria Hardin
Vice President of Patient Services for the National Organization for Rare Disorders (NORD)

Maria Hardin, serves as Vice President of Patient Services for the National Organization for Rare Disorders (NORD), the primary consumer federation responsible for enactment of the Orphan Drug Act. Ms. Hardin's 21-year tenure at NORD includes oversight of strategic direction and operation of NORD's 38 medication and health insurance co-payment assistance programs. She is frequently invited to serve on industry roundtables to address patient access issues that are an integral part of the drug development process.

Tony Wicks

Tony Wicks
Co-Founder of Premier Source

Tony Wicks is Co-Founder of Premier Source, the organization that administers the BioMarin Physician & Patient Support Program (BPPS). BPPS guides physicians and patients through the process of securing coverage for Kuvan. Premier Source specializes in developing reimbursement and patient / physician support strategies for rare diseases, orphan drugs, and novel therapies. Mr. Wicks has nearly 15 years of experience working in the pharmaceutical and biotech industry. He received a BS in Finance from the University of Illinois Urbana Champaign and an MBA from The Fuqua School of Business at Duke University.

 

Belkys Prado, RD, CSP, LD
Metabolic Nutrition Specialist
St. Joseph's Children's Hospital of Tampa

Belkys Prado, RD, CSP, LD currently serves as a metabolic nutrition specialist at St. Joseph's Children's Hospital of Tampa located in Tampa, Florida. Ms. Prado received her bachelor of science in clinical nutrition from Loma Linda University in Loma Linda, California. She went on to complete her pediatric nutrition residency for dietitians from The Children's Hospital of Philadelphia in Philadelphia, Pennsylvania. She is a Board Certified Specialist in Pediatric Nutrition, American Dietetic Association.

Ms. Prado's work at St. Joseph's Children's Hospital of Tampa includes being the clinic coordinator of the Inherited Metabolic Disorders section. Her responsibilities include nutrition assessment, education of patients and families, and implementing and revising nutrition support plans. Ms. Prado is a current member of the Genetic Metabolic Dietitians International.

How to Listen

(Live from 8:00 pm to 9:00 pm Eastern)

Online: Approximately 1 hour before the program begins, a link to the live stream will appear on this web page.

Phone: Listen over the phone by dialing (877) 774-2465.

Questions: Email questions in advance or during the program to pku@patientpower.info.

Hear the Replay!

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Patient Power is America's most prominent regular series of live talk shows on medical and health issues from the patient's perspective and featuring some of the nation's most credible medical experts and inspiring patients. On weekly radio and daily online from his Seattle studio and on regularly scheduled webcasts Andrew explores in-depth health issues that affect you or someone you care about and helps you make smart decisions that can lead to better health. Listen in and call in and please, tell your friends about Patient Power. There's nothing like it!

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