Patient Power - Medical Information and Resources

Late Onset Asthma and Allergies

Thu, 31 Dec 2009 10:00:00 PDT

Personalized Treatment for Breast Cancer

Thu, 31 Dec 2009 10:00:00 PDT

Advances in Minimally Invasive Procedures for GERD and Barrett's Esophagus

Thu, 31 Dec 2009 10:00:00 PDT

Time Critical Diagnosis for ST-Elevated Myocardial Infarction (STEMI).

Thu, 31 Dec 2009 10:00:00 PDT

The Latest Developments in Radiation Therapy for Lung Cancer

Thu, 31 Dec 2009 10:00:00 PDT

Indications and Advances in Sinus Surgery

Thu, 31 Dec 2009 10:00:00 PDT

Colorectal Cancer: A Treatable and Often Preventable Malignancy

Tue, 22 Dec 2009 10:00:00 PDT

Colon cancer is the second leading cause of cancer death in the United States, but it's also one of the most preventable cancers. Screening for colorectal cancer is one of the best preventive measures and is painless in the vast majority of cases. In this webcast, sponsored by Northwestern Memorial Hospital, Dr. Steven Stryker discusses that many surgeries for colorectal cancer can be conducted with minimally invasive techniques. Dr. Stryker is a surgical oncologist on the medical staff at Northwestern Memorial and professor of Clinical Surgery at Northwestern University Feinberg School of Medicine.

The program begins with a discussion of prevention. Dr. Stryker talks about the importance of colonoscopy, how precancerous polyps are detected and easily removed and the guidelines for screening. He then goes on to talk about treatment if something is detected during screening. Dr. Stryker speaks in depth about surgery and radiation and how these therapies are used to effectively treat both precancerous polyps and advanced disease.

He closes by stressing the need for screening through colonoscopy. To quote Dr. Stryker, "First of all, I just want to say that colonoscopies don't need to be unpleasant because we've got a number of medications available to us, including assistance from our anesthesia colleagues, that can make a screening colonoscopy entirely painless." If you or someone you know is searching for information about colon cancer, look no further.

Screening Controversy and the Next Wave of Patient Empowerment

Tue, 15 Dec 2009 10:00:00 PDT

Much of what patients heard about the new breast cancer screening guidelines in December of 2009 not only confused them, but also caused quite a debate. Do mammograms need to be done annually? Can patients get screened every other year safely? How does a woman know if she is at average risk or increased risk for breast cancer? On this episode of Patient Power Health Issues , Andrew and Peter discuss the screening guideline controversy, including the idea of a "conspiracy theory," the source of this data, aggressive screening procedures and the importance of being an empowered patient. Andrew suggests creating forums and platforms welcoming advice and questions from patients and doctors alike could be the starting point to a solution.

You will hear Dr Connie Lehman, director of breast cancer imaging at the Seattle Cancer Care Alliance (SCCA), as she weighs in on the screening controversy. Also joining the discussion is Dr. Sunil Hingorani, a medical oncologist at the SCCA. He concludes the discussion with clearly defining the relationship between patient and doctor. In his own words: The relationship between patient and physician from my perspective has evolved over the last 50 years or so. It went from very much of a sort of almost patriarchal approach where the physician was "up here" and the patient was "here" and you heard from "on high" what they thought you needed…basically it really should be a collaboration, or if anything it should be the patient in the superior position and the physician there to provide the service.

Novel Approaches for Patients with Neuroendocrine Tumors Using Radiation Microspheres

Tue, 8 Dec 2009 10:00:00 PDT

You may have never heard of neuroendocrine tumors or carcinoids. These are being treated with highly effective targeted therapies that are making leaps and bounds in the treatment of rare cancers. In this program, sponsored by Northwestern Memorial Hospital, Dr. Riad Salem discusses how newer therapies can be implemented without hospitalization to achieve better quality of life, high tumor response rate and long-term survivals.

The program begins with Dr. Salem's patient, Eva. Like most cancers are found, Eva was being screened for another condition when doctors discovered many tumors on her liver, carcinoid tumors. She was referred to Dr. Salem at Northwestern and is now being treated with a new targeted therapy, appropriate for this type of cancer. Listen to hear how Eva is doing now and her thoughts on the care she is receiving at Northwestern.

Dr. Salem helps listeners to understand what neuroendocrine tumors are, where they are found and the latest treatments. He speaks extensively about targeted therapy and the use of microspheres to treat these types of tumors. Dr. Salem answers a wide range of listener questions and also discusses the future of treatment for neuroendocrine cancers. He talks about the major advances being made through research, and his team at Northwestern. To quote Dr. Salem, "All of this is something that we take very seriously because this is our job, our duty, to really facilitate things for patients. And, absolutely, I take tremendous pride in the team that we have built here at Northwestern."

Advances in the Treatment of Cervical Cancer

Tue, 1 Dec 2009 10:00:00 PDT

Approximately 15,000 women are diagnosed with cervical cancer annually. The most common cause of cervical cancer is human papillomavirus (HPV) infection. In this program, Dr. Pamela Soliman will discuss the risk factors, diagnosis and treatment of cervical cancer and share information about the future of detection and prevention.

Getting Help to Fight Osteoporosis

Tue, 1 Dec 2009 10:00:00 PDT

When Osteoporosis is discussed, it seems like the only population you hear about are post menopausal women. Unfortunately, younger people and men are at risk as well. In this program sponsored by the Washington Osteoporosis Coalition (WOC), two leading experts, Dr. Lynn Kohlmeier and Dr. Douglas Bauer, discuss ways to fight osteoporosis. Dr. Kohlmeier is an endocrinologist and Director of Spokane Osteoporosis Centers. Dr. Bauer is a general internist, clinical epidemiologist and Associate Professor of Medicine, Epidemiology and Biostatistics at UCSF Medical Center.

The program begins with David, Dr. Kohlmeier's patient. David had been healthy and active for most of his life when he began experiencing pain in his bones. After a trip to the doctor, many fractures were discovered throughout his body. David has since partnered with Dr. Kohlmeier and seen improvements in his bone health. Hear about the deficiency that she discovered and how David is doing now.

Dr. Bauer addresses the role that genetics play in osteoporosis and what you can do to prevent or slow the progression of the disease. Both experts stress the need for proper nutrition, especially when it comes to calcium and vitamin D, and the need to incorporate exercise into your daily routine. Listen to this program to learn more about risk factors, treatment, and other ways to strengthen your bones and prevent complications from osteoporosis.

Early Intervention for Lung Cancer

Mon, 30 Nov 2009 10:00:00 PDT

Lung Cancer: Detection and Early Intervention

Mon, 30 Nov 2009 10:00:00 PDT

Lung cancer statistics can be startling. When it's detected early, your chances of survival are much greater. Fortunately, experts like Dr. Jason Chien and Dr. Douglas Wood from UW Medicine, are making strides in the fight against lung cancer, and advancing treatments. In this program you'll hear how lung cancer is detected and the importance of early intervention.

The program begins with Dr. Wood's patient, Barbara, as she discusses her diagnosis. Barbara had a persistent "heaviness" in her chest that felt like bronchitis. When antibiotics didn't do the trick her doctor took an x-ray of her lungs and found a tiny spot on her left lung. Her physician wanted to "keep an eye on it" and see her again in six months. Barbara was not comfortable with waiting and was referred to Dr. Douglas Wood at UW Medicine. Hear her whole story, through treatment and surgery, and how Barbara is doing today. You can watch her Powerful Patient story, here.

Drs. Wood and Chien then join the discussion to talk about Barbara's specific situation and the importance of prevention and early detection of lung cancer. The doctors talk about determining treatment through both drug therapy and surgical treatment. Both doctors speak highly of the Lung Cancer Early Detection and Prevention Clinic at UW and the multidisciplinary team that is available. To quote Dr. Wood, "…the benefit of this evaluation is a very systematic and thoughtful evaluation of a lung abnormality that's in a multidisciplinary fashion that is a coordinated effort of our pulmonary specialists, our thoracic surgeons, and our thoracic radiologists, and we really look at each patient individually together and in a multidisciplinary fashion try to come up with the best advice for an individual patient." Listen to this program to learn more about early detection and prevention of lung cancer.

Cancer and Heart Disease

Tue, 24 Nov 2009 10:00:00 PDT

Different aspects of how cancer is treated can cause heart issues, how someone can come into cancer treatment with pre-existing heart issues, and how a specialty center like M. D. Anderson not only handles these issues, but contributes to research to make their patients healthier, and improve their quality of life.

Rectal Incontinence After Childbirth and Surgery

Tue, 24 Nov 2009 10:00:00 PDT

Childbirth can cause trauma to the pelvic floor such as tears and nerve damage, which in turn may cause fecal incontinence and/or constipation. In this webcast, sponsored by Northwestern Memorial Hospital, Dr. Anne-Marie Boller discusses the types of pelvic floor disorders and treatment options, including pelvic floor therapy, medical therapies and surgical options. Dr. Boller is a colorectal surgeon on the medical staff at Northwestern Memorial Hospital and assistant professor of Surgery at Feinberg School of Medicine, Northwestern University.

Dr. Boller begins by explaining the physical trauma a woman's body experiences during and after childbirth. She talks about incontinence and the symptoms of related problems. She goes on to discuss the various surgical and non-surgical treatments for fecal incontinence and other complications. Dr. Boller also enlightens listeners to the fact that males can also have similar problems after certain procedures related to the prostate.

Prevention is often a concern for pregnant women. Dr. Boller details the discussions that you can have with your physician in advance, and the benefits of being physically fit before and during pregnancy. If you or someone you know is concerned about pelvic health or incontinence, this program can bring clarity to an often difficult to discuss problem.

Popular Cancer Supplements: The Real Story

Tue, 17 Nov 2009 10:00:00 PDT

Often, a new supplement appears on the market claiming it's the next cure for cancer or chronic illness. How do you know if these substances safe? Would your oncologist agree? Where can you get the most accurate information? In this Patient Power program sponsored by The University of Texas M. D. Anderson Cancer Center , Dr. Wendy Demark-Wahnefried shares her expert perspective on the use and regulation of popular supplements. Dr. Demark-Wahnefried is a registered dietitian and Professor of Behavioral Science at M. D. Anderson Cancer Center.

The program begins with Ralph, a retired transplant surgeon, who participated in a clinical trial for flax seed after being diagnosed with prostate cancer. To quote Ralph "I'd preached participation in clinical trials, particularly for transplant drugs, for 30 plus years, and so here was my chance to take part as well." He joined Dr. Demark-Wahnefried's study and, at first, was skeptical about the difference that flax seed made. Ralph shares his experience, as well as the outcome, of his clinical trial experience, including how he feels about flax seed now.

Dr. Demark-Wahnefried helps listeners to understand what supplements are, how they can affect your health, their interactions with drugs, and stresses the need for open communication with your physician. She cautions listeners about the "lax" regulations on supplements and why these can be harmful to your health. Dr. Demark-Wahnefried later discusses antioxidants and the necessity of following a healthful diet rich in "whole foods." Listen to this program to learn the 'real story' on supplements and claims being made by the manufacturers of various supplements.

Breaking News: A Breast Radiologist's Perspective on Cancer Screening Guidelines

Tue, 17 Nov 2009 10:00:00 PDT

Connie Lehman, M.D. is Director of Breast Imaging at the Seattle Cancer Care Alliance and a highly respected researcher at the University of Washington. She has led many studies, including recent recommendations on the use of MRI to follow women at higher risk for breast cancer. She, like many doctors, is questioning the recommendations that women begin screening mammograms at age 50, have them only every two years, and stop as they get into their 70's.

As the controversy loomed, Andrew Schorr, queried Dr. Lehman about her views at our How to be a Powerful Patient town meeting.

