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Spring Survey 2012

PKU Special Edition: Living Better with PKU (Fall 2008 Series)

Living Better with PKU Fall 2008 Series

 Special Edition

Sponsored through an educational grant from BIOMARIN

PKU Clinic LocatorWelcome to our Fall 2008 series of three, 60-minute PKU "Special Edition" webcasts. This follows our very popular series last Spring which we invite you to review.

Our next three live programs will focus on important issues that add depth to our dialogue with you about living with PKU:

  • Long-term safety of medications
  • Protecting your brain from Phe build-up
  • Resources for accessing the best care for PKU at every age (even during pregnancy)

As always, you'll hear from renowned experts about the latest research, progress in treatment, and the best ways to manage your diet. Patients will also share their stories and provide an unmatched perspective into what it's like to live with PKU.

We invite you to send us your questions via email or record one on our new Patient Power visitor line (1-877-232-5445).

Listen to the Conference Coverage from the recent International Teen and Adult PKU conference held in Chicago in August 2008. This marked the largest ever assembled group of PKU patients and family members ever!

Programs in this Series:

Date/Time Program
September 23, 2008
 Long Term Safety of Medications for PKU
Listen Now | More Information >>
October 7, 2008
 Protecting Your Brain from Phe Build-up
Listen Now | More Information >>
October 28, 2008
 Managing PKU at Any Age
Listen Now | More Information >>

Notice: Patient Power, LLC is solely responsible for the content of webcasts and replays and transcripts on this site. Information here is for educational purposes only. Please check with your own doctor for medical advice that is right for you.