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Interstitial Cystitis: An In-Depth Look at Painful Bladder Syndrome

Recorded on 11/1/2007

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North-Shore Long Island Jewish Health System

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Interstitial Cystitis (IC), also known as painful bladder syndrome is a mysterious and chronic disease causing inflammation on the bladder wall. According to the National Institute of Diabetes and Digestive and Kidney Disease, an estimated 1 million Americans have IC, up to 90 percent are women as this illness is more common in women than in men. When tests for infection come back negative, it leaves both physician and patient scratching their heads. Patients with interstitial cystitis are often frustrated after receiving multiple diagnoses, which can make treatment options confusing.

Some of the current treatments being used to treat interstitial cystitis are Elmiron, DMSO, doxorubicin chondroitin sulfate, heparin, disodium cromoglycate and interStim, just to mention a few. Treatments for Painful Bladder Syndrome (PBS) are symptom based, so determining which symptoms are causing discomforts are essential in deciding what approach would work best for an individual.

Joining us for an in-depth discussion is Dr. Robert Moldwin, Director of the Interstitial Cystitis Center at North Shore Long Island Jewish Health System and, author of “The IC Survival Guide,” considered one of the best books on the topic. Also joining the program are Jill Osborne from the Interstitial Cystitis Network and Rhonda Garrett from the Interstitial Cystitis Association. They discuss the challenges faced by patients with interstitial cystitis and provide patients with resources and support. Dr. Moldwin takes calls from several sufferers of IC and answers their questions regarding symptoms, diagnosis, treatments and medications, and advancements in research. Dr. Moldwin emphasizes that these urologic conditions are a part of an evolving field and that there is much more to be learned and explored.

The encouraging news is that gynecologists, family practitioners, and internists, are becoming increasingly knowledgeable and sensitized to these conditions. Though it seems this progress is moving at a slow pace, researchers are desperately working to eradicate this painful, discomforting life-style altering condition, to say the least. We can be excited about this, but the emotional support of family, friends, loved ones and other people with interstitial cystitis is very important in helping patients to remain positive.

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Interstitial Cystitis

EXPERTS & GUESTS:

	Robert Moldwin, M.D. Associate Professor of Clinical Urology, Director of the Interstitial Cystitis Center, North-Shore Long Island Jewish Health System, Albert Einstein College of Medicine Dr. Moldwin is physician in charge of urologic infectious/inflammatory diseases and director of the Interstitial Cystitis Center at North Shore-LIJ Health System. He is also Associate Professor of Clinical Urology at Albert Einstein College of Medicine in New York City. Dr. Moldwin often serves as an advocate and expert consultant, lecturing to audiences of colleagues, patients and members of the... more >

Jill Osborne, Interstitial Cystitis Network Founder and President, Interstitial Cystitis Network Ms. Osborne is the Founder and President of the Interstitial Cystitis Network. Jill is also an IC patient diagnosed just after graduate school. Her best advice is to create relationships with others who have this illness, which she says will remind you that you're not alone and it can tap into a body of knowledge and coping skills that some... more >

Rhonda Garrett, IC Patient/Interstitial Cystitis Association Board of Directors Member and Volunteer Rhonda is an IC patient and a long-time volunteer for the Interstitial Cystitis Association. Rhonda was diagnosed with IC when she was 30 years old after years of living with the symptoms. She previously worked with volunteer services, training people to start and run local support groups and also taking crisis calls for newly diagnosed patients. Now, Mrs. Garrett is... more >

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