In-Person Powerful Patient Event

Sun, 15 Nov 2009 10:00:00 PDT

On Sunday, November 15th, 2009, at a community center near Seattle, 150 doctors, nurses, patients, and family members gathered to discuss "How to be a Powerful Patient" in very practical terms. We recorded the event, so even those who could not attend the event will be able to benefit from the invaluable tips that were shared. For more information about the event, go to patientpower.info/events.

Our plan is to host similar events in other cities. We'd love your suggestions and to keep you up-to-date as we expand our activities, including publishing the book, "Patient to Patient: A Web-savvy Survivor's Guide to Facing Medical Crisis."

Sight-Saving Neighborly Advice

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Richard Munsen, and many others.

Having a "Family Plan" for Medical Care

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15, 2009 "How to be a Powerful Patient" Event featuring Dr. Josh Benditt.

Setting the Tone with Your Nurse

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15, 2009 "How to be a Powerful Patient" Event featuring Lorie Willd, R.N.

Expert Perspective on Breast Cancer Screening

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Connie Lehman, and many others.

The Three "A's" of What to Look for in a Physician

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Benjamin Starnes, and many others.

The Importance of Getting a Second Opinion

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Jens Chapman, Diane Osborne, and many others.

Primary Care Tips for Patients

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Doreen Kiss, and many others.

Meet "Tom & Jerry"

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Anette Lusher, a lung transplant recipient, and many others.

A Transplant Surgeon's Philosophy in Patient Care

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Michael Mulligan, Anette Lusher, and many others.

The Importance of Long Term Follow-up

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Chappie Conrad, and many others.

You've Always had the Power

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Sunil Hingorani, and many others.

Doctors Don't Know Everything

Sun, 15 Nov 2009 10:00:00 PDT

Talk from the November 15th, 2009, "How to be a Powerful Patient" event, featuring Dr. Russ Van Gelder.

An Expert's Comment on Breast Cancer Screening Guidelines

Wed, 11 Nov 2009 10:00:00 PDT

With breast cancer being responsible for over 40,000 deaths a year, who should be screened and who shouldn't? On this episode of Patient Power sponsored by Seattle Cancer Care Alliance (SCCA), Dr. Wendy DeMartini joins the conversation to bring clarity to screening guidelines which, more often than not, many patients find challenging to understand. Dr. DeMartini is assistant professor in the Department of the Radiology Breast Imaging Section at SCCA. She talks about screening standards for women and what it means to be high-risk. Recent news about potential 'over-screening,' and whether or not the benefits to screening women under the age of 50 outweighed the disadvantages, has stirred up quite a controversy.

Dr. DeMartini highlights the screening recommendations of the American Cancer Society and why organizations like the SCCA stand firm on these guidelines. She talks about the benefits of traditional mammography for young women and older women, risk factors for breast cancer, and the how genetics can significantly increase your risk. Dr. DeMartini also discusses screening for women with breast implants, dense breasts and the role obesity plays in assessing risk for breast cancer.

Dr. DeMartini concludes by helping listeners to understand how imaging tests can be an important early detection tool. To quote Dr. DeMartini, "…it is important to realize that really with our imaging tests we can in most cases detect breast cancer early with our mammography and with our breast MRI, and early detection, as we know, increases the likelihood of a good outcome. So most women, even those at high risk, we're going to do a good job of finding their breast cancers early and allow them to get treatment and have it a nice outcome." If you are interested in learning more about the use of breast MRI and screening, this program offers a wealth of crucial information, likely to impact you or a woman you know.

Robotic Surgery for Fibroids: What are the Advantages?

Tue, 10 Nov 2009 10:00:00 PDT

Possibly as many as 80% of all women have uterine fibroids and the majority have no symptoms. In this episode of Patient Power, sponsored by Northwestern Memorial Hospital, Dr. Michelle Luthringshausen discusses treatment for uterine fibroids, specifically the advances of robotic surgery. Dr. Luthringshausen is a gynecologic surgeon on the medical staff at Northwestern Memorial and assistant professor of Obstetrics and Gynecology at Feinberg School of Medicine, Northwestern University.

Jill, a 43-year-old healthy woman, began feeling very tired, having heavy periods, and just not feeling like herself in early 2009. Jill was feeling discomfort and pressure on her bladder and finally made a visit to her doctor in June. Her evaluation ultimately lead to the discovery of 4 uterine fibroids and she was immediately referred to Dr. Luthringshausen at Northwestern. Jill had robotic surgery to remove the fibroids and she shares how she is doing today.

Dr. Luthringhausen gives an explanation of what fibroids are and the symptoms. She discusses how fibroids are removed and how fertility is preserved in the process. Dr. Luthringshausen talks about how she determines what treatment is appropriate and the factors that are considered. She also compares the various surgical options for hysterectomy and myectomy and other treatments options to consider when faced with uterine fibroids, including the advances being made with robotic surgery. This program is an enlightening discussion on the advances in the treatment of uterine fibroids.

The ABCs of Stem Cells

Tue, 3 Nov 2009 10:00:00 PDT

What are stem cells? Who do they benefit? Why the controversy about different types of stem cell research? In this Patient Power program, sponsored by The University of Texas M. D. Anderson Cancer Center, Dr. Frank Marini III, helps define stems cells and describe their role in the future of medicine. Dr. Marini is a leading stem cell researcher and an associate professor in the department of stem cell transplant and cellular therapy at M. D. Anderson.

First, Dr. Marini explains exactly what stems cells are, differentiating the types of stem cells such as embryonic and adult stem cells. He goes on to discuss the potential that these types of cells have in changing the face of medicine and how many who have chronic disease, including cancer, may be treated. Dr. Marini goes into detail about cell lines, how they work, and how researchers are using stem cells to learn more about cancer.

The research at M. D. Anderson is evolving not only the way cancer is treated, but helping experts around the world to better understand cancer in general. If you'd like to better understand stem cells, future applications of them as treatment, and the current research being conducted, please listen to this Patient Power webcast.

What's Your Risk for Osteoporosis?

Tue, 3 Nov 2009 10:00:00 PDT

Osteoporosis affects approximately 25 million people in the United States today, and some people are calling it the silent crisis. In this program, sponsored by the Washington Osteoporosis Coalition, two leading experts help listeners to understand their risk and what can be done about it. Dr. Philip Mease is a clinical rheumatologist at Swedish Medical Center and Dr. Christopher Shuhart is medical director of Swedish Physicians Bone Health and Osteoporosis at Swedish Medical Center.

The program begins with 65-year-old Carole Clark. Carole became aware of her genetic risk of osteoporosis when her Mother, Eleanor, was diagnosed at age 70 and had complications from the disease. Carole began having discussions with her own doctors about the risks and what she could do to prevent osteoporosis. She has been very proactive and tailors her lifestyle, through diet and exercise, to slow the progression of osteoporosis and lessen her chances of complications.

Dr. Mease begins by explaining osteoporosis and the problems that can develop because of the condition as well as the genetic connection, which is the biggest factor when considering your risk. Dr. Shuhart stresses the need for open communication with your primary care physician, and the need for proper screening for osteoporosis. Both experts talk about the screening process, the new instruments that are available for assessment, and the important role of diet and exercise in the treatment and prevention of osteoporosis. If you, someone you know, or a family member is affected by osteoporosis, this program is an excellent resource for learning about the condition.

Diabetes: The Epidemic

Mon, 2 Nov 2009 10:00:00 PDT

Taking Care of Diabetes and Avoiding Complications

Mon, 2 Nov 2009 10:00:00 PDT

According to the American Diabetes Association there are 23.6 million people in America with diabetes. That's 8% of the population and, unfortunately, that number is growing. In this Patient Power program, you'll hear Dr. Neeti Choudhury and her patient, Richard, share their perspective and tips on the management of diabetes and most importantly tips for prevention. Dr. Choudhury is an Internal Medicine Specialist at UW Medicine Neighborhood Clinics.

The program beings with Richard "Rick" Roberts as he shares his story about being diagnosed with type 2 diabetes about 10 years ago. When Rick's wife found out she was pre-diabetic, they made some big changes. Rick connected with Dr. Choudhury and began his journey. Both he and his wife have lost weight through a healthy lifestyle of diet and exercise. Listen to this program to hear how Rick gained control of his diabetes, and his life.

Dr. Choudhury helps listeners to understand type 1 and 2 diabetes and the complications of the condition. She discusses the various treatment options, stressing the importance of close monitoring of your blood sugar, diet and exercise. The doctor-patient relationship is key. To quote Rick "So you've got to watch your nutrition, you've got to get some exercise, you've got to monitor your glucose, and work very closely with your doctor." If you're searching for information about diabetes, this program is a great resource.

Watch Rick's Powerful Patient video, here.

Surgical Options for Breast Cancer

Wed, 28 Oct 2009 10:00:00 PDT

Surgical options for breast cancer can leave women feeling overwhelmed. On this episode of Patient Power, Andrew is joined by Seattle Cancer Care Alliance (SCCA) breast surgical specialist Dr. Kristin Calhoun for a better understanding of available options for women diagnosed with breast cancer requiring surgery. Dr. Calhoun is assistant professor in the surgery department at SCCA, the first breast surgeon on the team. Her patient Suzie Hagerland also joins the program to share how she believes a team approach to care made all the difference and "took the fear out it."

After being diagnosed with breast cancer, Suzie and her husband Stasa were proactive and did their research. Suzie sought the care of the best oncologists—a search that led her to Dr. Calhoun and her team at the SCCA. Tests revealed Suzie's cancer spread to her lymph nodes, requiring a lumpectomy. Suzie was impressed with the "team approach" to care she received at the SCCA and is currently undergoing the last stages of chemotherapy.

Dr. Calhoun expands the discussion and sheds light on Suzie's story while offering a clinical perspective on how she and her team explain surgical options to patients. While most patients are eager to know their options, some are anxious to move rapidly. Dr. Calhoun talks about these patients, when lymph nodes should be removed and various options for reconstructive surgery. Most importantly, Dr. Calhoun emphasizes the importance of patients asking questions and learning all they can to make the best decisions, especially when it comes to surgery. To quote Dr. Calhoun: There is no such thing as a stupid question. And really I can explain and I can tell someone what the options are, but I've done my job if they understand why these options are available to them.

Depression: A Treatable Illness

Tue, 27 Oct 2009 10:00:00 PDT

Depression is one of our greatest health problems. It affects literally millions of people. There are people who are depressed but don't know it or it's not acknowledged, yet depression is a treatable illness. In this episode of Patient Power, sponsored by Northwestern Memorial Hospital, we'll connect you with a leading expert, Dr. Joan Anzia, to help you understand how depression can be treated. Dr. Anzia is a psychiatrist, Vice Chair for Education and Residency Training Director for the Department of Psychiatry, and Physician Health Liaison at Northwestern Memorial Hospital.

Dr. Anzia begins by helping listeners to understand what depression is, and what the difference is between simple sadness and depression. She talks about the symptoms and triggers of depression and how those symptoms vary. Dr. Anzia also touches on untreated depression, how most people with major depression never seek treatment, or the diagnosis is missed when visiting with their primary care physician.

Dr. Anzia goes on to speak of the various treatments for depression. She talks about the benefits of cognitive behavioral therapy and interpersonal therapy. Dr Anzia then discusses the various medication used to treat depression, how they work and the side effects that are often associated with antidepressants. Getting support if you have depression or providing support for loved ones is an important part of treatment and Dr. Anzia shares resources and tips for support. If you or someone you know is suffering from depression, this program is a must-listen.

Advances in Heart Transplant

Wed, 21 Oct 2009 10:00:00 PDT

A heart transplant can be life-extending and certainly lifesaving. Since 1985, Oregon Health & Science University (OHSU) has performed more than 500 heart transplants. Twelve of these patients have passed the 20-year survival mark, joining the fraternity of the world's longest surviving heart transplant recipients. In this program, you'll hear from Dr. Antony Kim and his patient, Robb, as they discuss the advances and successes in heart transplant.

