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The video below was produced by The Propionic Acidemia Foundation (PAF), from their PAF Education Conference held in Chicago, Illinois in August 2010.
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The goal of this series is to empower you or a loved one with information along your journey with advanced breast cancer that will allow you to play an active role and make informed decisions about your care.
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La phénylcétonurie (PCU) est une maladie génétique rare qui se caractérise par une incapacité à métaboliser la phénylalanine (Phe), un acide aminé. La Phe est toxique pour le cerveau et elle peut produire progressivement des lésions neurologiques graves, un retard mental, une diminution de l’intelligence et des déficits moteurs si elle n’est pas maîtrisée.
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The 2010 PKU series will delve deeper into living with and beyond PKU. Experts will discuss tips and strategies for returning to diet, managing weight, pregnancy, and other life transitions, specifically young adults transitioning to life on their own.
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The The Journal of Participatory Medicine was launched October 22 at the Connected Health symposium in Boston. It is a free, online, peer-reviewed journal dedicated to documenting how health care encourages, supports and expects active involvement by all parties, and leads to improved outcomes.
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Osteoporosis, a condition in which the bones become weak and can easily break, is a major public health threat for an estimated 44 million Americans. The Washington Osteoporosis Coalition is sponsoring a series of three Patient Power programs, in which you will hear from leading experts and inspiring people about risk factors, prevention and the latest treatment options. The programs will be interactive, and we encourage you to submit your questions in advance so we can get to as many as possible.
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The 2009 Spring and Summer Patient Power series promises to bring resources on the most prevalent PKU topics. With six new programs you’ll hear from renowned experts and patients on topics such as: Accessing the best care and resources available, how to handle social situations and relationships, how you can be a powerful PKU patient, and the dangers of not treating PKU effectively, among others.
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The PKU community is a strong one, and people with PKU and their families are generous with their support for one another. Listen to the Conference Coverage from the recent International Teen and Adult PKU conference held in Chicago in August 2008. The grassroots gathering drew more than 220 people including more than 90 teens and adults with PKU, their family members, health care professionals, dietitians, and other supporters.
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The rare genetic condition known as phenylketonuria (PKU) - characterized by an inability to metabolize the amino acid phenylalanine (Phe). Phe is toxic to the brain, and it can progressively produce serious neurological damage, mental retardation, reduced IQ and motor deficits if uncontrolled.
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The rare genetic condition known as phenylketonuria (PKU) - characterized by an inability to metabolize the amino acid phenylalanine (Phe). Phe is toxic to the brain, and it can progressively produce serious neurological damage, mental retardation, reduced IQ and motor deficits if uncontrolled.
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In this series of three webcasts, host Andrew Schorr and several medical experts from around the U.S. will discuss a broad variety of issues concerning HIV and AIDS. Topics will include the impact of HIV and AIDS on children and newborns, ways to help adult HIV/AIDS patients to live to the fullest, and the latest in research to find a cure.
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Lymphomas account for about five percent of all cases of cancer in the United States and it's the most common form of blood cancer. It affects many, which is why it's important to know about the latest treatments and news related to this disease. In our series of 4 webcasts discussing lymphoma, you'll hear from leading experts about cutting-edge treatment and why you should be encouraged as a patient. These programs will be interactive so please email your questions in advance so we can get to as many as possible.
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Kawasaki Disease is an uncommon and potentially life threatening condition that affects children from the very young to teenagers. The disease was first discovered 40 years ago by Dr. Tomisaku Kawasaki in Japan, and while it does seem to be more common in Asian children, more than 3,000 new cases are diagnosed in the U.S. every year.
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When it comes to the serious blood related cancer, multiple myeloma, the good news is definitely that knowledge is power. Treatments are changing, clinical research is encouraging and people are living with the disease. Almost 20,000 people are diagnosed each year in the U.S. and 100,000 people are in treatment at any one time. Fortunately, the range of treatments is expanding and even the newest drugs are being combined in powerful ways. It's gotten so printed information becomes out of date pretty fast. That's why we are happy to announce a series of seven live, 1 hour Special Edition webcasts where you can hear the latest myeloma news from leading experts and inspiring, experienced patients and ask them questions.
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Many issues surround the debate on health care in America. Many consumers have experienced fictitious health insurance coverage, treatment recommendations based on profit, and even reputable providers not following the rules-all at the patient's expense. In order to be a smart consumer, it is important that patients and families arm themselves with the best defense-knowledge. Please join Patient Power in a one-of-a-kind Medical Fraud and Consumer Education Series, in which well-versed experts and inspiring patients will join us for an explosive discussion. You do not want to miss this resourceful program. Call in with your questions live!
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Get Your Guts in Gear is sponsoring two Patient Power programs to keep patients informed and educated about Crohn's disease and ulcerative colitis (collectively known as Inflammatory Bowel Disease or “IBD”), both from a medical standpoint and from the perspective of patients who are active in the IBD community.
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National Comprehensive Cancer Network (NCCN)
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