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    Spring Survey Results 2012

    Myeloma News LIVE from the International Myeloma Workshop, Kos, Greece

    Recorded on 6/29/2007

    PROGRAM DETAILS:

    The International Myeloma Workshop, which happens once every two years, brings myeloma experts from around the world together in an effort to share research and bring us closer to a cure. For the 2007 workshop, the place was Kos, Greece, and Andrew interviewed a leading patient advocate, myeloma expert and nurse practitioner who specializes in myeloma about their perspectives on the most significant information presented for the myeloma patient live from the workshop.

    Myeloma expert Brian Durie, M.D., contends as myeloma moves closer to being a chronic disease, there has been a transformation from a focus on front-line therapies to more sequential therapies. Andrew leads an animated discussion about the new treatment options available to myeloma patients, from more steroid-free options to new drug combinations, both for newly-diagnosed and relapsed patients. Among the drugs discussed are Velcade, Revlimid, thalidomide and dexamethasone, particularly in relation to minimizing side effects and finding more steroid-free options for patients.

    Dr. Durie explains the two biggest debates about treatment at the workshop surrounding stem cell transplants, novel therapies and long-term effects. Beth Fairman, a nurse at the Cleveland Clinic, discusses the many resources for myeloma patients to explore new treatment options and possible clinical trials, as well as how to broach these subjects with your doctor.

    The interview addresses several patient concerns, including maintenance therapies, options for older patients, maintaining a high quality of life and the cumulative effects of taking therapies long-term. Experts are most concerned with the side effects of therapies and collaborating to find ways to select therapies that take into consideration many different factors in helping the patient to lead a full life. Overall, an extremely informative and exciting interview.

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    EXPERTS & GUESTS:
    Brian G.M. Durie, M.D.
    Myeloma Specialist, Cedars-Sinai Medical Center
    Brian G.M. Durie, MD is the Chairman of the Board of the International Myeloma Foundation and a myeloma specialist at Cedars-Sinai Comprehensive Cancer Center in Los Angeles. He is also a member of the IMF Scientific Advisory Board. Dr. Durie co-created the Durie/Salmon Myeloma Staging System, has written over 300 research papers, five books, twelve book chapters. Dr. Durie is... more >

    Beth Faiman, R.N., M.S.N, C.N.P.
    Nurse Practitioner specializing in Myeloma, Cleveland Clinic Foundation
    Beth Faiman, R.N., M.S.N, C.N.P. is a Nurse Practitioner at the Cleveland Clinic Foundation in Cleveland, Ohio where she has worked since 1994. Ms. Faiman is an active author, presenter, and educator on the topic of Multiple Myeloma, general cancer diagnosis and treatment, as well as management of skeletal and other cancer complications. She currently sits on the Nursing Leadership... more >

    Maddie Hunter,
    Multiple Myeloma Survivor
    Maddie Hunter is a Multiple Myeloma survivor. She co-leads the the Philadelphia Multiple Myeloma Networking Group. Maddie lives in Metuchen, NJ, with her teenaged son, Will. She belongs to a community writing group and coaches writing in the local public schools. more >

    TRANSCRIPT:

    1. Introduction
    2. A Multiple Myeloma Patient Advocate: Impression from Meeting
    3. Highlights of Meeting from Expert Dr. Brian Durie’s Perspective
    4. Headlines from Nurse Practitioner Beth Faiman’s Perspective
    5. New Research on Velcade & Bone Formation in Myeloma Patients
    6. Research on Combining Novel Agents
    7. Future of a Cancer Care Acronym for Myeloma Treatment
    8. Options for Older Patients
    9. How to Discuss New Research with Your Doctor
    10. Transition in Focus to Sequential Therapy versus Front-Line
    11. Advice for Maintaining a High Quality of Life After Treatment
    12. The Role Pain & Follow-up Testing Play
    13. How to be Educated About the Latest Thinking Related to Myeloma
    14. Clinical Trials & Older Patients
    15. Post-Transplant: Recommended Drug Maintenance Therapies
    16. What to Take Away from the Meeting for Myeloma Patients
    17. The Power of Education & Information

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