Robb McKeregan, a 37-year-old from Hillsboro, Oregon, and transplant recipient shares his story with listeners. Robb has a genetic heart condition and was overweight when he was told that he had 90 days to live. Doctors implanted a ventricular assist device (VAD) to bridge the gap to transplant while Robb began his weight loss journey - he lost 128 pounds in 8 months through diet and exercise. He received his heart transplant in May of 2009 and continues to lead a healthy life today.

Dr. Antony Kim, director of Heart Failure and Transplantation at OHSU, talks about Robb's specific condition and then goes on to discuss when advanced therapy, like heart transplant, is appropriate for those with heart conditions and the necessary evaluations. Dr. Kim also touches on treatments that can improve, and extend, life for those waiting for transplants. He shares a wealth of information about heart transplant that includes a discussion of blood type, pre-operative therapies and requirements, and takes you through the actual surgery and recovery. Dr. Kim also details the improvements and refinements in transplant and his hopes for the future. Listen to this program to learn more about advances in heart transplant.

Breast Cancer Imaging

Wed, 21 Oct 2009 10:00:00 PDT

In a perfect world, early detection for all cancer patients and seamless collaboration with radiologists, surgeons, and oncologists, would change the lives of many patients. With 1 in 8 women being diagnosed with breast cancer each year, specialists around the country are doing their best to perfect the processes for screening methods, and in many cases, these tools are assessing whether or not therapies are effective. Hear how the Seattle Cancer Care Alliance continues to set the standard for breast cancer care across the country.

Understanding Von Hippel Lindau Syndrome

Tue, 20 Oct 2009 10:00:00 PDT

Von Hippel Lindau disease (VHL) is an inherited gene mutation that affects around 1 in 40,000 children born. It causes tumors to form in areas of the body that contain large numbers of blood vessels. In this program, sponsored by The University of Texas M. D. Anderson Cancer Center, Dr. Eric Jonasch and a patient living with the condition join Andrew Schorr of Patient Power to discuss the diagnosis and treatment of VHL. Dr. Jonasch is associate professor in the Department of Genitourinary (GU) Medical Oncology at M. D. Anderson Cancer Center.

The program begins with Clay, diagnosed with VHL 12 years ago at the age of 21. Clay speaks candidly about his initial diagnosis, symptoms early on, and what he's been through in the last 12 years. He talks about the care he receives at M. D. Anderson and how he has partnered with Dr. Jonasch to take preventative measures with his health. Today Clay leads a very normal life, though is closely monitored by Dr. Jonasch and the team at M. D. Anderson.

Dr. Jonasch helps listeners to understand what VHL is and how it manifests in the body. He goes on to talk about the evaluation and treatment necessary for VHL, including an explanation of the surgeries that Clay has undergone and why they were necessary. Dr. Jonasch then discusses advocacy and research for VHL, and explains why he's optimistic about the future. To quote Dr. Jonasch "I am optimistic. I think that we are beginning to understand how this is affecting people, and it's a question of doing some hard work, but we are starting to get the tools necessary to make a difference, and I hope that that difference will really begin to start benefiting patients."

Advances in Radiology: The Benefits of Low-dose CT Technology

Thu, 15 Oct 2009 10:00:00 PDT

BREAKING NEWS DEC. 14, 2009:Two studies, published by American researchers in the Archives of Internal Medicine, found radiation from CT scans done in 2007 could cause 29,000 cancers and kill nearly 15,000 people. The findings add to a growing body of evidence that Americans are overexposed to radiation through diagnostic techniques, of particular concern are CT scans. The individual risk still remains relatively low, and there is certainly a risk-benefit discussion that patients should have with their doctor. Researchers site the lack of regulation, even within the same hospital from one piece of equipment to another, when it comes to the level of radiation patients are exposed to. Listen to the program below and find out what you need to know and what questions to ask your doctor.

Have you ever had a CT scan? This sophisticated but common imaging technology is effective, but do you ever think about the radiation from it? UW Medicine Radiologists have discovered new techniques to perform low-dose CT scans without image compromise. This new CT technology produces high-quality diagnostic information out of every scan with a significantly reduced dose for patients. The result is high quality images, with up to 60 percent less radiation than a regular CT scan. In this program, sponsored by UW Medicine, Dr. Kapana Kanal and Dr. William Shuman join host Andrew Schorr to discuss the benefits of these new technologies.

Dr. William Shuman, director of clinical radiology at the University of Washington (UW), begins the program by explaining radiation, what it is and how it affects everyone in their daily life. He talks about the effects, as related to cancer, and why he and his team are researching lower dose CT scans, and when this low-dose CT scan is appropriate. Dr. Kapana Kanal, a medical physicist at UW, shares her perspective and speaks more specifically about preserving the image quality of the CT scans while reducing the radiation exposure. The guests help listeners to understand the advances in technology and techniques that are making low dose CT scans possible.

Both Dr. Shuman and Dr. Kanal stress that limiting your exposure to radiation throughout your lifetime is important. Though the risk is not that high, there is still some risk and patients need to be aware of it so they can make informed decisions. That being said, these experts and their team at UW Medicine are doing their best to protect the patient while using radiation techniques effectively, as necessary. To quote Dr. Shuman "It's just been a major, major tool for improving the quality of healthcare, but we have to do that with the risk side very much in our mind and on our radar screens, if you will, so that we keep the risk as low as possible, and we always are looking for maximal benefit to the patient and for the expense of doing the scan."

Benefits of Ventricular Assist Devices (VADs)

Wed, 14 Oct 2009 10:00:00 PDT

If you have heart failure, the wait for a heart transplant can be long and risky. Luckily, new advances in Ventricular Assist Devices (VADs) are helping to replace the function of a failing heart. In this program, sponsored by Oregon Health and Science University, Dr. Howard Song along with his patient, a heart transplant recipient, discuss the role of ventricular assist devices in bridging the gap to transplant.

Just a short time ago Dale Nye was diagnosed with congestive heart failure. When he learned that his only option for a good and lasting outcome was heart transplant, his doctors recommended a ventricular assist device to help his heart function properly during the wait for a new heart. Mr. Nye talks about how the device allowed him to lead a normal life and made a big difference in the way he felt. He also shares his transplant story and how he feels healthier today than he has in a long time.

Dr. Song explains how the VAD functions, how it helps the heart to pump blood efficiently and increases the quality of life for those with heart failure. Dr. Song also explains what heart failure is and the genetic connection. He speaks of the technological advances being made with devices like a VAD and how it's changing the landscape of treatment for many conditions. To quote Dr. Song "So it really is an exciting period of time for this field, and we expect that in the coming year or two we'll be able to help more and more people with this kind of device." If you or someone you know are looking to learn more about VADs, heart transplant or heart failure in general, this program provides a wealth of useful information.

Strategies for Keeping Stress in Balance

Tue, 13 Oct 2009 10:00:00 PDT

Stress. We all feel it sometimes, and a little bit can be energizing, but too much can trigger responses in your body that can negatively affect both your mental and physical health. In this webcast, sponsored by Northwestern Memorial Hospital, Dr. Gregory Petersen discusses the relationship between stress and health and highlights the warning signs that stress may be out of balance. You'll also hear from Wendy, who works with Dr. Petersen to manage stress that got out of control after a diagnosis of chronic fatigue syndrome (CFS).

Wendy begins by talking about the symptoms she was experiencing. The stress in her life had become too much, some days she was too fatigued to get out of bed. After her CFS diagnosis, Wendy was referred to the Center for Integrative Medicine and Wellness at Northwestern to get help with managing the stress in her life. Each person has stress limitations and it is important to be able to recognize when stress can have a negative impact on mood and health. Dr. Petersen helped provide Wendy with tools to get back to work, cope with stress and have a normal social life.

Dr. Petersen helps listeners to understand how stress is evaluated, including the possible genetic predisposition. He shares strategies and techniques for dealing with stress and maintaining a balance between work life and your social life. Dr. Petersen discusses when it is necessary to seek help, the mind-body connection and how your emotions can affect you physically. Listen to this information-packed program to get tips and tools for dealing with the stress in your life, and find out what resources are available for you.

Stroke Prevention with Carotid Surgery or Stenting

Tue, 22 Sep 2009 10:00:00 PDT

Carotid artery disease can lead to stroke, which is the third leading cause of death in the United States. It's a major cause of disability. How do you limit your risk? What are the warning signs? In this program, sponsored by Northwestern Memorial Hospital, Dr. Mark Eskandari discusses the diagnosis and treatment of carotid disease as well as how to prevention stroke. He also helps listeners to understand the indications for surgical treatment and the goals of therapy.

Dr. Eskandari begins by explaining the symptoms and risk factors for stroke, and what to do if you or someone you know is experiencing these symptoms. He goes on to discuss the evaluation and testing for a stroke and helps listeners to understand the different types of stroke. There are a range of treatments for stroke and Dr. Eskandari goes into a detailed explanation of the medical therapies and surgical treatments available. He speaks in detail of the various surgical procedures, such as endarterectomy and stenting, and addresses the recovery and benefits of these procedures.

Research and clinical trials are evolving the way that stroke is treated and Dr. Eskandari speaks highly of the advances in technology. Most importantly, Dr. Eskandari stresses the need for early intervention and knowing your risk factors for stroke. If you are at risk for stroke or simply want to learn more, listen to this program to learn about medical therapies available and how to get the best care for you or a loved one.

Finding Relief for Chronic Pain

Mon, 21 Sep 2009 10:00:00 PDT

We all experience pain in a different way, making it impossible to standardize measurement and difficult for doctors to diagnose and treat. If you've been suffering with chronic pain, maybe for years, can the latest technology and the wisdom and experience of a pain specialist bring you relief? Maybe so. In this program featuring doctors from the UW Medicine Center for Pain Relief, you'll hear how experts are using cutting edge technology, along with a combination of therapy methods to find the true source of patients' pain and in many cases give them their lives back.

Angela Weaver also joins the program. Angela suffered from chronic head and neck pain for over two years, while visiting countless doctors who could not locate the source of the pain. When it seemed as if nothing could be done, Angela was finally connected with Dr. Andrea Trescot, who Angela says, "literally gave me my life back." Dr. Trescot, Professor of Anesthesiology & Pain Medicine at the University of Washington Medical Center, explains the processes she used to find the source of Angela's pain.

Dr. Alex Cahana, Medical Chief of the Division of Pain Medicine in the Department of Anesthesiology & Pain Medicine at the University of Washington Medical Center, chimes in to discuss how pain is categorized and the appropriate strategies for treating the different types of pain. He also talks about the mental health aspects of pain and the factors that can influence pain levels. Both Dr. Trescot and Dr. Cahana stress the importance of finding the source of the pain early and the new techniques for evaluating chronic pain. If you or someone you know is struggling with chronic pain, this program is a great resource to help you get the best care.

Chronic Pain: You Can Find Help

Thu, 17 Sep 2009 10:00:00 PDT

Promising Therapies for High Risk Melanoma

Wed, 16 Sep 2009 10:00:00 PDT

A simple mole or bump - could it be melanoma? Melanoma is one of the most dangerous cancers, but promising therapies are giving risk melanoma patients high hopes for a near full recovery. In this program sponsored by the Seattle Cancer Care Alliance (SCCA) you'll hear from Dr. Kim Margolin, professor at University of Washington School of Medicine (UW) and SCCA member, gives listeners an in-depth look at the role of clinical trials and investigational therapies for this type of cancer and others.

Tracy Filipi, of Seattle, Washington, a 52-year-old telecommunications senior sales representative was devastated when she was diagnosed with melanoma. Tracy knew there were few treatment options and was later referred by her general practitioner to Dr. John Byrd at the University of Washington. Dr. Byrd immediately took on her case as soon as he knew the full details of her diagnosis and introduced her to Dr. Margolin and her team. Tracy underwent surgery, and later entered a double blind study. Listen to learn more about Tracy's story and find out how she is doing now.

