Andrew Schorr:
Shaynee, has the gluten free diet worked? Or where are you with that?
Shaynee:
I went on it exclusively for three or four months, and ironically at the time that I began the gluten free diet my symptoms had somewhat subsided to begin with. I wasn't sure how much of them could have been attributable to just the stress of having a newborn child and not sleeping terribly much. So I pursued the gluten free diet and after three or four months had my blood work redone and the levels of the markers had come down and were within normal range at that point. So I have allowed a little bit of wheat to be reintroduced into my diet and have not noticed a reexacerbation of symptoms at this point. I'll probably continue with a largely gluten free but allowing myself the occasional treat, as it were.
Andrew Schorr:
So, Dr. Saunders, where I was coming from prior to the show, and I'm going to bring Annette on because she's involved with the Celiac Foundation too, I thought for people who had this problem with gluten that just like a crumb of wheat or barley, rye, gluten in some additive in some food, they have big problems, and I think you mentioned, Annette, Katie, if she goes off it does, but here we're hearing about people where maybe it's not so severe. Is it really celiac, or can it come and go? Or help us understand that.
Dr. Saunders:
Well, again, it's a continuum. There are certainly patients like Katie who if they get an ounce of gluten in their diet they will have an exacerbation of their symptoms. But it's a spectrum of disease, and Shaynee can obviously do well with a little bit of gluten getting into her diet. I guess the main question is is there risk for her doing that. Is strict gluten avoidance necessary?
Andrew Schorr:
We're going to talk about that after the break. And I also want to talk about how people raise this with their doctor because I know that many physicians, particularly physicians who take care of adults, are less aware about celiac disease. You as a gastroenterologist and doing testing all the time are very aware of it, but that's not always the case. So how we bring that up. Stay with us as we continue with more Patient Power live on AM 570 KVI.