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Introduction

Program: Advice for Adults with PKU: Improving Your Life by Returning to Diet

Table of Contents

  1. Introduction LISTEN
  2. Returning to Diet After 20 Years LISTEN
  3. Developing a Plan LISTEN
  4. Family and Community Support LISTEN
  5. Returning to Clinic: What to Expect LISTEN
  6. Resources Available LISTEN
  7. Listener Questions LISTEN
  8. How to “Stick with It” LISTEN

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Andrew Schorr:

Welcome to our PKU audience around the country and around the world.  Are your memories of childhood filled with thoughts of chalky formula and limited food choices?  Well, that’s no longer the case.  The PKU diet and treatment options have changed dramatically in the past several years.  Coming up you’ll hear from a dietician, a genetic counselor and an inspiring patient as they share advice for returning to diet as an adult.  It’s all next on Patient Power. 

Hello to friends in the PKU community around the country and around the world.  I’m Andrew Schorr.  I’m on assignment and broadcasting live from Morristown, New Jersey.  Usually I’m in Seattle but I’m happy to be in the East, but wherever you are the next hour surely will be educational.  We invite your questions.  As we just mentioned in our announcement, if you have a question you’ll be able to call directly to the studio for this live webcast.  The number is 877-711-5611, 877-711-5611.  You can send us an e-mail right now if you have a question, and you send it to pku@patientpower.info. 

This is our lucky 13th live webcast for folks concerned about PKU, and I’m so excited.  We’re kicking off a 2010 series of four more programs, and so the one tonight, Advice for Adults with PKU:  Improving Your Life by Returning to Diet and getting back in treatment.  April 13th is the date for the following program.  That’s going to be on PKU and Pregnancy:  Lowering the Risks and Having a Healthy Baby.  May 4th, Achieving Better Health While on a PKU Diet:  What’s New?  And then in September, and we’ll pick the date with you, we will be doing a program on Young Adults with PKU:  Transitioning to Life Out on Your Own. 

Now, think about it, transitioning to life, some people transitioned years ago when the thinking used to be, well, we’ll give you PKU treatment as a child and then you don’t need it any more.  Go live your life, we dealt with it with Phe levels when it was really important to deal with it, and then your brain has developed, go live your life.  Well, guess what.  That’s not what we know is appropriate anymore.  Now it is diet for life, and we’ve talked about that on so many of our programs.  Remember, the whole library of programs is at www.patientpower.info/PKU and inspiring patient videos as well, and we’ll talk about new ones we’re doing in just a little bit.

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