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Achieving Better Health While on the PKU Diet: What’s New?

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It's no secret that the PKU diet is restrictive, but is it healthy? Although your phe level is well managed, are YOU healthy? In this Patient Power program two dieticians focus on the importance of making smart PKU food choices to maximize overall health and manage weight while maintaining Phe levels. Laurie Bernstein is a registered dietitian and assistant professor in the department of pediatrics and director of IMD Nutrition at The Children's Hospital in Aurora, Colorado. Maggie Davis is a metabolic dietitian and founder and director of Live Nutrition in Cape Cod, Massachusetts.

The program begins with Gina Valente, Mother of a nine-year-old with PKU. Upon diagnosis, Gina made it her personal mission to learn as much as she could and now she has written a low-protein cookbook Gina Cooks Lo Pro. She is outspoken on the issue and very involved in raising awareness about PKU.

Both dietitians then join to discuss weight management, share advice on choosing healthy options in social situations, and the keys to proper nutrition on the PKU diet. They go on to answer a variety of listener questions that address many topics such as aging with PKU, PKU medications such as Kuvan, and exercise. If you or someone you know is searching for information on maintaining a healthy diet with PKU, this program is an information-packed resource.

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EXPERTS & GUESTS:
Laurie E. Bernstein, MS, RD, FADA Laurie E. Bernstein, MS, RD, FADA
Assistant Professor, Department of Pediatrics and Director of IMD Nutrition, The Children's Hospital, Aurora, Colorado
Laurie E. Bernstein, MS, RD, FADA, is assistant professor in the department of Pediatrics and Director of IMD Nutrition at The Children's Hospital, Aurora, Colorado. She is a four-time recipient of the ADA’s Creative Nutrition Education Award, for her extensive contributions. In addition to being a founding member of Genetic Metabolic Dieticians International, Laurie is the founder of Metabolic University,... more >

Maggie Davis, M.S., R.D., L.D.N. Maggie Davis, M.S., R.D., L.D.N.
Metabolic Dietitian, Live Nutrition
Maggie Davis, MS, RD, LDN, FADA, CDE is the founder and director of Live Nutrition. She has been in practice for 25 years on Cape Cod. Ms. Davis has a passion for helping her patients and clients live healthier lives through better nutrition. She is described by her patients and clients as a competent and caring professional who gets to... more >

Gina Valente,
Mother of Child with PKU
My name is Gina Valente, I am a mother to a child diagnosed with CPKU. For the last nine years I have dedicated my life searching for a healthier more balanced PKU diet for my child. My education in PKU comes from attending PKU conferences, symposiums, summits, and seminars. I am also the author of Gina Cooks "lo pro". A... more >

TRANSCRIPT:

  1. Introduction LISTEN
  2. A Mom’s Mission LISTEN
  3. Eating a Balanced and Colorful PKU Diet LISTEN
  4. Weight Management LISTEN
  5. Eating Socially LISTEN
  6. Nutrition LISTEN
  7. Advice from Experts LISTEN
  8. Listener Questions LISTEN

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