Sponsored through an educational grant from BIOMARIN

Welcome to our 2009 Spring and Summer series of PKU programs produced to help you and your family access the best care and resources available for your condition. Experts and patients from around the country have shared their expertise and experience in accessing care, how to handle social situations and managing your PKU effectively. This series follows our very successful and information Spring and Fall series from 2008.

The six programs in the series focus on the following important issues:

• What is Quality PKU Care Today? And How Do You Get It for You or a Loved One?
• How Do You Pay for New PKU Medicines? What Resources are Available?
• How Confident Can You Be with Your PKU Treatment Plan?
• What Are the Problems When PKU is Not Treated Effectively?
• How Does PKU Affect You and Your Relationships? A Look at Managing PKU from Many Perspectives
• How You Can Be a Powerful PKU Patient and Advocate for Yourself or a Loved One.

As always, you'll hear from renowned experts about the latest research, progress in treatment, and the best ways to manage your diet. Patients will also share their stories and provide an unmatched perspective into what it's like to live with PKU.

We need your feedback!
Did you listen? Don’t forget to come back and fill out the SURVEY. Your responses are important to us in planning future programs.

Below is our most recent series of webcasts available as replays for downloading, streaming and podcasting. We hope that you'll share this information with others. And, we would love to hear what you think of the programming - please take the SURVEY.

Get More Information

Click here to sign up to receive more information from the program sponsors.

Ask a Question

Notice: Patient Power, LLC is solely responsible for the content of webcasts and replays and transcripts on this site. Information here is for educational purposes only. Please check with your own doctor for medical advice that is right for you.