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Spring Survey 2012 Results

Bone Marrow Transplantation for the Treatment of Patients with Nonmalignant Disorders

PROGRAM DETAILS:

Diagnosing a child with an immune deficiency disease requires diligence and a multidisciplinary team. This may involve, immunologists, transplant biologists, and hematologist. Fortunately, Seattle Cancer Care Alliance (SCCA) expert Dr. Laurie Burroughs and her team work together to diagnose and treat patients with these diseases as in the case of her patient, Madysen Pablo, born with SCIDs or Severe Combined Immune Deficiency Syndrome, requiring a bone-marrow transplant. Dr. Laurie Burroughs is a pediatric hematologist/oncologist and acting assistant professor of Pediatrics at Seattle Children’s Hospital, specializing in bone marrow transplantation for patients with childhood cancers and nonmalignant disorders. Madysen’s Mother, Mary, joins the program to help tell her daughter’s story.

Soon after Madysen was born, Mary witnessed her turn blue after breast-feeding one morning. At the time, the Pablo’s lived in another state, but within a matter of days, the Pablo’s found their way to the SCCA. Madysen was admitted to Seattle Children’s for chemotherapy and radiation to prepare for the transplant. She received her bone marrow transplant on October 9, 2006. Madysen stayed in the hospital for one month and lived with her family at the Ronald McDonald House near Seattle Children’s. The most incredible part of this story is Madysen's brother Storm was her donor and Madysen is doing very well today. Hear or read more of Madysen’s story as her Mother encourages other parents to ask questions and exemplifies how to be the best advocate for your child.

Dr. Burroughs talks about how experts are working to implement standard screening methods for SCIDs with new technologies on the horizon. Due to the complexity of SCIDs, Dr. Burroughs stresses the importance of speed and accuracy. Dr. Burroughs also talks about the Child Life experts, child social workers, and psychologists at the Seattle Cancer Care Alliance that are there to help patients cope with serious illnesses. Don’t miss this fascinating program as we learn more about what bone marrow transplants are doing for patients with non-malignant conditions like Madysen.

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EXPERTS & GUESTS:
Lauri Burroughs,  M.D. Lauri Burroughs, M.D.
Pediatric Hematologist/Oncologist, Seattle Cancer Care Alliance
Dr. Lauri Burroughs is a pediatric hematology/oncologist at Seattle Children’s, where she specializes in bone marrow transplantation for the treatment of patients with childhood cancers and nonmalignant disorders. She is a graduate of the University of Wisconsin School of Medicine and Public Health in Madison and received her residency training at Indiana University School of Medicine. She received her fellowship... more >

Mary Pablo,
Madysen's Mother
When Madysen was five months old, she was diagnosed with Pneumocystis carinii pneumonia (PCP). That’s when the doctors started talking about bone marrow and we got nervous. That’s also when the Pablos learned that their daughter had SCIDs, or Severe Combined Immune Deficiency Syndrome, that would require a bone-marrow transplant to cure. Madysen received her bone-marrow transplant on October 9,... more >

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