Dr. Margolin's clinical expertise is in the treatment of melanoma with particular interest in clinical trials that provide the newest investigational therapies for patients. She helps listeners grasp the importance of experts understanding the "patient's specific disease" and what trials are available for high-risk melanomas as in the case of Tracy. She focuses on the concept of repairing genetic damage, mutations, and the features of resistance in chemotherapies. Dr. Margolin also talks about her hopes of a vaccine for melanoma. Dr. Margolin remains hopeful that much of what is being studied will soon be available for patients. If you are interested in learning more about melanoma research and clinical trials, listen to this program.

Patient Empowerment and the World Wide Web

Wed, 9 Sep 2009 10:00:00 PDT

Now more than ever before, you and other patients are realizing the importance of taking charge of your personal health. What does it mean to be an empowered patient? How can the internet help, or hinder, your search for valuable health information? Whether you're a newly diagnosed cancer patient or looking for how to treat a sports injury, chances are you'll be searching the Internet for answers. Navigating the muddy-filled waters can be difficult for anyone, particularly when it comes to deciphering the credible information. On this unique Patient Power Health Issues program, hosted by Patient Power Founder Andrew Schorr, and co-host Medical Industry expert Peter Frishauf, special guests Gilles Frydman, founder of ACOR.org and Dave DeBronkart, also known as "e-patient Dave," an outspoken patient blogger, all weigh in on what it means to be an empowered patient. Learn how the power of the internet is changing the way health information is shared and, if used correctly, can put you - the patient - in the driver's seat.

Minimally Invasive Surgery to Repair Life-threatening Aortic Aneurysms

Tue, 8 Sep 2009 10:00:00 PDT

When the large blood vessels that supply blood to the abdomen, pelvis and legs become abnormally large or balloon outward, the condition is called an abdominal aortic aneurysm (AAA). In this webcast sponsored by Northwestern Memorial Hospital, Dr. Mark Morasch joins Andrew to discuss the risk factors for abdominal aortic aneurysm and highlight when endovascular stent grafting is recommended. Dr. Morasch is Co-director of the Thoracic Aortic Surgery program at the Bluhm Cardiovascular Institute at Northwestern Memorial Hospital.

The program begins with Dr. Morasch's patient, Gerald, from Gary, Indiana. Gerald speaks candidly about when he was initially diagnosed while undergoing an MRI for back pain. He was immediately referred to the emergency room for further testing and they discovered the AAA. Through the advice of family members, he chose to seek treatment at Northwestern. His surgery was performed by Dr. Morasch on a Tuesday and Gerald was on his way back home the next morning. Listen to hear more of Gerald's story and how he's doing today.

Dr. Morasch helps listeners to understand exactly what an aneurysm is, why it happens and the genetic connection. He details the various treatment options for AAA and explains who is a candidate for surgery, and the risks of surgery. Dr. Morasch also stresses the importance of screening and observation, including a discussion of the SAAAVE bill passed by Congress in 2006 to allow a screening benefit for Medicare patients. He provides answers to a variety of listener questions and shares his insights about research and the future of treatment for AAA. If you or a loved one has been touched by this condition, listen to this program to learn more.

Cognitive Challenges After Hormone Therapy

Wed, 26 Aug 2009 10:00:00 PDT

We frequently hear about the side effects of cancer treatment, like nausea and hair loss, but rarely do we hear about how these treatments, specifically hormone therapy, can affect your memory and cognitive thinking abilities. On this episode of Patient Power, sponsored by the Seattle Cancer Care Alliance (SCCA), you'll hear from Dr. Monique Cherrier and Dr. Celestia (Tia) S. Higano, two leading experts in the field. Dr. Cherrier is professor of medicine and a medical oncologist at the University of Washington, the SCCA and Fred Hutchinson Cancer Research Center. Dr. Higano is a neuropsychologist and director of the University of Washington Memory Health Research Program. Both experts share what they are learning about hormone therapy, and it's lasting side effects.

Dr. Higano speaks about the history of hormone therapy, the role of PSA tests and how questions and complaints over the years from spouses have pushed researchers to investigate the causes of cognitive breakdowns among various patients. Does the patient have a high-stress job? Was this a pre-existing condition? Dr. Cherrier talks about experimental measures and clinical measures assisting them in researching the causes of cognitive disruption. Both experts discuss androgen deprivation therapy, the impact of testosterone in hormonal studies and the variances of cognitive issues being examined.

Dr. Higano and Dr. Cherrier both emphasize the importance of being proactive to prevent negative side effects and how research has brought great progress in this area. If you or someone you know has undergone treatment for prostate cancer, learn how cognitive functions can be affected and how talking to your doctor about proactive steps, can make a difference. Find out more about the motivation behind current studies and clinical trials and how these two experts, along with top experts around the country, are helping to make cancer and cancer treatment more tolerable.

The Promise & Peril of Personalized Oncology

Tue, 25 Aug 2009 10:00:00 PDT

It seems like everyone is talking about personalized medicine. What is the real promise here and what might be hype? Personalized medicine in cancer includes the use of genetic testing to determine the molecular makeup of a tumor. It also addresses other important issues, like cancer not being just one disease. 'Breast cancer' and 'lung cancer' are both comprised of many different diseases, and many respond to different therapies. All of this enables physicians to match the patient with the best treatment, sparing patients from undergoing therapy that may not yield the best results. Expanding the discussion on this episode of Patient Power is Dr. Jeffrey Sosman, Professor of Medicine in Hematology/Oncology and Dr. William Pao, Ingram Associate Professor of Cancer Research at Vanderbilt-Ingram Cancer Center. Lee, a patient, also joins the discussion to share how this ground floor research in personalized oncology care has impacted his life.

Lee Lange, of Clarksville, Tennessee, is a 62-year-old former high school biology teacher. He is fighting for his life against advanced melanoma, which first appeared in his brain, and later in his abdomen. Lee was lucky enough to have his cancer cells studied for their genetic makeup and benefited greatly by participating in a clinical trial at Vanderbilt University Medical Center where an experimental medicine targeted his specific cancer-causing gene. The personalized approach held the cancer in check for about a year and a half. Now Lee is enrolled in a second clinical trial and believes his participation in trials at a major research institution has significantly lengthened his life.

Dr. Sosman talks about melanoma research over the years and how the study of specific genes has altered the atmosphere of recommended therapies. He speaks about matching abnormalities in tumor cells with specific therapies to that abnormality, not only for melanomas, but for all cancers across the board. He emphasizes this process should be reproduced for all cancers, "whether they come from the colon, mouth, skin or the gallbladder." A concept he describes as changing the "approach to treatment." Dr. Pao focuses on research efforts in the past decade honing in on why cancers occur in the first place. Don't miss this jam-packed program where a researcher, doctor and patient all offer a glimpse into the future of personalized cancer care.

See Andrew's Blog on this Topic!

Thyroid Cancer: A Growing Problem for Young Women

Tue, 25 Aug 2009 10:00:00 PDT

For young women with thyroid cancer, it raises many question beyond just the treatment for their cancer. What are the complications of treatment? What are the treatment options when thyroid cancer is discovered during pregnancy? What effect does thyroid cancer have on fertility? In this webcast sponsored by Northwestern Memorial Hospital, Dr. Jose Dutra answers these questions and talks about why the incidence of thyroid cancer is on the rise. Dr. Dutra is Director of the Thyroid Surgical Clinic in the Department of Otolaryngology/Head and Neck Surgery at Northwestern Memorial Hospital.

He begins by discussing the increase in thyroid cancer, and contends that it is, at least in part, due to improved detection and screening. Thyroid cancer is often discovered when seeking medical attention for another issue. Dr. Dutra then goes on to explain the treatment options for thyroid cancer. He details what radioactive iodine is and how it works to kill the cancer cells. He also addresses the effect of this type of radiation on pregnancy and fertility and calms the concerns of younger women with thyroid cancer.

Dr. Dutra provides addresses many listener questions, including those about side effects of treatment and, again, concerns surrounding pregnancy. He talks about surveillance, follow-up and the positive prognosis for those diagnosed with thyroid cancer. If you or someone you know has been affected by thyroid cancer, this program can help to ease your mind and give you the hope you are searching for.

The Latest in Care for Heart Attack

Thu, 20 Aug 2009 10:00:00 PDT

Would you know what to do if you were having a heart attack? What are the most crucial and immediate steps to take? Getting the right medical evaluation QUICKLY is critical to saving your life. Hear from a leading cardiologist, Oregon Health & Science University's Dr. Joaquin E. Cigarroa, about the latest in research and what you need to know that may save your life.

Midwifery: From Conception to Delivery

Mon, 17 Aug 2009 10:00:00 PDT

Midwives are health care professionals who provide care for women throughout the lifespan, often with a particular focus on the childbearing years. All midwives at UC San Diego Medical Center are certified nurse midwives, registered nurses with advanced training in obstetrical and gynecological care. Rita Wagner, a midwife at UCSD's Birth Center, joins this unique Patient Power program to help listeners understand the benefit of having a midwife during childbearing years and beyond. Loralyn Cross, one of Rita's patients, joins the hour to share her intimate experience of delivering a healthy baby girl, with her midwife, Rita, by her side.

Loralyn, a 27 year-old mother from Tierrasanta, California, describes her experience of giving birth at UCSD's Birth Center in May of 2009. Loralyn delivered a beautiful baby girl named Aurora. Experiencing birth and all the emotion that accompanies this time in a woman's life was all Loralyn wanted to experience. After seeking care from another medical center, Loralyn decided she wanted a more personalized approach to care. After switching to UCSD about halfway through her pregnancy, Loralyn decided she wanted to have Aurora in the UCSD Birth Center. Loralyn describes her family as "sort" of a UCSD family, she also works at UCSD as an administrative specialist for the Dean's Office in the Skaggs School of Pharmacy and Pharmaceutical Sciences. Read or listen to more of Loralyn's story and learn how this experience forever changed her and her family.

Nurse Rita talks about prenatal care received from midwives and standards of care that doctors and midwives use throughout the country. She also talks about what makes midwifery care unique, the individual attention given to each patient, their concerns, and their expectations throughout the pregnancy and birth.

In eight years at UCSD, the UCSD midwives have attended over 8,000 births, more than one-third of all the babies born in the facility. If you are thinking about having a child, learn how places like UCSD's Birth Center are providing home-like settings for expectant mothers and sharing a common philosophy of family-centered, woman-centered care for families.

How Can You Be a Powerful PKU Patient & Advocate for Yourself or a Loved One?

Thu, 13 Aug 2009 10:00:00 PDT

Click here to sign up to receive more information from the program sponsors and the Patient Power PKU e-newsletter.

Getting the best care for PKU, or any condition for that matter, requires you to be a proactive participant in your healthcare…to be a strong, but respectful advocate. Working closely with your metabolic team to manage your PKU yields the best results. Joining this discussion is an adult with PKU, a metabolic dietician, a social worker, and a medical doctor - all have devoted their lives to the care and management of PKU patients. Finding ways to successfully master the complexities of this specialized diet for you or a loved one is the goal of this Patient Power program.

Tim Kelly is 31-year-old with PKU. As a child he adhered to a strict low-protein diet, but as he entered adolescence, he slipped away from managing his Phe levels on a regular basis. As he came to grips with the seriousness of his condition, Tim sought care at Children's Memorial Hospital where he met Lauren Leviton, a social worker who assisted him and other patients find their way back to good management of their Phe levels and most importantly, helped to maximize their potential for good health and productive lives. Dr. Gerard Vockley, Chief of Medical Genetics at the Children's Hospital of Pittsburgh of UPMC, also joins the program to discuss the challenges for adults transitioning back to a PKU diet and the innovations in medications and low-protein foods to help patients like Tim keep their Phe levels low. Shideh Mofidi, a metabolic dietitian and clinical coordinator at the Maria Fareri Children's Hospital at the Westchester Medical Center, joins the discussion to share her insight and offers a glimpse into the world of her PKU patients. She describes how difficult life can be when off diet, and strategies for positioning PKU management in positive ways for parents and children.

