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Special Edition Series: Living with PKU

Living Better with PKU

Sponsored through an educational grant from BIOMARIN

Special Edition

Understanding PKU and New Treatment Options

Hear the Replay!

In the past, PKU has been managed mainly by stringent and difficult-to-maintain diets. Now there is a new medical option, too. Learn about the new PKU treatment options and ask questions of leading experts and an experienced caregiver. Check back here for a link to the live program on Tuesday, May 8th at 8:00 pm Eastern (5:00 pm Pacific) to hear experts discuss "Understanding PKU and New Treatment Options." Hear the Replay! Guests:
Susan Waisbren, Ph.D., Psychologist, Children's Hospital Boston
Gregory Enns, M.D., Associate Professor of Pediatrics; Director, Biochemical Genetics Program, Stanford University School of Medicine
Corinna Vonderwell, Mother of two children with PKU, Board Member, Indiana PKU and Allied Disorders Association

Susan Waisbren, Ph.D.

Susan Waisbren, Ph.D.
Psychologist
Children's Hospital Boston

Dr. Waisbren is Associate Professor of Psychology at Harvard Medical School's Department of Medicine, as well as Research Associate at the Children's Hospital in Boston. She is also a psychologist at the Clinic for Inborn Errors of Metabolism and Phenylketonuria in the Developmental Evaluation Clinic and the Division of Genetics at the Children's Hospital. Dr. Waisbren received her Ph.D. in Clinical Psychology from the University of California, Berkeley.

Gregory Enns, M.D.

Gregory Enns, M.D.
Associate Professor of Pediatrics; Director, Biochemical Genetics Program
Stanford University School of Medicine

Dr. Enns is Associate Professor of Pediatrics and Director of the Biochemical Genetics Program at Stanford University. He also serves as a clinician for patients with metabolic disorders, performs research on treating metabolic disorders, and he is director of the California Department of Health Services Newborn Screening Area Service Center for Northwestern California. Dr. Enns received training in clinical genetics and clinical biochemical genetics at the University of California, San Francisco.

Corinna Vonderwell

Corinna Vonderwell
Coordinator for the Twenty-first Century Scholars Program
State of Indiana at Vincennes University

Corinna Vonderwell is the Coordinator for the Twenty-first Century Scholars Program for the State of Indiana at Vincennes University. She earned both a Bachelor of Science Degree in Organizational Management and a Master's Degree in Management from Oakland City University. Corinna serves on the Board of Directors for the Indiana PKU and Allied Disorders Association. She is a member of the Vincennes Civitan Club, Tri-Kappa and Psi Iota Xi philanthropic organizations. An accomplished vocalist, Corinna has performed on stage at Carnegie Hall. Corinna, her husband Paul, and their three children, Kaleb (PKU), Kameron (REG) and Karlye (PKU), reside in Vincennes, Indiana.

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Patient Power is America's most prominent regular series of live talk shows on medical and health issues from the patient's perspective and featuring some of the nation's most credible medical experts and inspiring patients. On weekly radio and daily online from his Seattle studio and on regularly scheduled webcasts Andrew explores in-depth health issues that affect you or someone you care about and helps you make smart decisions that can lead to better health. Listen in and call in and please, tell your friends about Patient Power. There's nothing like it!

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