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Gregg Schlosberg: Phenylketonuria (PKU)

Submitted by Gregg Schlosberg
5/27/2009

A Later Diagnosis of PKU

When Gregg Schlosberg was born his doctors weren't completely sure he had PKU. They advised his parents to keep him on special formula for just the first three years of his life.His mother thought he had "grown out of the PKU," and at the age of three, began feeding him normal foods. Gregg experienced severe anxiety, cloudy thinking and trouble focusing in school. Later Gregg took an interest in weightlifting and, at one point, was on a high-protein diet, a poor choice if only he had known he was living with PKU as an adult. His symptoms became more prevalent and that forced him to ask his parents to recall the details about what they all thought had been an illness limited to childhood. As an adult, Gregg began visiting the clinic at Children’s Memorial Hospital in Chicago, and it was confirmed that he was indeed Hyperphe. He now works closely with his metabolic team and his phe is well-controlled. In Gregg’s own words "I’m actually a more confident person now than years ago. I do feel that once you manage your health, be it PKU or anything else, you become a more well-rounded person as far as taking care of your health because it trickles over into other aspects of your life."

Click here to listen to the program that Gregg participated in “Protecting Your Brain from Phe Build-up.”

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