In this special edition program on Patient Power, each guest adds their voice to the message of self-advocacy. There are many ways a PKU patient can manage their condition effectively including honest communication with their healthcare providers, connecting with others with PKU, becoming involved in research, and finding the diet and medication strategies that work best. This program is packed with tips, ideas, and personal stories to help illuminate the roadmap to proactively getting on and staying on track with PKU.

Click to here to view and print the Take Action Guide

Cómo puedes ser un paciente con PKU asertivo y defender tus derechos o los de un ser querido?

Thu, 13 Aug 2009 10:00:00 PDT

A Team Approach for Treating Sarcoma in Children and Adults

Wed, 12 Aug 2009 10:00:00 PDT

On this episode of Patient Power, sponsored by Seattle Cancer Care Alliance (SCCA), listeners will learn about team approaches for treating sarcoma in both children and adults. Recognized around the world as a pioneer in the treatment of sarcoma, Dr. Earnest "Chappie" Conrad joins Andrew for a look at what both young and adults patients can expect in the future of treating sarcoma, surgically and non-surgically. Among his many titles, Dr. Conrad is chairman of orthopedics at Seattle Children's Hospital. He's also director of the sarcoma service for the SCCA, and he's co vice chairman of orthopedics at the University of Washington.

Dr. Conrad speaks candidly about limb sparing procedures for children with sarcomas, bone cancers, major challenges in reproducing growth, and how this can be accomplished mechanically, magnetically and even non-surgically. Dr. Conrad also speaks about the cure rate being higher for children under the age of 20 than for adults, with the average survival for a child with a high grade sarcoma at a 75 percent survival rate over the first five years. Hear more about high-grade tumors, risk factors for surgery and how research continues to improve long-term survival for sarcoma patients. Dr. Conrad talks about the importance of a multidisciplinary team and common overlaps between treating children and adults with sarcoma. Often, this team includes an oncologist, surgeon, pathologist, radiation therapist, and other surgical partners. Dr. Conrad discusses how success rates have increased to lower complication rates and how new and improved techniques for making limbs, still growth, and issues surrounding orthopedic care, are all on the research front.

Dr. Conrad sums up the discussion with one of the most important factors of all, clinical trials. In his own words: "Trials are absolutely critical. The children that we treat, about two thirds to three fourths of the children that we treat are on clinical trials, and it's because we all consider, there are smaller number of tumors so it's easier to focus on them. We all want our children to have the best treatment so they're more intensely evaluated than the average adult, despite our best efforts. But some adults have a negative reaction to clinical trials, and I would like to argue against being negative about trials because the trials allow us to evaluate the effectiveness of therapy, and they're absolutely critical for an unusual sarcoma type and for high grade sarcomas."

Cochlear Implants, Hope After Hearing Aids

Tue, 11 Aug 2009 10:00:00 PDT

If you currently use hearing aids and worry about what to do if your hearing worsens, you have options. In this webcast sponsored by Northwestern Memorial Hospital, Dr. Alan Micco discusses how cochlear implants function and who these devices are appropriate for. Dr. Micco is chief of Otology/Neurotology and director of graduate medical education in the Department of Otolaryngology at Northwestern Memorial Hospital. Also joining the program to share his story is Patrick, a recipient of bilateral cochlear implants.

Patrick begins the program by talking about how he began losing his hearing at an early age. Like most of the men in his family who became totally deaf between the ages of 25 and 40, Patrick anticipated total deafness and got his first hearing aid right out of college. As his hearing loss accelerated, Patrick began exploring his options. He heard of cochlear implants as early as 1984 when they were approved by the FDA. Just a few years ago, Patrick had his right ear implanted and two years later, his left. He speaks candidly about his hearing loss, the benefits he has received from the implant, and his relationship with Dr. Micco.

Dr. Micco helps listeners to understand how the cochlear implant works and how it's different than "normal hearing." He talks about the individualized process of deciding who is a candidate for an implant and what those requirements are. Dr. Micco delves into the mechanics and technology of the implant, the improvements in the devices since their inception over 20 years ago and details the procedure to implant the device. He provides a wealth of information about cochlear implants that you may not learn about anywhere else. If you or someone you know is interested in learning more about these devices, this program can give you the answers you are searching for.

Adult Scoliosis: Treatment Options to Improve Your Quality of Life

Fri, 7 Aug 2009 10:00:00 PDT

Scoliosis affects 2-3% of the population, and is often diagnosed during childhood. However, the symptoms can sometimes linger and cause problems during adulthood, leading patients to have a greatly diminished quality of life. In this Ask the Experts program sponsored by Oregon Health & Science University (OHSU), Dr. Robert Hart discusses the various reasons patients may develop scoliosis and many of the very effective and available treatment options. Dr. Hart is also joined by one of his patients, 58-year-old Laura Osborn, who recently had surgery for her scoliosis and is now back to practicing the yoga she so enjoys.

Laura tells the story of being diagnosed with scoliosis as a child. Being that she was a swimmer, and her family were all physically fit, it did not bother her much. That was, until adulthood. In the past several years her pain had become rather intense, causing her to not be able to sit or stand for long periods of time. She saw an acupuncturist, a chiropractor and a massage therapist, none of which lessened her pain. That's when she met Dr. Hart at OHSU. After consultation, and much correspondence with Dr. Hart, she decided to have spine surgery. Laura has benefitted greatly. Listen to the full program to hear her story.

Dr. Hart begins by talking about the indications for spine surgery, the potential risks, and the personal commitment required from the patient in order to recover properly. He then goes on to help listeners understand the disease progression from childhood and the problems this can lead to in adulthood. Dr. Hart addresses the various treatment options for the symptoms of scoliosis and correcting the curve of the spine. He provides answers to many listener questions and his optimism about future of treatment for scoliosis. If you are searching for information about scoliosis treatment and improved quality of life, this program is where you will find it.

Why the Silence on Women's Sexual Health?

Fri, 7 Aug 2009 10:00:00 PDT

It seems like every ten minutes a Viagra commercial graces our eyes and ears. With the media sensationalizing sexual pleasure and male satisfaction, it's often difficult to look at sexual health from a health perspective - particularly for women. Is there a double standard? If not, why the silence on women's sexual health? Female sexual dysfunction, known as FSD, is a relatively common health issue for women, but many healthcare providers do not address FSD with their female patients during regular medical visits - making this an ongoing issue. How can we balance the focus between men's' sexual health and women's sexual health? Dr. Stephanie Buehler, Chris Veasley, and Lisa Martinez all weigh in on this controversial topic. These three experts offer a wealth of expertise. Also joining the discussion for a male perspective is Peter Frishauf, a contributor to Patient Power and healthcare professional for over 25 years. Don't miss out on a very mind-blowing and moving discussion on sexual health from both female and male perspectives!

Monitoring and Treating Pediatric Scoliosis

Thu, 6 Aug 2009 10:00:00 PDT

Everyone's spine naturally curves inward, but when the spine curves from side to side it's called scoliosis, which can cause problems ranging from moderate to severe. For this "Ask the Experts" program Dr. Matthew Halsey joins Andrew to help listeners understand the diagnosis and treatment of this condition. Dr. Halsey is an Orthopedic Surgeon from Oregon Health & Science University and Doernbecher Children's Hospital.

The program begins with a basic explanation of scoliosis and the ways in which the spine can be curved. Dr. Halsey explains the causes of scoliosis, most often idiopathic, and how the condition can affect growth and development as a child ages. He then goes on to address the detection and diagnosis of scoliosis, and the treatment options available. Based on the individual's condition and severity, braces and spine surgery are often used to treat scoliosis. Dr. Halsey shares his perspective and expertise about the treatment options, and why one would choose a certain treatment over another. He also provides answers to many listener questions.

Research may be changing the future of treatment for scoliosis. Dr. Halsey talks about the research that he and others are involved in and why those with a diagnosis of scoliosis should not be worried. To quote Dr. Halsey, "I tell their families that they can do any kind of work that they want to do, they can do any kind of activity that they want to do, they can have babies without any problems, and that they really should not limit themselves based upon the fact that they have scoliosis."

Carrier Screening: Prenatal Diagnosis for Genetic Conditions

Wed, 29 Jul 2009 10:00:00 PDT

While most women give birth to healthy babies, it's estimated that about 3 percent give birth to a baby who has a birth defect that is clinically significant, and in many cases these birth defects are caused by a genetic or chromosomal disorder. The UCSF Prenatal Diagnosis Center offers comprehensive genetic counseling, screening and diagnostic testing for genetic conditions. Dr. Ellen Simpson, a genetic counselor at UCSF Medical Center, joins Andrew for this Patient Power program to discuss the importance of carrier screening.

Dr. Simpson begins by explaining the risks for certain conditions and why some populations, such as those of Ashkenazic Jewish descent, tend be at a higher risk. From there she explains carrier screening, and how this can help people, even before pregnancy, to head off complications. Dr. Simpson speaks about the pre and post-pregnancy diagnostic options for detecting these genetic abnormalities, some of the most prevalent of which are cystic fibrosis and down syndrome.

UCSF provides support services through social workers, genetic counselors and resources in the community. Dr. Simpson speaks highly of the team at the UCSF Prenatal diagnosis Center. To quote her "…it's important for patients to realize that they do have the power, and our job is to guide and advise but that the decisions are made by the patient and the couple, and our role is to be as supportive and as informative as we possibly can be for them at every step in that process."

Cancer Survivorship: Treating More Than the Tumor

Tue, 28 Jul 2009 10:00:00 PDT

Treating just the tumor is not enough. With 12 million cancer survivors in this country, and more joining their ranks all the time, experts have to do better at not only saving lives, but assuring quality of life after cancer. Survivors face a myriad of challenges after treatment. They include various physical, emotional, practical, social, mental, medical and sexual issues. Today, more is known about these challenges and more centers are starting to pay attention to these issues in a focused and coordinated way.

Dr. Debra Friedman is leading Vanderbilt Medical Center's initiatives to develop a comprehensive research and clinical services program in cancer survivorship. She is associate professor of Pediatrics in the Division of Hematology/Oncology at the Monroe Carell Jr. Children's Hospital at Vanderbilt. The program, called REACH for Survivorship, is a partnership of services and talents from Vanderbilt-Ingram Cancer Center, the Monroe Carell Jr. Children's Hospital at Vanderbilt and the department of pediatrics. Joining the discussion are two cancer survivors, Caroline Hale and Dr. David Carbone, both with their own unique perspectives on these issues.

Caroline is a recent college graduate who has overcome several medical challenges since her treatment for cancer as a young teen. Dr. Carbone is a leading cancer researcher and oncologist who nearly 10 years ago was hearing "you have cancer" himself. Caroline can't say enough about the Survivorship Clinic at Vanderbilt after building rich relationships with staff and other patients who understand, it's about more than just treating the tumor. Join these survivors, along with Dr. Friedman, for this webcast as they share their experiences and discuss this unique area of care. Learn more about what Vanderbilt is attempting to do through the REACH program for ALL survivors, regardless of age at diagnosis, type of cancer or where they originally received their oncology care. So, what are some of the challenges that cancer survivors face as they find their "new normal" and what research is being done to minimize those challenges? Learn all that and more in this unique episode of Patient Power.

Marfan Syndrome and Cardiac Complications

Tue, 28 Jul 2009 10:00:00 PDT

Marfan syndrome is a genetic condition that causes problems with the heart, lungs, skin and vision. According to Dr. Chris Malaisrie, it affects about one in 5,000 people. Dr. Malaisrie, co director of the Marfan syndrome and Related Disorders Clinic at Northwestern Memorial Hospital and the Bluhm Cardiovascular Institute, joins Andrew for this Patient Power program to discuss the importance of diagnosing and treating Marfan syndrome.

