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Huntington’s Disease Research and Progress

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Huntington’s disease is a rare genetic condition that affects nearly 30,000 people in the United States. However, doctors believe there are about 150,000 people with the genetic mutation that causes Huntington’s but have not begun to show clinical symptoms. Huntington’s disease can begin at all stages of life. During this third Patient Power program of a 3-part Special Edition series on Huntington’s disease, host Andrew Schorr is joined by Dr. Anthony Lechich, Medical Director and Senior Vice President for Medical Affairs at the Terence Cardinal Cook Health Care Center in New York City. Together they explore the topic of how to manage Huntington’s disease as people get older and how it affects people even looking at the end of life.

Also joining the program is Dr. Jody Corey-Bloom, a leading researcher at the Huntington’s Disease Center of Excellence at the University of California San Diego Medical Center. She updates listeners on the latest research and gives people guidance on participating in clinical trials. The good news is there has been tremendous progress in this area of medicine and there are a number of clinical trials and observational trials happening to help families touched by Huntington’s. Dr. Corey-Bloom offers resources for how patients can learn about different trials and gives listeners a brief update about the latest treatment options available for the disease.

Dr. Lechich answers listener questions and offers hope that progress is being made. This Patient Power program is an excellent way for listeners to connect with important resources, such as the Huntington’s Disease Society of America, and hear the latest developments toward the ultimate goal of finding a cure for this rare condition.

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EXPERTS & GUESTS:
Jody Corey-Bloom, M.D., Ph.D
Director of UCSD Huntington's Disease Center of Excellence, University of California San Diego Medical Center
Dr. Jody Corey-Bloom, is director of the UCSD Multiple Sclerosis Center and UCSD Huntington's Disease Center of Excellence. She serves as an American Academy of Neurology faculty member and has been nominated by her peers four years in a row as one of the top 100 doctors in San Diego. Despite her numerous involvements, Corey-Bloom considers herself to be first... more >

Anthony Lechich, M.D.
Medical Director and Sr. V.P. for Medical Affairs, Terence Cardinal Cook Health Care Center
Dr. Lechich is the Medical Director and Sr. V.P. for Medical Affairs at the 729-bed Terence Cardinal Cooke Health Care Center in Manhattan, NY where there are currently residing 50 individuals with advanced Huntington’s. As physician, teacher, administrator and writer, Dr. Lechich has focused on defining issues in quality of life for those institutionalized with HD. This message has been... more >

TRANSCRIPT:

  1. Introduction
  2. Interview with Dr. Jody Corey-Bloom on Clinical Trials
  3. Research Discussion with Dr. Lechich
  4. Listener Questions

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