Submitted By: Debra Millegan on 01/31/2011
No one wants to
be diagnosed with a life changing disease. In 2001, when I was 41 years old, I
started feeling a tremor in my right hand. I talked with my doctor and she sent
me to a neurologist to have it checked out. I was first diagnosed with
essential tremor whic
h runs in my family. Then in May of 2008 I was re-diagnosed
with Parkinson's disease. This was a
devastating diagnosis. I didn't know what it meant. I have two sons who are now
15 and 12. Would I live to see them get married and have children of their own?
I went to OHSU for a second opinion from Dr. Nutt in August of 2008. After that, I went to a newly diagnosed
meeting at OHSU. I really didn't want to go to this meeting. In fact, I was at
my hairdressers telling her I was going to skip it. She talked me into going
and I'm so glad I did. At that meeting I met a man who had had Parkinson's
disease for 17 years and was teaching Pilates in his community. There was no
way anyone could have known this but I wanted to teach Pilates before my
diagnosis and had given that dream up after being diagnosed with Parkinson's
disease. After that meeting I contacted the Pilates teacher education program
and started learning how to teach Pilates. I am so happy with my life right
now. Pilates keeps me moving and exercising and takes away my stiffness. It's the best thing I could ever have in my
life with Parkinson's disease. I have
never felt so focused on a goal. It's a wonderful feeling. I have purpose in my
life. I'm planning to teach others with Parkinson's disease. I've completed the
weekend certification program through OHSU on how to teach exercise to people
with Parkinson's disease. This program is modeled after their research of an
exercise program that they just are finishing up. I've also completed my first half marathon
walking in Santa Barbara for the Michael J Fox foundation. I've met some
wonderful people at fundraisers. My friends and family are supportive of me and
walked with me to raise money for the Parkinson's Resources of Oregon. At my
last checkup with Dr. Nutt he said that my gait looked great. I think exercise
makes me feel good and helps slow my Parkinson's disease symptoms. That's my
story. I've only just begun to live.