PKU Special Editions

PKU Special Edition: Living Well with PKU (2010 Series)

The 2010 PKU series will delve deeper into living with and beyond PKU. Experts will discuss tips and strategies for returning to diet, managing weight, pregnancy, and other life transitions, specifically young adults transitioning to life on their own.

Video: Meet Powerful PKU Patients

PKU Special Edition: Living Better with PKU (2009 Spring and Summer Series)

The 2009 Spring and Summer Patient Power series promises to bring resources on the most prevalent PKU topics. With six new programs you’ll hear from renowned experts and patients on topics such as: Accessing the best care and resources available, how to handle social situations and relationships, how you can be a powerful PKU patient, and the dangers of not treating PKU effectively, among others.

PKU Special Edition: Living Better with PKU (Fall 2008 Series)

Please join us for three more live webcasts helping you live better with PKU and ask questions of renowned experts and inspiring patients. In these new programs we'll discuss: Concerns about long-term effects of medications, the importance of protecting your brain from Phe buildup, and how to get the best PKU care at any age.

International Conference for Adults and Teens with PKU (Conference Coverage)

The PKU community is a strong one, and people with PKU and their families are generous with their support for one another. Listen to the Conference Coverage from the recent International Teen and Adult PKU conference held in Chicago in August 2008. The grassroots gathering drew more than 220 people including more than 90 teens and adults with PKU, their family members, health care professionals, dietitians, and other supporters.

PKU Special Edition: Living Better with PKU (Spring 2008 Series)

The rare genetic condition known as phenylketonuria (PKU) - characterized by an inability to metabolize the amino acid phenylalanine (Phe). Phe is toxic to the brain, and it can progressively produce serious neurological damage, mental retardation, reduced IQ and motor deficits if uncontrolled.