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International Conference for Adults and Teens with PKU

International Conference for Adults and Teens with PKU

 Special Edition

Conference Coverage is Sponsored through an educational grant from BIOMARIN

The PKU Community Comes Together

PKU Clinic Locator

The PKU community is a strong one, and people with PKU and their families are generous with their support for one another. That spirit of sharing was evident at the International Conference for Adults and Teens with PKU in Chicago held August 15-16, 2008. The grassroots gathering drew more than 220 people including more than 90 teens and adults with PKU, their family members, health care professionals, dietitians, and other supporters. The two-day event offered a chance to hear from experts about the latest advances in the management of PKU, attend programs to learn important social skills, and maybe most importantly, to share their own personal stories and experiences with one another.

If you would like to be added to a list to receive information regarding a conference in 2010, please send an email with your name, postal address and relationship to PKU to Sarah Foster. (Date and location of the 2010 meeting are TBD).

Programs in this Series:

Date/Time Program
August 15, 2008
 The History of PKU
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August 15, 2008
 Newborn Screening for PKU in Illinois
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August 15, 2008
 The Treatment of PKU with Kuvan
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August 15, 2008
 Practical Management of PKU Incorporating Kuvan and Diet
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August 15, 2008
 Phenylalanine Ammonia Lyase - Enzyme Substitution Therapy for PKU; What Lies Ahead In The Absence of BH4 Responsiveness
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August 15, 2008
 Straight Talk about Thinking Straight: How PKU Sometimes Gets In The Way And What To Do About It
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August 15, 2008
 New Ways to Feel Good About You and Your PKU
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August 16, 2008
 Transition and Self-Advocacy: The Medical Home and Care Coordination
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August 16, 2008
 Metabolic Resources Coming of Age: The Adult PKU Clinic
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August 16, 2008
 Negotiating Resources and Self-Advocacy
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August 16, 2008
 Strategies for the Prevention of Bone Disease in Teens and Young Adults with PKU
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August 16, 2008
 Sports Nutrition and PKU
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August 16, 2008
 A Case Study of Weight Loss and PKU
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August 16, 2008
 Hurricane Katrina: Lessons Learned for Disaster Preparedness
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