Dr. Malaisrie begins by explaining exactly what Marfan syndrome is and why it can cause complications in the heart, and other organs in the body. He speaks about the importance of diagnosing the condition and explains why some people do not realize they have Marfan syndrome until it is too late. Preventative measures can be taken to reduce complications, Dr. Malaisrie details the ways in which the condition can be treated, including surgery. He also talks about what can happen should the disease go untreated.

In addition to a thorough explanation of Marfan syndrome, Dr. Malaisrie answers listener questions on topics such as weightlifting and osteoporosis. To close, he shares information about related conditions and the importance of seeking care at a clinic that specializes in the condition so that you can get the proper diagnosis and treatment. If you suspect that you or someone you know may have Marfan syndrome, this program can certainly give you the tools you need to obtain a proper diagnosis and the care that you need.

Emerging Science: How Stem Cells Might Regrow or Preserve Cartilage

Mon, 27 Jul 2009 10:00:00 PDT

The treatment of cartilage injuries is one of the most difficult challenges for orthopedic surgeons. The injuries can lead to problems with impaired motion and pain as cartilage is damaged and cannot be replaced with effective tissue. Dr. Hubert Kim, Director of the UCSF Cartilage Repair and Regeneration Center at UCSF Medical Center joins Andrew for this episode of Patient Power to discuss treating damaged cartilage by growing a patient's own cells in the lab and then using them to repair damaged tissue.

Dr. Kim begins by talking about the challenges of repairing damaged cartilage. Unlike bones and tendons, cartilage does not heal. Now, with experimentation with stem cells, researchers are excited they may be close to the ability to re-grow cartilage and, after injury, prevent cartilage cells from dying. He goes on to talk about the excitement in this field of research. To quote Dr. Kim, "I think it's time for optimism, and I think that there are a lot of new technologies coming online and that stem cells certainly open up an approach that we just simply didn't have. I think before we were somewhat limited by the types of cells we could use for cartilage repair, and the ability to manipulate these adult stem cells is very exciting. When combined with other technologies that are being developed it looks like we're much closer to a good long-lasting solution than we were at any time previously."

Heart Disease in Women

Wed, 22 Jul 2009 10:00:00 PDT

Heart disease is the leading killer of American women, overall taking more lives than breast cancer and even all cancers combined. It's sometimes harder to detect in women, and often women have very different symptoms than men. On this Patient Power program, hear from a leading researcher and physician about how recent technologies, including the use of microbubble technology, are giving women a better chance at identifying and treating the problem earlier.

Dr. Diana Rinkevich speaks to the common misconceptions about heart disease and what women can do to protect themselves. What is the link between diabetes and heart disease? What is the role of exercise in prevention? Dr. Rinkevich answers these question, while making the point that to protect your heart, you must address all the factors that can contribute to the problem. By doing just 4 things -- eating right, being physically active, not smoking, and keeping a healthy weight -- you can reduce your risk of heart disease by as much as 82 percent. Learn what you can do to protect yourself, as well as simple tests your doctor can perform to help monitor your heart and keep it healthy.

Demystifying Hypertrophic Cardiomyopathy

Tue, 14 Jul 2009 10:00:00 PDT

Hypertrophic cardiomyopathy (HCM) is the most common genetic disease of the heart and a common cause of sudden cardiac death in young people and athletes. In this webcast, sponsored by Northwestern Memorial Hospital, Dr. Robert Bonow highlights the symptoms, screening and treatment of hypertrophic cardiomyopathy and the genetic tests that are available to predict the condition. Dr. Bonow is chief of the Division of Cardiology at Northwestern Memorial and co-director of the Bluhm Cardiovascular Institute. He also is the Goldberg Distinguished Professor at Northwestern University's Feinberg School of Medicine.

The program begins with Marjorie, Dr. Bonow's patient, who was diagnosed with hypertrophic cardiomyopathy in her early 20s. She talks about her early symptoms and the testing she went through when being diagnosed. Marjorie also speaks about the genetics of the condition, and how others in her family have been tested. You'll be truly inspired by her hopeful and positive outlook for the future, especially with someone like Dr. Bonow on her side.

Dr. Bonow begins by defining hypertrophic cardiomyopathy giving a basic understanding of the condition, the commonality of it and the signs and symptoms of the condition. He helps listeners to understand when to seek evaluation and, because the symptoms are common in other conditions, how to make sure that you are properly evaluated. He also touches on the issues of misdiagnosis and genetic test. Dr. Bonow shares information about the treatment and management of HCM and goes into detail about the risks, and the call for diligence if you have or may have HCM. A topic that often flies "under the radar" this program can be a beneficial resource to those with HCM, or those that may have a family member with the condition.

Targeting the Tumor in Lymphoma

Wed, 8 Jul 2009 10:00:00 PDT

Job #1 is always beating the cancer and making sure it doesn't come back. Improved technologies and clinical trials are zoning in on new ways to target lymphomas. On this episode of Patient Power, sponsored by the Seattle Cancer Care Alliance (SCCA), Dr. Ajay Gopal joins Andrew to discuss targeted radiation therapy, targeting other antigens, low toxicity "proapoptotic" therapy and studies on antibodies for lymphoma. Dr. Gopal is assistant professor in the Medical Oncology Division at the SCCA specializing in the treatment of lymphoma.

Dr. Gopal begins the discussion with talks about the exciting news about therapies and improving outcomes for patients with lymphomas. He talks about how different medicines and therapies can work together and finding ways to improve results. Dr. Gopal addresses rethinking strategies and controlling the cancer. He also speaks about Rituxan, an immune protein targeting CD20, and how it's improving survival for some patients. If you have been touched by cancer, you know making tough decisions is part of the process. In this program you will hear more about clinical trials being offered to lymphoma patients at the SCCA, how research for lymphomas, asking the right questions, and using the Internet can be a great resource.

How Does PKU Affect You and Your Relationships? A Look at Managing PKU from Many Perspectives.

Tue, 7 Jul 2009 10:00:00 PDT

Click here to sign up to receive more information from the program sponsors and the Patient Power PKU e-newsletter.

Most people don't know what PKU is. This can make it difficult to deal with in social situations, at school, or on the job. What is the best way to explain PKU to new people in your life? Whether it is with teachers, other parents hosting a birthday party, or, in later years, with dating or in the workplace, this Special Edition program will give you guidance and answer your questions. A psychologist and a dietitian join Andrew for a full interactive discussion on how to manage PKU and your relationships. From these experts, you'll learn how to deal with the moods and emotions of your everyday life, while not letting PKU get in the way.

The program begins with Michelle Brandon, a 21-year-old college student living with PKU. She talks about her relationships, and how she explains PKU when she meets new people. Michelle has never really let her PKU bother her, and she really likes to think of it as being health conscious. Michelle's advice to others, "It's just you're eating healthy, and it's something positive. It's definitely not something negative by any means. So my advice to them is just think as though the glass is half full at all times, it's not empty, and that's just the right attitude to take on it, and that's it."

Mary Niewinski, a nutrition specialist from the University of Illinois Medical Center and Dr. Jennifer Gentile, a psychologist from Children's Hospital Boston, share their expertise with the audience. Ms. Niewinski provides comments and tips for addressing food issues in social situations such as birthday parties and sleepovers. Dr. Gentile speaks about how social support, manageability and attitude are keys to success with PKU. Both experts address the mental and emotional effects of Phe levels that are not well-controlled, and answer questions from listeners. Support from family and friends is one of the most important aspects of managing PKU and your relationships, each guest can attest to this. This program is information-packed and loaded with strategies for success when dealing with PKU.

Click to here to view and print the Take Action Guide from this program.

Cómo la PKU te afecta a ti y a tus relaciones? Una mirada del manejo de la PKU desde muchas perspectivas.

Tue, 7 Jul 2009 10:00:00 PDT

Strategies for A Tastier PKU Diet

Mon, 6 Jul 2009 10:00:00 PDT

On location at The Children's Hospital in Aurora, Colorado, Patient Power host, Andrew Schorr, sat down with leading dietitian Laurie Bernstein, Director of Inherited Metabolic Disease Nutrition. Laurie is dedicated, along with other prominent colleagues, to helping people with PKU follow "A Diet for Life" that is healthy, safe, and, most important, palatable. She founded the event "Network PKU" that brings patients and their families together to discover delicious ways to prepare foods naturally low in protein, connect with each other, and even compete in their own "Iron Chef" competition creating low-protein, PKU-friendly recipes with the secret ingredient.

During the interview, Laurie explains the latest activities of Network PKU. She describes surprising new recipes for people with PKU that are tasty and fun, and proves that, even for those who need to follow an extremely low protein diet, food can be enjoyable. You can view recipes from the event, here.

Andrew and Laurie discuss how important it is to connect with experts for access to all the latest information and keeping up with what's new in the realm of PKU management and diet. Laurie provides listeners with strategies to ensure that if you are currently off diet you can return and be successful. If you are on diet, she helps to find new and tasty ways to support a healthy lifestyle for you or your child. If you are interested in learning more about improving your PKU diet, listen to this information-packed program.

Advances in Hodgkin's Lymphoma

Tue, 30 Jun 2009 10:00:00 PDT

Hodgkin's lymphoma, also known as Hodgkin's disease, develops mainly in young adults and is considered a very treatable cancer. In this Patient Power program, sponsored by The University of Texas M. D. Anderson Cancer Center you'll hear from two inspiring patients and their doctors,as they discuss the latest in the treatment and research of Hodgkin's disease and, in particular, new hope for people whose Hodgkin's disease has relapsed.

The program opens with 19-year-old Alexandra. She talks about her initial diagnosis several years ago, how it affected her life and her treatment at M. D. Anderson. When her cancer recurred, she returned to M. D. Anderson and is currently participating in a clinical trial. Next we hear from Brandy, a 36-year-old whose Hodgkin's disease recurred in 2007. That's when she sought treatment at M. D. Anderson. Both Brandy and Alexandra discuss their specific treatments, and speak highly of not only the care they have received but of the relationships they have formed with their respective physicians.

Dr. Ana Younes, director of the clinical and translational research program in the department of lymphoma/myeloma at M. D. Anderson, joins the program to help listeners understand Hodgkin's disease. Dr. Michelle Fanale, assistant professor in the department of lymphoma/myeloma, discusses treatment approaches, clinical trials and varying responses to therapy. She also shares specific details of the therapies that Alexandra and Brandy have received. Both experts share their perspective on research and the outlook for the future of Hodgkin's disease treatment. If you've been looking for information about Hodgkin's disease, this program is a great educational resource.

Kidney Transplant: Live Organ Donation and Transplantation

Fri, 26 Jun 2009 10:00:00 PDT

The number of people needing kidney transplants in the United States today far outweighs the number of deceased donor kidneys available. With diabetes on the rise and other diseases contributing to kidney failure, we have more people in need of a transplant than ever. As one of the nation's largest kidney transplant programs, doctors at the University of Maryland Medical Center perform more than 300 kidney transplants per year. New innovations in living donor transplantation are making the process easier for the donor and giving new life to those in need. In this Patient Power program, you'll hear from Dr. Matthew Cooper, a transplant surgeon at the University of Maryland Medical Center, as well as the inspiring story of a donor and a recipient.

Shelly Fox was living a difficult life. As a teenager her kidneys had failed. Her mother donated one of her kidneys, and for 19 years, Shelly was able to live normally and even became a mother herself. The living-donated kidney lasted as long as it could, and as a young mother Shelly found herself in need of a replacement and had to go back on dialysis while she waited for a new kidney. Shelly shared her story with friends and acquaintances in hopes of finding a new donor. She even created a website where people could go and learn about helping her. With her own personal circumstances in mind, Kathy, a friend from Shelly's church, wondered if she could help and found that even in her 50s she could. It just took a few days out of her life to give Shelly and her son Ethan years together that they wouldn't have had otherwise. Listen and learn how Kathy improved her health through the donor procedure.

