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Part II - The Bike Ride for Better IBD Health: An On-the-Scene Report from Crohn's and Colitis Patients and Experts

Recorded on 10/27/2008

PROGRAM DETAILS:

Part II of this special series sponsored by Get Your Guts in Gear (GYGIG) again features Dr. Tony Weiss, in addition to riders and crew for the Texas ride. Inspiring patients, some first-time riders, talk about why they ride and how they feel about the community. A caregiver and crewmember also join to share their connection to inflammatory bowel disease (IBD).

You’ll first hear from Jamie Machala as she reports from the Bastrop State Park where day one of the three-day ride ended. As Patient Power’s on-site producer and, this year a GYGIG crewmember, she talks about the general feeling and energy surrounding the ride. Next is Jeff, a graduate student at the University of Texas at Austin, who was diagnosed with Crohn’s disease five years ago. He speaks to the challenges he’s faced with Crohn’s and the importance of the support he gets from his family. Then you’ll hear from Linnea, a caregiver whose husband passed away from ulcerative colitis. Linnea discusses why she rides. In her own words “In a perfect world I wish I could bring my husband back. I know I can’t, but I can be involved. I can raise money for research. I can be a good advocate.”

After Linnea, Zach talks about his journey with IBD. Zach talks about living with the disease, which was in remission for many years, and how he bought a bike while recovering from his recent surgery. Then Chris, a seasoned crewmember participating in her tenth ride, talks about why she does it and the sense of community within the rides. Dave Uri, another first-time rider, talks about his dual diagnosis of Crohn’s and colitis and why the ride is inspiring him.

Dr. Weiss speaks throughout the program commenting on the various diagnoses, and sharing his own experience of cycling this event. He talks about the treatments for IBD and the progress being made in research.

To conclude the program, Jay Pacitti, the ride director, and Jeff Krol join the program on the Monday after the ride. They tell their stories of how the ride went and what they felt they were able to accomplish over those three days. Jeff sums it up with these words “Well, it’s great just to see everyone out there that has Crohn’s and ulcerative colitis to be able to achieve this accomplishment. Riding 210 miles for anyone out there is really challenging, but to see people that are in various stages of the disease and various levels of seriousness to complete this ride, it’s such an inspiration.”

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EXPERTS & GUESTS:
Jay Pacitti,
Ride Director, Get Your Guts in Gear
Get Your Guts in Gear (GYGIG) was started by Jay Pacitti, diagnosed with Crohn's disease, and an avid cyclist. Jay was shocked to find out there were no cycling events he could participate in to raise awareness, so a year later, he put his pedals in motion, and GYGIG was born! Get Your Guts in Gear, Inc. creates and produces... more >

Tony Weiss, M.D.
Gastroenterologist, West Side Gastroenterology
Dr. Anthony Weiss is board certified in Internal Medicine, Gastroenterology and Hepatology. He completed his fellowship training in Gastroenterology in 1993 at the Mount Sinai School of Medicine where he served as the first Burrill Crohn Research Fellow. He is an assistant Professor of Medicine at the Mount Sinai School of Medicine where he has served as the Associate Director... more >

TRANSCRIPT:

  1. Introduction
  2. Jeff’s Story
  3. Linnea’s Story
  4. Zach’s Story
  5. Genetic Connection in Crohn’s
  6. Dave’s Story
  7. Post-Event Interview with Jay Pacitti

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