Getting the best care for PKU, or any condition for that matter, requires you to be a proactive participant in your healthcare…to be a strong, but respectful advocate. Working closely with your metabolic team to manage your PKU yields the best results. In this program you’ll hear from patients, just like you, who have learned to manage their condition by staying abreast of the latest research and treatment, by maintaining close contact with others in the PKU community, and active communication with their healthcare team. Whether you have an infant or young child with PKU, whether you are a teenager or adult, join us for this one-of-a-kind program and gain insights from experts and patients who will surely inspire you to take charge of your health!
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Gerard Vockley, M.D., Ph.D. Chief of Medical Genetics
Children’s Hospital of Pittsburgh of UPMC
Dr. Gerard Vockley is Chief of Medical Genetics at the Children’s Hospital of Pittsburgh and also is a Professor of Pediatrics at the University of Pittsburg School of Medicine and Professor of Human Genetics at the Graduate School of Public Health. Dr. Vockley received his undergraduate degree at Carnegie-Mellon University in Pittsburgh, Pennsylvania, and received his degree in Medicine and Genetics from the University of Pennsylvania School of Medicine in Philadelphia, Pennsylvania. He completed his pediatric residency at the University of Colorado Health Science Center, and his postdoctoral fellowship in Human Genetic and Pediatrics at Yale University School of Medicine in New Haven, Connecticut. Before assuming his current position in Pittsburgh, Dr. Vockley was Chair of Medical Genetics in the Mayo Clinic School of Medicine. He is internationally recognized as a leader in the field of inborn errors of metabolism and he has published over 100 scientific articles in peer review journals.
Lauren Leviton, M.A., L.S.W. Education Coordinator, Division of Genetics, Birth Defects & Metabolism Children’s Memorial Hospital
Lauren Leviton, M.A., L.S.W., is an Education Coordinator at Children’s Memorial Hospital in Chicago, Illinois. Ms. Leviton works with adult patients who have a diagnosis of Phenylketonuria (PKU) as a part of the Adult Outreach Program. This program was implemented to reengage adult patients who have not been in active follow up with the PKU Clinic to keep them informed about new information and medical therapies available to treat their PKU.
Ms. Leviton received her Bachelor of Science degree in Human Development and Family Studies at the University of Illinois, Champaign. She completed her master’s in clinical social work at the University of Chicago, School of Social Service Administration. As a part of the graduate curriculum, Ms. Leviton completed her second year social work internship in the Division of Genetics at Children’s Memorial Hospital. Ms. Leviton had the opportunity to meet patients and families affected by a diagnosis of PKU, which included the adolescent and young adult population.
Shideh Mofidi, M.S., R.D., C.S.P. Metabolic Dietitian and Clinical Coordinator in the Inherited Metabolic Disease Center Maria Fareri Children’s Hospital
Shideh Mofidi is a Metabolic Dietitian and Clinical Coordinator in the Inherited Metabolic Disease Center at Maria Fareri Children's Hospital. She also serves as an Assistant Professor in the Department of Pediatrics. Ms. Mofidi received a Bachelor of Science degree in Chemistry from the University of Colorado and completed a Master of Science in Nutritional Sciences and Dietetics at San Diego State University. She went on to complete a fellowship in Pediatric Nutrition at the Center for Child Development and Developmental Disorders at the Children's Hospital Los Angeles affiliated with the University of California Los Angeles. Ms. Mofidi is a registered dietitian and a board Certified Specialist in Pediatric Nutrition. She has been working with infants, children and adults with metabolic disorders for over 20 years.
Tim Kelly Adult with PKU
Tim Kelly is a 31-year-old special education teacher living in the south suburbs of Chicago. He was diagnosed with PKU at birth and have been receiving treatment through Children's Memorial Hospital in Chicago ever since. Tim has been relatively lax about keeping up with his diet since adolescence, but has been in contact with the doctor's at Children’s Memorial over the past several years to try and learn about new treatment options and receive counseling about better diet management.
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