Dr. Matthew Cooper is Director of Kidney Transplantation and Clinical Research in the Division of Transplantation where he and other researchers have developed minimally-invasive ways to reduce the impact of surgery on living donors and extending the life of the kidney in recipients. Dr. Cooper shares information on the latest in living-donor kidney transplantation, what it takes to become a donor, and, how a minimally-invasive procedure can give a full life back to those in need. If you or someone you know is in search of information about options for kidney transplantation, this can be a great resource for you.

GERD: A Burning Issue

Tue, 23 Jun 2009 10:00:00 PDT

When is heartburn not just heartburn? How often should you use over-the-counter remedies before seeking medical attention? What are the warning signs of potentially serious conditions such as Barrett's esophagus? Heartburn, the classic symptom for reflux disease, is very common and thus, a "burning issue" for many. Many of us take medications to control this chronic condition. We have all had some experience with reflux when we over indulge with foods that are spicy and acidic. It can be benign or cause damage to the lining of the esophagus and even predispose patients to esophageal cancer. On this episode of Patient Power sponsored by Vanderbilt Medical Center, Dr. Michael Vaezi, a specialist in the field of gastroenterology, and Peggy Rose, his patient, who suffered with symptoms for many years, talk about treatment answers at Vanderbilt Medical Center.

Peggy Rose spent years and years searching for the reasons behind the tickle in her throat, persistent cough, and even pain in her ears. After many procedures and treatments Peggy found dead end after dead end. It seemed no doctor or specialist had the answer, and she was even told by one doctor, "We don't know everything." Hear how she persisted and found Dr. Vaezi who solved the mystery and now has a treatment plan to put her back on the road to good health.

Dr. Michael Vaezi is Director of the Center for Swallowing and Esophageal Disorders, Director of Clinical Research in the Division of Gastroenterology, and a professor of medicine at Vanderbilt Medical Center. He sheds light on the newest diagnostic tests and treatments for reflux disease, explains the importance of getting a definitive diagnosis, when it's time to seek out a specialist, and research into new and refined treatment options. Learn from both Dr. Vaezi and Peggy as they share both the clinical and personal challenges faced in diagnosis and treatment of this disease. When is heartburn not just heartburn? Find out in this episode of Patient Power.

Maintaining Skin, Hair and Nail Health for Cancer Patients and Survivors

Tue, 23 Jun 2009 10:00:00 PDT

Most everyone knows that cancer treatment can cause side effects that affect your mood or how you feel. They can also affect your hair, your skin and your nails, and certainly your quality of life. Luckily, doctors are taking note and are working to lessen these side effects and complications. In this episode of Patient Power, sponsored by Northwestern Memorial Hospital, Dr. Mario Lacouture discusses the management of dermatological side effects as a result of using chemotherapy to treat cancer. Dr. Lacouture is founder and direct of the Cancer Skin Care Program at Northwestern.

As Dr. Lacouture states early in the program "The cancer skin care program is dedicated to the management of dermatologic side effects occurring in cancer patients and survivors. Our goal is to minimize the effect of anticancer therapies' side effects affecting the skin, hair and nails on the ability of people to continue their normal lives and of course continue to receive their anticancer therapies. For this purpose we have created an interdisciplinary team between oncologists, dermatologists and ophthalmologists, because the eye is also the external portion of our skin."

Throughout the program Dr. Lacouture explains the dermatological issues that patients face and why those side effects occur. He stresses the need for early intervention so that treatment is not delayed and, most importantly, to reduce any anxiety for the patient. Managing side effects is a priority and Dr. Lacouture and his team of focused on keeping it that way. In this program you'll hear the answers to a variety of listener questions ranging from acne to eyelash growth after chemotherapy. If you or a family member has been affected by cancer treatment, this program will be a useful resource for you.

Minimally Invasive Surgery for Abdominal Adhesions & Blockages

Mon, 22 Jun 2009 10:00:00 PDT

After abdominal surgery, patients are subject to adhesions and blockages that can cause serious problems. On this episode of Patient Power sponsored by UC San Diego Medical Center (UCSD), Dr. Mark Talamini helps listeners to understand the latest in minimally invasive surgery and how these procedures are also being used as an investigative tool. Dr. Mark Talamini is a professor of surgery and Chairman of the Department of Surgery at UC San Diego Medical Center. His patient Hillary Patton also joins the program to share how these procedures helped her to be blockage-free and live a healthy, happy life - an idea that once seemed far-fetched.

Feeling her world getting smaller and smaller Hillary Patton, a mother with a young daughter, suffered with pain and regular trips to the emergency room after the abdominal surgery she'd had to correct her ulcerative colitis. She consulted with many doctors and was advised that surgery probably would not help her. Unwilling to give up, Hillary found Dr. Mark Talamini who had the expertise to begin investigating her problem. Hear more of Hillary's journey as a powerful patient to a successful outcome.

As part of his work with the Center for the Future of Surgery, Dr. Talamini has been looking for ways to address resolving abdominal adhesions in a minimally invasive fashion. He also researches and develops new and innovative ways of providing patients with the surgical procedures they need with fewer, smaller scars and quicker recovery times. Using a laparoscope and tiny instruments, Dr. Talamini found that Hillary did not have abdominal adhesions, but Hillary was thrilled to wake up and find that he had been able to diagnose and treat her during the same minimally-invasive procedure.

While being diagnosed on the operating table is not ideal for any patient, it's certainly feels good to know you're in good hands and have the confidence Hillary did. If you are interested in learning more about minimally invasive techniques and procedures, look no further, you have come to the right place.

What UW Medicine Health System Growth Means to You

Thu, 18 Jun 2009 10:00:00 PDT

The UW Medicine Health System, comprised of Harborview Medical Center, University of Washington Medical Center, UW Medicine Neighborhood Clinics, UW Physicians practice plan, and the UW School of Medicine, plays a critical role in bringing the people of Seattle and beyond the best medical care possible. What constraints does the system face? How has it evolved and where do the leaders hope to go? Hear from the VP Medical Affairs, University of Washington and Clinical Operations Officer for the UW Medicine Health System about her goals and commitment to positive growth for the Health System.

Hip Arthroscopy: Allowing Patients to Return Faster to Active Lives

Wed, 17 Jun 2009 10:00:00 PDT

You may have heard the term - 'hip scopes,' otherwise known as hip arthroscopy -- in the news lately with sports stars like Alex Rodriguez, Kurt Warner and Tara Lapinski electing to have this surgery. If you have hip pain, you may be wondering if this minimally invasive procedure is an option for you. Hear from a leading sports medicine specialist about what's involved and which patients receive the greatest benefit from these procedures.

Advances in Inflammatory Breast Cancer

Tue, 16 Jun 2009 10:00:00 PDT

Inflammatory Breast Cancer (IBC) is an extremely rare but very aggressive form of breast cancer. It is critically important to get diagnosed early and accurately, and get immediate treatment by a specialist who is knowledgeable in IBC. In this Patient Power program, sponsored by The University of Texas M. D. Anderson Cancer Center, Dr. Massimo Cristofanilli joins Andrew to discuss the latest advances in the treatment of inflammatory breast cancer. Dr. Cristofanilli is Associate Professor of Breast Medical Oncology at M. D. Anderson.

Valerie, an inflammatory breast cancer survivor from Michigan, opens the program by sharing her story of diagnosis with IBC. In early 2007, Valerie was experiencing breast swelling and discomfort and decided to go to the doctor. She had several mammograms and an ultrasound, but doctors believed her cancer was an abscess. She and her husband, through research of their own, suspected she might have IBC. Valerie wasted no time in calling Dr. Cristofanilli, and traveling to Houston for treatment. She believes that being a powerful patient and seeking care at M. D. Anderson saved her life.

Dr. Cristofanilli discusses the difficulty in diagnosing IBC. He shares the importance of treating the condition with personalized therapy unique to each patient and their needs, and how treatment at a specialized cancer center is key. Dr. Cristofanilli stresses the need for early intervention and the importance of women listening to their bodies and being proactive about getting care. He goes on to explain the latest in research and clinical trials that are available, and how treatment options are expanding. If you or someone you know has or may have inflammatory breast cancer, listen to this program to gain useful insight about the condition.

What Are the Problems When PKU is Not Treated Effectively?

Thu, 11 Jun 2009 10:00:00 PDT

Click here to sign up to receive more information from the program sponsors and the Patient Power PKU e-newsletter.

So you think your Phe is under control, but how can you tell when it's not? Do high Phe levels affect your ability to recognize changes in behavior? Is it harmful for Phe levels to be too low? In this program you will hear from a dietitian, a geneticist, a neuropsychologist, and a woman living with PKU who is also a dietitian. The guests will share tips for treating PKU effectively and with consistency and discuss the challenges of staying on diet, advice for recognizing changes and what can be done about them.

Mary Brown is a dietitian at Intermountain Healthcare in Cedar City, Utah. She was born with PKU in the 1970s, and has been on diet since she was four days old. Mary shares her feelings on Phe levels and notes that she is better at managing stress when her Phe is lower. You'll also hear about her family history with PKU, and how her two sisters, born in the 1950s, received a late diagnosis. Watch Mary's Powerful Patient video, here.

Dr. Georgianne Arnold then joins the program. Dr. Arnold is Director of the Metabolic Clinic at the Golisano Children's Hospital of the University of Rochester Medical Center. She discusses the genetic aspects of PKU and provides an explanation for why some siblings have PKU, while others do not. Dr. Arnold also helps to explain the consequences of high Phe levels, as well as too low Phe levels.

You'll also hear from Dr. Virdette Brumm, a neuropsychologist from Monterey, California. She helps listeners to understand the cognitive effects of elevated Phe levels. Dr. Brumm explains the effects on "executive functioning" as well as the effects on mood and emotions.

Early in the program, Bridget Reineking, a dietitian at the Children's Hospital of Wisconsin, speaks about the need for tight Phe control and how lack of control can affect many aspects of your life. She provides examples of people who have returned to diet and the positive effects of this that have changed their lives. All of these experts provide a unique perspective and help to piece together this sometimes puzzling condition. Listen now to learn more about how to treat PKU effectively.

Click to here to view and print the Take Action Guide from this program.

Qué problemas pueden surgir si no se trata la PKU de manera eficaz?

Thu, 11 Jun 2009 10:00:00 PDT

Digamos que usted piensa que su fenilalanina está bajo control. Sin embargo, ¿có mo puede saber si no lo está? Y si sus niveles de fenilalanina están altos, ¿se afecta su capacidad de reconocer cambios en su comportamiento? En el programa de hoy hablaremos con un grupo formado por una dietista acreditada, una genetista, una neuropsicó loga y una mujer que vive con fenilcetonuria y quien también es dietista. Ellas compartirán con nosotros sus puntos de vista sobre los problemas que pueden presentarse cuando la fenilcetonuria no se trata eficazmente. Hablaremos de todo esto hoy en Patient Power.

Dynamic Duo Surgeons: Treatment and Reconstruction for Head and Neck Cancer

Tue, 9 Jun 2009 10:00:00 PDT

If you or someone you care about is diagnosed with head and neck cancer, particularly cancer of what doctors call the oral cavity, it's a scary diagnosis, and surgery remains the mainstay of treatment. But does that mean that your swallowing, eating, or speaking is affected? Advances in treatment and reconstructive surgery are helping those affected to maintain their quality of life. In this program you'll hear from two leading experts in the field from Northwestern Memorial Hospital. Dr. Harold Pelzer, a head and neck surgical oncologist, helps to explain the diagnosis and treatment for various head and neck cancers. Dr. Neil Fine, a plastic surgeon, explains the reconstructive procedures that follow surgical treatment for these cancers, specifically oral cancer. Dr. Fine and Dr. Pelzer work together to ensure that patients have a good quality of life after surgery. You'll also hear from Michael, an oral cancer survivor, who was treated by the doctors.

