Patient Power®
Get Email Alerts!
Health Topics
Phenylketonuria (PKU) Health Center
Health Center Home Audio Programs Videos Education Community International Sign up for... Conference Coverage
Search by Keyword:
Search by Health Topic:
View all Health Topics >

PKU Special Edition: Living Better with PKU (2009 Spring and Summer Series)

Living Better with PKU Spring 2009 Series

Special Edition

Sponsored through an educational grant from BIOMARIN

PKU Clinic LocatorWelcome to our 2009 Spring and Summer series of PKU programs produced to help you and your family access the best care and resources available for your condition. Experts and patients from around the country have shared their expertise and experience in accessing care, how to handle social situations and managing your PKU effectively. This series follows our very successful and information Spring and Fallseries from 2008.

The six programs in the series focus on the following important issues:

  • What is Quality PKU Care Today? And How Do You Get It for You or a Loved One?
  • How Do You Pay for New PKU Medicines? What Resources are Available?
  • How Confident Can You Be with Your PKU Treatment Plan?
  • What Are the Problems When PKU is Not Treated Effectively?
  • How Does PKU Affect You and Your Relationships? A Look at Managing PKU from Many Perspectives
  • How You Can Be a Powerful PKU Patient and Advocate for Yourself or a Loved One.

As always, you'll hear from renowned experts about the latest research, progress in treatment, and the best ways to manage your diet. Patients will also share their stories and provide an unmatched perspective into what it's like to live with PKU.

We need your feedback!
Did you listen? Don’t forget to come back and fill out the SURVEY. Your responses are important to us in planning future programs.

Below is our most recent series of webcasts available as replays for downloading, streaming and podcasting. We hope that you'll share this information with others. And, we would love to hear what you think of the programming - please take the SURVEY.

Get More Information

Click here to sign up to receive more information from the program sponsors.

Programs in this Series:

Date/Time Program
April 7, 2009
 What is Quality PKU Care Today? And How Do You Get It for You or a Loved One?
Listen Now | More Information >>
April 30, 2009
 How Do You Pay for New PKU Medicines? What Resources are Available?
Listen Now | More Information >>
May 19, 2009
 How Confident Can You Be with Your PKU Treatment Plan?
Listen Now | More Information >>
June 11, 2009
 What Are the Problems When PKU is Not Treated Effectively?
Listen Now | More Information >>
July 7, 2009
 How Does PKU Affect You and Your Relationships? A Look at Managing PKU from Many Perspectives.
Listen Now | More Information >>
August 13, 2009
 How Can You Be a Powerful PKU Patient & Advocate for Yourself or a Loved One?
Listen Now | More Information >>

Notice: Patient Power, LLC is solely responsible for the content of webcasts and replays and transcripts on this site. Information here is for educational purposes only. Please check with your own doctor for medical advice that is right for you.