Michael begins by sharing his story. He talks being initially being diagnosed with oral cancer in the late 1990s, and how scary that was. When his cancer recurred in the past year, his local doctor didn't think he had much of a chance with surgery. Michael chose to seek out other option and ended up at Northwestern with Dr. Pelzer and Dr. Fine. He talks about his surgery, treatment and recovery. He shares how he's doing now and why he's thankful for the care he received at Northwestern.

Drs. Pelzer and Fine do an excellent job explaining, in tandem, the ins-and-outs of surgery, why it's necessary and how they are working to give the best quality of life possible post-treatment. Not everyone is a candidate for surgery but they explain who is and how they manage expectations of patients by counseling them both before and after surgery. The doctors also answer questions from listeners about osteoradionecrosis, biopsies and post-surgery issues. If you have questions about surgery for head/neck and oral cancers, these experts and an inspiring patient are sure to provide you with insight and information you can't get anywhere else. Listen now.

Life Extending Advances in Mesothelioma

Tue, 9 Jun 2009 10:00:00 PDT

Mesothelioma is a cancer of the lining of the lungs, abdomen, or heart. Around 3,000 new patients in the United States are diagnosed with it each year. Typically, mesothelioma is caused by exposure to asbestos, and although the incidence is rare, cases diagnosed are on the rise. in this episode of Patient Power, sponsored by The University of Texas M. D. Anderson Cancer Center, Dr. Anne Tsao and her patient, Kathy join Andrew to discuss the latest in the diagnosis and treatment of mesothelioma.

In 2008, Kathy began experiencing a cough coupled with breathing problems that would not go away. After many trips to her primary care physician and many failed attempts to treat her worsening symptoms, Kathy was admitted to the local hospital for testing. She was diagnosed with mesothelioma. Kathy and her doctors agreed that she should go to M. D. Anderson immediately. She underwent surgery and is currently enrolled in a clinical trial. Kathy speaks highly of her treatment and how she and her doctors are fighting hard to beat her cancer.

Dr. Tsao then talks about the incidence and causes of mesothelioma as well as the symptoms and how it is diagnosed. She expresses the importance of seeking care at a specialized center to get the proper treatment for this condition. Dr. Tsao explains the importance of enrolling in clinical trials and the targeted treatments that are becoming available to patients. She then addresses asbestos exposure, and Kathy shares her situation of how she was exposed to asbestos at a former job. In addition to providing information on the latest treatments and research, Dr. Tsao provides answers to listener questions. If you are looking a valuable resource of mesothelioma information, listen to this program.

News from ASCO: 6-Minute Cancer Survivorship Care Plans Now Online

Mon, 1 Jun 2009 10:00:00 PDT

With 12 million cancer survivors across the United States, some of the breaking news from the 2009 American Society of Clinical Oncology (ASCO) meeting in Orlando, Florida, concerned the development of survivor care plans. These are designed to help cancer survivors and their doctors be vigilant about the late side effects from past cancer treatments, early signs of second cancers, and on-going psychological and financial needs. Traditionally, cancer doctors and patients focused on beating the cancer. Now, there is an additional focus on enhancing the quality of long-term survivorship.

In this interview, Dr. James Metz, Editor-In-Chief of Penn Medicine's prestigious, Oncolink.org, a cancer information website joins Andrew to discuss the new resources for survivors. He describes a new partnership with the Lance Armstrong Foundation and how, together, they have unveiled a tool to help cancer survivors develop their own survivorship care plan, using an online service, in just six minutes.

Early Diagnosis and Treatment of Pancreatic Cancer

Wed, 27 May 2009 10:00:00 PDT

Pancreatic cancer can be a terrifying diagnosis, and often it's preceded by vague symptoms. However, there are advances being made in diagnosis and in surgical approaches that can make a big difference when it comes to treatment. In this episode of Patient Power sponsored by UCSF Medical Center, you'll hear from Dr. Kimberly Kirkwood as she discuss the latest advances that are extending the lives of those diagnosed with pancreatic cancer. Dr. Kirkwood is a Pancreatic Cancer Specialist and gastrointestinal surgeon at UCSF Medical Center.

Dr. Kirkwood begins by talking about tools used to diagnosis pancreatic cancer, such as blood tests, PET and CT scans, and other imaging devices. She then goes into a deeper discussion of increasing survival rates through early detection and treatment. Dr. Kirkwood speaks about treatments, including surgical techniques, like the whipple procedure, that are showing promise. She also talks about the team approach to treatment - partnering with other specialists in the community to treat patients and return them to their lifestyle post-recovery.

Dr. Kirkwood closes the discussion with optimism. She discusses UCSF as a research institution and the advances being made there that give her so much hope. To quote Dr. Kirkwood "I think the next ten years are going to be a new era for pancreatic cancer. We've learned a lot from the advances in breast cancer and colon cancer therapy in the last decade, and I think this will be the decade in which we apply that knowledge to pancreatic cancer. I expect that our cure rates will improve dramatically in the next decade."

Your Risk of Breast Cancer: What's Age Got to Do with It?

Tue, 26 May 2009 10:00:00 PDT

Based on what you see in the eye of the media, you may think that the average woman with breast cancer is a Mom in her 30s with young children. Although breast cancer can and does occur in younger women, the most common risk factor - other than being female - is simply the passage of time. In fact, the median age at diagnosis of breast cancer is 61, meaning half the women diagnosed are younger and half are older. Confused yet? You aren't alone. Joining Andrew on this episode of Patient Power is Dr. Ingrid Meszoely, clinical director of the Vanderbilt Breast Center and director of the Vanderbilt-Ingram Cancer Center's High-Risk Breast Cancer Clinic. Ronda Conley, a high risk patient keeping a close eye on her health through preventative screenings also participates to share her story. Together, Dr. Meszoely and Ronda talk about the risks of breast cancer and discuss what women should do to protect themselves.

Ronda's family had no prior history of breast cancer, so she and her siblings didn't worry much about their risk. Now their family story is very different, as three of her sisters and a niece have been diagnosed. Their journey to learn more about this disease has been long and sometimes difficult. As a result, Ronda is now listed as high risk. Her goal is to help other women understand how important it is to get screened and to trust your instincts, as it could save your life.

Understanding your own risk of breast cancer and following the recommended guidelines for screening, can be confusing. So what's age got to do with it? Join Dr. Mezsoely as she debunks some of these myths about breast cancer and age. She also talks about the many variables of breast cancer and how a one-size fits all approach is never the answer. In Dr. Meszoely's own words: "...people diagnosed with breast cancer have to recognize that not all breast cancers are the same. It is an extremely heterogeneous disease, and what your neighbor is treated with may not be what you were treated with, and you have to recognize that these cancers are extremely different from each other, and every treatment should be individualized." Listen to this program to learn more about assessing your risk.

Leading-Edge Inflammatory Bowel Disease Therapy at Northwestern Memorial

Tue, 26 May 2009 10:00:00 PDT

Crohn's disease and ulcerative colitis are two types of inflammatory bowel disease (IBD). In this webcast, sponsored by Northwestern Memorial Hospital, Dr. Terrence Barrett discusses state-of-the-art management of inflammatory bowel disease, the latest treatments, where research is headed and also the efforts to head off increased risk of cancer. Dr. Barrett is chief of the Division of Gastroenterology at Northwestern Memorial Hospital and professor of Medicine and Microbiology/Immunology at Northwestern University's Feinberg School of Medicine.

Over the last few years newer treatments combined with older treatments are helping people to better manage inflammatory bowel disease. Dr. Barrett begins with an explanation of what exactly IBD is, delving into the specifics of Crohn's disease and ulcerative colitis. He then goes on to talk about how the disease is treated, when surgery is indicated, and the various drug treatments such as steroids and biologic therapies. He also touches on how the disease varies in individuals and how controlling inflammation through diet and treatment are key.

Cancer risk is also a part of the discussion. Dr. Barrett speaks about the risk in general, and how you can lower your risk. He also provides answers to listener questions about specific drugs, their side effects and colon cleanses. Dr. Barrett closes by talking about the future of IBD treatment and why he's hopeful. To quote Dr. Barrett "I think the opportunities out there for patients have just gone up like light years. I got out of fellowship in 1991, and from the early 90s to now it's been just really a warped speed increase in our understanding of the disease." If you're looking for hope about your condition, or simply to learn more about IBD, listen to this informative program.

A Focus on Diabetic Retinopathy

Thu, 21 May 2009 10:00:00 PDT

Many patients don't realize that complications from diabetes can lead to possible blindness. With nearly 24 million Americans living with diabetes, this is an issue that touches a wide range of people. Join us for a live program, featuring two leading retina specialists, as well as a patient who has been living well with diabetic retinopathy for over 20 years, to get the latest information and your questions answered.

How Confident Can You Be with Your PKU Treatment Plan?

Tue, 19 May 2009 10:00:00 PDT

Click here to sign up to receive more information from the program sponsors and the Patient Power PKU e-newsletter.

Even when you or your loved one is following your PKU diet properly and getting regular checkups, don't you still wonder am I doing enough? Is my PKU treatment plan on target right now? Could I feel better by making a small change? In this Patient Power program, you'll learn about all of this and more from a leading dietitian, a genetic expert in metabolic conditions, and Karen, the mom of a 7-year-old PKU patient. Laurie Sprietsma is a Metabolic Dietitian in the Department of Pediatrics, Division of Genetics and Genomic Medicine at Washington University School of Medicine in St. Louis, Missouri, and Dr. Darius Adams is a Clinical and Biochemical Geneticist at Albany Medical Center in New York.

The program begins with Karen, mother of 7-year-old Patrick. She discusses Patrick's diagnosis shortly after he was born. She speaks to the emotional challenges she faced and how she has worked with her dietitian, Laurie Sprietsma, and other members of the metabolic team to learn how to manage his diet. Ms. Sprietsma steps in to share how she instills confidence in new parents, providing them with resources and tools to learn more about PKU, and to take away the fear and overwhelming feelings that are often experienced when a child is first diagnosed. They both talk about Patrick, the PKU treatment plan and the importance of connecting with other parents and children for support.

Dr. Adams goes on to explain the critical components to developing a treatment plan. He addresses the social aspects of PKU, the importance of regular testing and new treatment options that are available. Dr. Adams also talks about the various behaviors associated with "out-of-control" phe levels, and stresses the need for those who have gone off of diet to work hard at getting back on. Both Dr. Adams and Ms. Sprietsma stress the need for tighter phe control and the difference it can make it one's life both cognitively and socially.

Click to here to view and print the Take Action Guide from this program.

¿Qué tanta confianza se puede tener en el plan de tratamiento para la PKU?

Tue, 19 May 2009 10:00:00 PDT

Update on Irritable Bowel Syndrome (IBS)

Fri, 15 May 2009 10:00:00 PDT

Listen as a colorectal surgeon comments about Irritable Bowel Syndrome, a condition that affects up to 15 percent of the American population and especially women. How does he help diagnose this in his patients? What treatment options are available? Where can you get more infomration if you need it?

The Latest News in Treatment for Multiple Sclerosis (MS)

Fri, 15 May 2009 10:00:00 PDT

BREAKING NEWS: A new drug, Ampyra (generic name dalfampridine, formerly known as fampridine), has been approved as the first oral drug in multiple sclerosis. It's too early to tell what this will mean for most MS patients, but it is a long awaited step. After the annual meeting of neurologists in 2009, we interviewed an MS specialist about oral therapy.

Hear a community neurologist's perspective on what the latest studies mean for living better with Multiple Sclerosis (MS). Dr. Christopher Hughes, a respected neurologist from North Sioux City, S.D. explains new data that shows continued long-term effectiveness for the well established, injectable, disease-modifying medicines. He explains concerning safety data on two oral medicines for MS and encouraging information about a third oral medicine that could be used in combination therapy. Dr. Hughes stresses the importance of patients staying on treatment plans that are working for them now.